Thybon henning t3

[tallulah100]

Hi, I have asked my private Dr to write my prescription for Thybon Henning T3. He said it is only for lactose intolerant patients. Is that true, I know it is lactose free, but I asked for it because it is cheapest. He said I had to email that I was lactose intolerant before he would specify it. I have done that but wanted to check if what he said is true. Thank you for all your help.

[helvella Administrator Thyroid UK]

Yes and no.

UK doctors are supposed always to prescribe one of the UK licensed products unless there is a medical need to do otherwise.

I suggest you have a look at the Summary Matrix of UK Liothyronine Tablets and Capsules in my medicines document.

helvella's medicines documents (UK and Rest of the World) can be found here:

helvella - Thyroid Hormone Medicines

helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.

This link takes you to a page which has direct links to the documents from Dropbox and Google Drive, and QR codes to make it easy to access from phones.

The UK document contains up-to-date versions of the Summary Matrix for tablets, oral solutions and liothyronine available in the UK.

helvella.blogspot.com/p/hel...

[tallulah100 in reply to helvella]

Thank you, I will have a look at that later.

[jimh111]

Thybon Henning is not licensed in the UK so doctors should prescribe a different licensed form of liothyronine. However, they can supply an unlicensed medicine if there isn't a UK licensed alternative. Thybon is lactose free, so if you say you are lactose intolerant the GP is allowed to prescribe Thybon. Your GP is being helpful.

A doctor can prescribe an unlicensed medicine but they have to be prepared to justify it and accept responsibility for monitoring you. Most doctors don't want to do this so saying you are lactose intolerant is the easy way out. PS keep your latte out of sight.

[tallulah100 in reply to jimh111]

Hi thank you for that, when I read the email from him I was really annoyed, but then I realised he was just covering himself, if I say I am lactose intolerant he has a reason to prescribe it.

[Anthea55]

I've not heard about lactose free being necessary. My private doc lets me have prescriptions for Thybon Henning. I've had no problems getting it and my supplier hasn't asked about lactose free. It seems to suit me well.

[tallulah100 in reply to Anthea55]

Hi, thank you for replying, now I have calmed down, I guess he was just covering himself. He has done the prescription now, so hopefully all well.

[McPammy]

you could purchase Thybon Henning 20mcg at £60 for 100 tablets. I couldn’t get my hospital pharmacy nor NHS Endo to prescribe Thybon Henning for me so I go the private route to get it. I pay £120 a year for x2 boxes and £50 a year to my private Endo. £170 a year for my peace of mind and a brand I know that works for me.

[tallulah100 in reply to McPammy]

Hi thanks for your reply, yes my Dr is one of the recommended thyroid friendly Dr's on thyroid UK, I think perhaps he's just covering himself for prescribing it. Hopefully all good now.

[Cvjv in reply to tallulah100]

hi tallulah 100 can I ask you who is your thyroid friendly dr I am looking for one. Thank you

[katemm25 in reply to McPammy]

I was wondering if you could message me details of your private doctor? My private doctor is costing me £450 for just the appointments, blood tests & prescriptions are on top & im struggling to cope with these costs. Many thanks

[RedApple Administrator in reply to katemm25]

katemm25, You can get a list of private doctors from the Thyroid UK website here thyroiduk.org/contact-us/ge...

Please put up a new post of your own if you want members to message you with any recommendations and feedback.

[McPammy in reply to katemm25]

I’ve sent you a private message

[SlowDragon Administrator]

Do you get your T3 on NHS or on private prescription?

Do you cut your 20mcg into smaller doses spread through the day

If NHS prescription then you will have to have U.K. licensed T3

20mcg tablets

Teva - lactose free

Mercury Pharma

Morningside

[tallulah100 in reply to SlowDragon]

Hi thank you for your reply its private Dr and he has now prescribed it for me, so hopefully all good now. It's the only one I could afford, all the others are so expensive.

[SlowDragon Administrator in reply to tallulah100]

Yes price is substantially cheaper at £60-£80 per 100 tablets

Current prices NHS pays

healthunlocked.com/thyroidu...

[Hashiboy]

Hi  tallulah100 hope you get your prescription sorted. I get TBH brand on the NHS. My GP is happy to write it as my preferred brand for the sake of consistency. I got a call from the local area medications budget management person. She said 20mcg TBH was fine on a cost basis and wanted to know if I was happy to cut it or accept 5mcg tabs in another brand - her main concern was that 10mcg T3 in any brand is too expensive. So bottom line is yes I can have a preferred brand for consistency given T3 is only prescribed to patients on an endos advice but I can’t have 10mcg tabs without a bit of wrangling. Can you get your endo to support you sticking to one brand for greater consistency?

I see from your post above it’s all sorted now. Hope it didn’t cause too much stress, at times it feels like we’re have to go through so many extra steps to get access to the meds we need

[tallulah100 in reply to Hashiboy]

Hi thank you, yes sorted now I hope, when I thought about I thought perhaps he was just covering himself.

[Fifteen]

My Endo writes that I am lactose free.

In this world of mistreatment of thyroid patients, does a white lie matter? If you want Thybon 20 Henning, yes, the ignorant, foolish NHS requires this.

I get mine from Germany and my Endo still feels the need to write this in his notes. To 'cover' himself, I presume. That's not any concern of mine.

[helvella Administrator Thyroid UK in reply to Fifteen]

I don't think it does, in itself matter.

But if an endo wakes up one day...

[MaggieSylvie]

Shouldn't our GPs know if we are lactose intolerant?

[tallulah100 in reply to MaggieSylvie]

Only if we tell them I guess, but my prescription is with a private thyroid specialist. I think he knows I'm not really, but as long as I have said I am he is happy as he is covered. Prescription all done and on the way to me. Thanks for your reply