HIPOTHYROIDISM SYMPTOMS PLEASE HELP!

[Lois71]

Hello, as I had previously published, in 2018 I had my thyroid removed and after a week I started to have very strange symptoms, dizziness, I couldn't sleep even though I was sleepy, after a month I was in the hospital for "pathological ". "Reflux, the surgeon never ordered a parathyroid hormone or blood calcium test after that. Today, five years later, I still have symptoms that have taken away my quality of life, a lot of fatigue, muscle contractures in my back, twinges in my toes, tremors, legs, abdominal and esophagus painful inflammation, blurred vision, depression, lethargy, confusion, in short I feel like I'm getting worse (I'm taking sleeping pills and antidepressants since then), the surgeon told me that he had preserved my parathyroids., so all this time I trusted that all the symptoms were always due to the absence of the thyroid, my new endocrinologist finally ordered me to have those tests next week and I hope the outcome be abnormal so I could start taking supplements, I really want an answer since it is have been a long Journey, and I am very tired... Did any of you have these symptoms after your thyroid surgery?

[Lalatoot]

Lois. So we can help can you give us information about what thyroid hormone you are taking such as levothyroxine. Could you share blood test results with us. Seeing the numbers helps to inform us as to what the problems may be.

The things you describe are common hypothyroid symptoms.

[Lois71 in reply to Lalatoot]

Hi, I do take levothyroxine, 3 days 112.5mcg, 4 days 100 mcg these are my lab results of past September:Total T3. 0.53. Ref. 0.84-1.72

Free T3. 2.81. Ref 2.08-4.3

Total T4. 7.17. Ref 4.5-12.5

Free T4. 1.15. Ref 0.89-1.76

TSH. 0.98. Ref. 0.4-4 .0

It is worth mentioning that I have tried to increase the dose of levothyroxine (as well as adding T3), but I get tachycardia and hand tremors.

Thanks in advance for your help.

[Lalatoot in reply to Lois71]

Have you tried splitting your levo dose to take it twice a day? I had to do this to be able to tolerate it otherwise I felt ill. I take mine first thing and bedtime. I did take a dose at 4pm at one stage but it didn't fit in with my routine.

There is a thought that for some folks the spike in hormone levels as a full dose enters the system is too high. Too high a spike can also down regulate conversion. Some of us find that taking several smaller doses reduces symptoms and improves our hormone levels.

[Lois71 in reply to Lalatoot]

Wow, that's new for me, I'm going to try it by increasing the dose little by little, thank you very much.

[SovietSong in reply to Lois71]

Small increments, for example 112.5 daily for couple months then retest and adjust as necessary.

[SovietSong in reply to Lois71]

That’s quite a low dose of Levo your currently taking,working out at 105mcg daily.Those free numbers are very low ,T4 29% and T3 32% through ranges.I had many of those symptoms when undermedicated on 100mcg daily(currently now 150mcg daily).As a rough guide it’s 1.6mcg per kilo of body weight daily.I had RAI few years back and because we have no thyroid at all are likely to need higher doses.I’ve learned on here that T3 is the most important number and unless it’s quite a bit over the range we won’t be over medicated.How long have you been on current dose?

[Lois71 in reply to SovietSong]

Hi, about three or four months.

[renawaltdr]

Hello Lois, sorry to hear . you aren’t well. Could you have your Calcium, Parathormon and Vit.D have checked, in one session. I had my thyroid removed in 1996, got Thyroxine, never felt quite well, and last year found out I had Primary hyperparathyroidism as well, for at least 7 years. After surgery, a lot of my symptoms have lessened or disappeared. For some years I take T4 and T3, with good levels and suppressed TSH.

I wish you all the best.

[Lois71 in reply to renawaltdr]

Hello, thank you very much for your wishes, next Tuesday I will have the parathyroid hormone and blood calcium tests done, I had the vitamin D test done last September and it came out well in the ranges, I have three questions: you mention that you had hyperparathyroidism, that means that Did you preserve your parathyroids and were they altered after the thyroidectomy? The last surgery in which you mention that you improved refers to the removal of those glands? These last few days headaches have added to my symptoms, did you have that too? Thanks in advance for your reply

[renawaltdr in reply to Lois71]

Hello Lois,

I was having extreme headaches from Dec 22 on which finally led to my having the parathyroid surgery finally ( before no one specialist was willing…). I personally think that both diseases ( thyroid and parathyroid) come from the same cause, lots of stress and high cortisol levels for years, due to heavy and early trauma. The glands were preserved in the first surgery. The symptom relief is from the parathyroid surgery. All three parameters should be froM the same bloods taking.

Good luck for you! Healing is ( hopefully) possible!

[renawaltdr in reply to Lois71]

Only one parathyroid gland, which had turned adenoma, was removed. In 85% of the cases it is just one gland. There is a very helpful Facebook group ,UK Parathyroid action4change, and informative website from the Norman parathyroid Center in Florida.

[Lois71 in reply to renawaltdr]

DeAsí es, muchas enfermedades vienen por estrés crónico, lamento mucho lo que pasaste. Ahora que mencionas tu adenoma, quiero decirte que mi tiroides ya estaba llena de nódulos (benignos) cuando me lo quitaron. En el año 2017 durante una resonancia magnética se detectó un microadenoma hipofisario al cual los médicos no le dieron seguimiento porque concluyeron que era solo un quiste, mi prolactina está alta, mi ACTH está alta, tengo quistes en los senos, en el 2020 me me extirparon un ovario por un quiste seroso (benigno), solo falta que el medico me recete una tomografía computarizada de las suprarrenales para descartar algo anormal en esas glándulas, le digo a mi esposo que tiene suerte porque tiene un esposa "llena de bolas" (es broma), de hecho estoy investigando un gen defectuoso que causa neoplasia endocrina múltiple para decírselo a mi endocrinólogo en la próxima cita. Gracias por tu confianza al compartir tan valiosa información conmigo, espero armar “mi rompecabezas” para finalmente encontrar la salida a este camino que parece no tener retorno. te deseo lo mejor.

[renawaltdr in reply to Lois71]

Hola Lois,

tengo que utilizar más mi Castellano… but I could use a translator app.

Thank you for the information, interesting, I also had benign nodules in my thyroid ( virtually no healthy tissue was left, so you can imagine how I felt then…), a benign nodule was removed from my breast 2003, the uterus was full of myomas and also removed, a benign ovarial cyst in 2021…so perhaps I could have a genetic background, too—- but is there a cure?

Warm regards, Renate

[Batty1]

Being Thyroid-less has also killed my quality of life …. I developed psoriatic arthritis shortly after my thyroidectomy… crazy!

[Lois71 in reply to Batty1]

I am very sorry to hear that, it is certainly something we have to fight for every day, even I have the suspicion, because of all my symptoms and altered results of other hormones, that after my surgery there came a domino effect that altered other glands. such as the adrenals and the pituitary (in 2017 I was detected with a pituitary microadenoma). I hope that at some point you feel better. By the way, have you heard about the Coimbra protocol for autoimmune diseases? It is based on therapeutic doses of vitamin D