latest results : Hello, started on Levothyroxine... - Thyroid UK

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latest results

Macp17 profile image
12 Replies

Hello, started on Levothyroxine late last year after being diagnosed with sub clinical hypothyroidism and Hashimoto's). After a bit of tweaking with dosage from GP they feel I am now on correct dose (alternate 75/50mg daily; I weigh 56kg). I definitely feel better than I did but still have lots of fatigue and dry skin/hair loss/brittle nails.

Would appreciate one of you knowledgeable people looking at my results as I still (despite lots of reading on here!) don’t really understand the conversion rates

My results (from monitor my health 11/09/23) are;

FT3 4.5 (range 3.1-6.8)

FT4 17.8 (range 12-22)

TSH 2.65 (range 0.27-4.2)

Results from GP 4days later (test done same; before 9am, no dose that day, fasted etc) were bit different;

TSH 1.98 (range 0.35-4.84)

(Had full blood count done at this time but can’t see any results for Thyroxine and Triodthine having been tested)

Just wanted advice re whether these conversion rates are ok (was on 75 mg daily but my TSH dropped to 0.11 on NHS test in May which was out of range so they suggested the alternate days dosing)

Thank you in advance! 😊

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Macp17
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greygoose profile image
greygoose

FT3 4.5 (range 3.1-6.8) 37.84%

FT4 17.8 (range 12-22) 58.00%

TSH 2.65 (range 0.27-4.2)

Your conversion is not brilliant, but then again, you haven't got much to convert. Your FT4 would be too low for most hypos - and overall, your levels are too low for your pituitary. Which is why your TSH is too high - it should be 1 or under, so even the NHS TSH was on the high-side for someone on thyroid hormone replacement.

Your doctor should not be dosing by the TSH. That is an absolute no-no because once it gets below 1 it's a very bad indicator of thyroid status. And now, due to dosing by the TSH, you are under-medicated. So, your doctor will probably increase your dose (hope so!) and next test your TSH will be below range again, and he will reduce it... And round and round we go ad infinitum. It just never works.

As for your conversion, looking at the persentages, they should be closer together, something like FT3 at about 50-55%. Yours are too far apart, which means poor conversion.

SlowDragon profile image
SlowDragonAdministrator

That’s a very low dose levothyroxine

Your results show you need dose increase in levothyroxine

Request increase to 75mcg daily and retest in 6-8 weeks

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

SlowDragon profile image
SlowDragonAdministrator

75 mg daily but my TSH dropped to 0.11 on NHS test in May

That’s typical soon after dose increase in levothyroxine…..then TSH slowly increases again as you get ready for next increase

Guidelines on eventual dose of around 1.6mcg per kilo suggests you may need small increase again in few months time

Macp17 profile image
Macp17 in reply to SlowDragon

Thank you to both of you for your advice. My prescription hasn’t changed since I was advised to alternate doses so still says 75mg per day. I might just start taking that and then do another Monitor my health test in 8 weeks (GP now has me in yearly testing so not due again with them till sept 2024). Still don’t understand the conversion (it’s like I have a complete mental block with that!) so may well post my new results after 8 weeks for explaining again! Thank you again 😊

SlowDragon profile image
SlowDragonAdministrator in reply to Macp17

A normal correctly working thyroid would make 80-90% Ft4 and 10-20% Ft3

Only being prescribed just Ft4 (levothyroxine) frequently results in high Ft4 and low Ft3

Many many people actually need/benefit from small dose T3 prescribed alongside levothyroxine

Macp17 profile image
Macp17 in reply to SlowDragon

As with what seems a lot of people on here, my GP appears to only look at TSH (I had to “encourage” the rise from 50 to 75 as my range then was within the NHS range,). The GP (new to surgery) was good and did listen and agree to trial it, but think getting anything else would be like getting blood out of a stone! I’ve rethought my strategy and I’m thinking I might do 75mg mon -fri and 50mg on weekends and then retest in a couple of months (is it ok to play around with dose like that?). Difficult though as Monitor my health results always appear to be higher TSH than NHS, so won’t really know what my next GP test would show. Ih well, got a year to tweak it as next review not due till next September!)

SlowDragon profile image
SlowDragonAdministrator in reply to Macp17

I would increase to 75mcg daily and retest thyroid and vitamin in 8-10 weeks

What vitamin supplements are you currently taking?

Dry skin suggests hypo

Hairloss suggests low iron

Brittle nails low B vitamins

suggest you test vitamin D levels now

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

ESSENTIAL to maintain good vitamin levels

Many (most?) thyroid patients need to supplement vitamin D, magnesium and vitamin B complex daily

Some need separate B12 and/or iron supplements too

Low vitamin levels tend to lower TSH because conversion is poor with low vitamin levels

As you have Hashimoto’s are you on gluten free and/or dairy free diet

56kg x 1.6mcg suggests likely eventual dose levothyroxine may be 90mcg daily = 630mcg per week

Roughly 100mcg four days per week and 75mcg 3 day = 625mcg per week

Macp17 profile image
Macp17

As with what seems a lot of people on here, my GP appears to only look at TSH (I had to “encourage” the rise from 50 to 75 as my range then was within the NHS range,). The GP (new to surgery) was good and did listen and agree to trial it, but think getting anything else would be like getting blood out of a stone! I’ve rethought my strategy and I’m thinking I might do 75mg mon -fri and 50mg on weekends and then retest in a couple of months (is it ok to play around with dose like that?). Difficult though as Monitor my health results always appear to be higher TSH than NHS, so won’t really know what my next GP test would show. Ih well, got a year to tweak it as next review not due till next September!)

nimnom44 profile image
nimnom44 in reply to Macp17

I knew immediately that the 75mg a day was too much for me - I felt like my whole body was racing, so I'm sure you'll know if it's too much. Good luck

nimnom44 profile image
nimnom44

Hi, my experience has been to listen to your body. I was hovering around the top level and feeling terrible so my gp eventually upped my dosage. 75mg daily was too much and I could feel that, so I alternate between 50 & 75 and after retesting my TSH was 3.93. I know some on here will say that's too high but I feel really well so it's obviously the right level for me. I hope that's helped. Naomi

ClareJenkins profile image
ClareJenkins

I can't add much other than to say that I discovered recently through the Thyroid UK Magazine that biotin affects the test result of TSH. I checked what I was taking to help the hair and nails and it was an ingredient. It is also in some shampoos. Apparently one should discontinue for at least 48 hours before testing

TinaZim profile image
TinaZim

In addition to Leveroxin I also take Omega 3 oils for dry hair, eyes etc. Plus I take magnesium and Vitamin D daily, and bath in epsom salts. I also use Omega 3 oils on my skin. Hope that helps. Christina

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