Paul Daniels: Pernicious Anaemia and Under-acti... - Thyroid UK

Thyroid UK

141,240 members166,488 posts

Paul Daniels: Pernicious Anaemia and Under-active Thyroid

helvella profile image
helvellaAdministrator
6 Replies

Over on the Pernicious Anaemia forum, there has been a post about Paul Daniels having Pernicious Anaemia.

Post:

healthunlocked.com/pasoc/po...

Blog:

martynhooper.com/2016/03/20...

But I also saw this:

“That’s how I knew he was ill. I just thought he was tired. Panto is exhausting for even a 20-year-old. Paul had an under-active thyroid, I thought the medication needed tweaking.”

thesun.co.uk/sol/homepage/f...

And:

Four years ago [from 2009] my thyroid stopped working and it took them a hell of a long time to find out what was the matter with me. I honestly believed I was going insane; I was losing control and felt weak.

I finished up unconscious on a cruise ship in New York harbour. The other passengers thought I was dead. I was taken to a hospital and in the light of recent chat about the NHS, trust me, never be ill in America. I was in hospital for three days - lying in a bed and ignored.

When I got back to the UK ten days later, a nurse at the private hospital I went to said to the doctor: 'What about his thyroid?' They found it had closed down and all my organs were slowly packing up.

It took another nine months to find the right balance of drugs and I'll have to take the pills for life. But I feel great now.

dailymail.co.uk/health/arti...

There is probably more information out there, but this was sufficient to make me want to post.

Written by
helvella profile image
helvella
Administrator
To view profiles and participate in discussions please or .
Read more about...
6 Replies
LindaC profile image
LindaC

My goodness - how drastic to reach that point - but at least for a while he was 'fixed' but who knows what the long term damage did? Thank you, very interesting indeed.

Marz profile image
Marz

They probably didn't test his thyroid anti-bodies to reveal Hashimotos. Hence it took so long to diagnose his UAT as his TFT's - or even just the TSH was in range. Nor it seems did they test his B12 as a matter of course when the UAT was known about. All rather sad. Both PA and Hashimotos being auto-immune conditions possibly didn't cross the minds of his Docs either.

So with all the money in the world it seems the very basics are still being missed. For sure we are better off on this forum - learning for ourselves - sharing bits and pieces of experiences and knowledge and travelling our own routes to wellness.

Thanks for posting and reminding us to be vigilant :-)

It is sad when people get so unwell before they are properly diagnosed and treated. Makes me angry too. How many people don't have the luxury to go to a private hospital? Who knows what would have happened if he wasn't able to.

Reading the interview with him though on your daily mail link I got annoyed. He said that alternative therapy is for people who are idle, self indulgent and attention seeking. I'm not completely sure about it, but if it helps as an extra treatment alongside orthodox, and people feel happier, then why not? :-)

helvella profile image
helvellaAdministrator in reply to

StillSearching,

Even in the private hospital it sounds as if a rather more than averagely aware nurse was the key figure. Not the doctors who were, we can assume, in charge of his case.

That awareness could just as well have come into play in any other hospital or clinic/surgery.

in reply tohelvella

Of course it could, I think nurses generally have more time and compassion for patient's than doctors. Either way, he was lucky to be at that hospital at that time. .

Marz profile image
Marz in reply tohelvella

Sally Pacholok was one of those nurses in the US. She kept seeing low B12 but could not get the Docs to take her seriously. They have now made a film of her story which will be screened in Loughborough at the time of the B12 Conference in June.

b12deficiency.info/

Trailer of the film in the above link !

Not what you're looking for?

You may also like...

Pernicious anaemia

Thought you might find this interesting. Martyn Hooper, a college lecturer, felt so exhausted all...
Deeday profile image

Pernicious anaemia connection

Hello, I have had many thyroid symptoms for a while now but my tests keep coming back in the...
myanne profile image

The Pernicious Anaemia Society 2013 Conference

I thought some of you might wish to know about the Pernicious Anaemia Society's 2013 Conference....
helvella profile image
Administrator

Hashimoto and pernicious anaemia..

Hi there! I didn't post for awhile. I just want to ask what kind of antibody test is done for...
madness07 profile image

Medical question - under active thyroid

I am new to this group but have a question. I was diagnosed with an under active thyroid about a...
Debbie-M profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
RedApple profile image
RedAppleAdministrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.