Hello. I’ve had hypothyroidism for years, (current GP system doesn’t let me view medical history so I can’t give you the year ) but never looked as if I do, eg current weight is 7st 11 lb and I’m 5’ 4” tall. I’ve been on Levothyroxine, was on 75mcg then last year it was increased to 100mcg
I still have hypo symptoms eg, cold intolerance, low ferritin (currently taking ferrous sulphate 200 mg), hair loss, minor restless leg - twitchy and tingly right foot, dry skin, fatigue. Last blood tests were TSH 0.10 and T4 22.6.
GP has reduced my Levo dose however the blood test was done without my knowledge - I went for a FBC, liver function, and serum lipase test, plus B12 etc - so I hadn’t arranged the blood test for early morning. I will discuss that with GP!
Previous TSH were: 0.33 - Oct 22. 5 - Jul 21. Previous GP surgery didn’t do T4
I am not convinced I should have my Levo dosage reduced. I spoke to GP last week and basically she just put the phone down on me after saying I needed to reduce my dosage. I've found out I have been given another telephone appointment - didn’t get any notification of the appointment, just found it when checking on the website for something else!
Any help with information/questions to raise with GP would be helpful. Thank you
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LizzieAFib
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Hi, I thought your doctor had to allow you to see your records, if you request it, but in anycase, if you create an account with NHS Online you can see your entire medical history.
Thank you. I saw an advanced nurse practitioner the week before last and whilst there asked why I couldn’t see my records - turns out I had to fill in another form, which I wasn’t given when I changed GP practice. My previous GP practice removed loads of patients from their practice - assuming because of new housing estates locally. Have filled out the form, and got one for hubby too, but will take about 5 weeks before I can see my previous data on the NHS and Patient Access sources.
Sounds like even with a high fT4 you possibly aren't converting enough to fT3 if still symptomatic...
I would suggest you get a full thyroid panel private blood test to see where you are with this and if it comes up low you can request a referral to an Endo 🤗
Hi LizzieAfib . for a list of useful discussion on the subject of Low TSH/ Risk vs. Quality of Life , see my reply to this post (3rd reply down) : healthunlocked.com/thyroidu... feeling-fine-but-tsh-is-low
Also see this post : healthunlocked.com/thyroidu... useful-evidence-that-tsh-between-0.04-0.4-has-no-increased-risk-to-patients-on-levothyroxine-updated-new-study-does-show-small-risk
Refuse to reduce dose until had full thyroid and vitamin testing done…privately if necessary
You’re only over medicated if Ft3 is over range
what vitamin supplements are you taking
Remember to stop any supplements that contain biotin 5-7 days before any blood tests
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
Thank you very much SlowDragon for your comprehensive reply. I spoke to the Dr today and explained that my TFT had been done without my knowledge and she didn’t know about the time gap from taking the Levothyroxine or blood test early in the morning so I explained that’s what was advised by my previous GP practice. Anyway, she's agreed to redo TFT in 5 weeks.
I'd like to get FT3 done.
The only supplements I take are Q10, magnesium citrate, digestive enzymes, and kefir (I have IBS D). I do eat a daily dose of Brazil nuts for my selenium
Re biotin - should I avoid foods like eggs before the test? TY
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so I can’t give you the year ) but never looked as if I do, eg current weight is 7st 11 lb and I’m 5’ 4” tall. I’ve been on Levothyroxine, was on 75mcg then last year it was increased to 100mcg
Help with blood test results please 
New blood test results
Blood test results , help please ? 
Blood test results
Updated blood results following reduction in Levothyroxine
