Levothyroxine and Menopause : Hi all, I had... - Thyroid UK

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Levothyroxine and Menopause

mary_frank profile image
11 Replies

Hi all, I had thyroid cancer many years ago and had a thyroidectomy. I’ve been on levothyroxine for 21 years. I’m in my early 50’s and menopausal. I’ve started HRT which still needs to adjusted BUT the Endocrinologist is lowering my levothyroxine.

I exercise regularly and have a very physical job, I’ve cut my sweets by 50% but I’m putting on weight, I’m tired all the time and I’ve asked the consultant to leave my levothyroxine dose alone until my HRT is stable. But they are not listening. Is or has anyone experienced this? What did you do?

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11 Replies
RedApple profile image
RedAppleAdministrator

mary_frank, On what basis is your levothyroxine dose being lowered? Please post the thyroid blood test results that have triggered the endo to say this.

mary_frank profile image
mary_frank in reply to RedApple

Hi RedApple, basically it was a telephone consultation from the Endocrinologist. I haven’t had a blood test since May 2022. It seems from what she said it is more due to my age and the risks of levothyroxine on my brain and bones. My last blood test results are:

She wants to lower my levothyroxine to 75mcg but I said no but agreed to take that level on weekends and continue with the 100 in the week.

mary_frank profile image
mary_frank in reply to RedApple

I took a photo of my blood results and tried to put it with the message. I don’t know if it worked?

Jaydee1507 profile image
Jaydee1507Administrator in reply to mary_frank

There's a glitch with posting photos at the moment. The reply seems to jump to a different reply. Upload the photo first then write the text in the reply where the photo is.

Buddy195 profile image
Buddy195Administrator

I would refuse to adjust Levothyroxine without a full thyroid blood test (TSH, FT3, FT4). Although I have actually needed a slight reduction in thyroid medication since starting HRT, many women actually need an increase.

If your GP is unable to complete all thyroid blood tests (eg if TSH is within range, some surgeries may not be able to access FT4 and FT3 tests), you could look to do this privately, as many forum members do, for a better picture of your thyroid health: thyroiduk.org/help-and-supp...

Do share results with us when you have them.

Regarding optimal dosing of HRT, it may be useful to have a look at Dr Louise Newson’s free Balance App, as I find it really useful. There is also an ability to post questions.healthunlocked.com/redirect... 

mary_frank profile image
mary_frank in reply to Buddy195

Thanks Buddy195, I will check out Dr. Louise Newton’s app and the thyroid uk website. I will be calling my gp as I’m due a blood test. I will let you know the results.

Buddy195 profile image
Buddy195Administrator in reply to mary_frank

It’s best to share results in a new post, rather than add to this one; as more members will be alerted/ able to offer support & advice 🦋

SlowDragon profile image
SlowDragonAdministrator

Refuse to reduce dose until had FULL thyroid and vitamin testing done 6-8 weeks after starting on HRT

HRT frequently results in needing INCREASE in levothyroxine

Is your HRT pills or patches

Pills must be at least 4 hours away from levothyroxine

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test, and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Tips on how to do DIY finger prick test 

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee 

mary_frank profile image
mary_frank

Ok, maybe I got it this time.

Black and white letter of graph of blood results
SlowDragon profile image
SlowDragonAdministrator in reply to mary_frank

There’s no Ft3 or vitamin D, folate, B12 or ferritin results

So you need full thyroid and vitamin testing

See if GP will test vitamin levels

If not get thyroid and vitamins tested via Medichecks, BH or MMH

Come back with new post once you get results

mary_frank profile image
mary_frank in reply to SlowDragon

Thank you, I will.

I really appreciate all the answers and advice.

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