Help with Vits, Test Results and Hairloss - Thyroid UK

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Help with Vits, Test Results and Hairloss

Gilbo72 profile image
11 Replies

hi all, I have been away for a while as I have been ticking over relatively well for me.

Anyhow, I am once again experiencing hairloss. I have been susceptible to hair loss since becoming ill with Hashimotos over 10 years ago, I suffer from chronic TE. It got really bad following my first AZ jab, and then a year later after Covid. Over the years I have regularly had bouts of shedding. I thought it had finally settled down and was growing again, when it started again back at the beginning of May.

I went to the GP, and asked her to ignore the thyroid for now and leave that to the endo. She did have a quick look, and said she would test my B12, Ferritin and Folate plus a FBC. She admitted, the NHS don’t really care about Hairloss, it’s difficult to know exactly what causes it, and that I was obviously susceptible to it. We did have a conversation that my results would probably comeback ‘normal’ but I would like help with getting them all to optimum.

However, sadly, I now have my results back (which are ‘within range) but my GP is now ill, and they don’t know when she will be back, so I’m on my own again. I will add the rest of the test in comments below…

Regarding my thyroid, I am now on 72mcg of levo and 20mcg of lio. The last thyroid tests are included. My TSH is slightly suppressed and my T4 and T3 are quite low. However, the previous test, when my hair was growing well, was very similar but my TSH was just in range. I do feel a bit lethargic and tired, but I am so much better on this dose the when I was on mono and had a suppressed TSH, over range T4 and under range T3. I would like help with my vits before involving my thyroid again! The GP acknowledged the levels were low even though the TSH was suppressed, but I did say I would talk to the endo when I had a clearer picture about the other tests. Personally, I don’t think it is as simple as just the thyroid.

Vitamin D is alway around the 95/90 mark. I take supplements during the winter and tend to sit outside and work outside part-time.

Years ago (2012), when I was untreated for hashimotos, I was mis diagnosed with CFS. My B12 was around 250 and I was put on weekly injections until my reading was over a 1000. I do think I have a digestive/absorption issue. I have had problems for years and it is particularly bad right now. I recently heard about SIBO and wondered if I have it, and what on earth I do / go and see about it .

Any comments? Many thanks

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Gilbo72
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Gilbo72 profile image
Gilbo72

I have full FBC too, plus FT3 was 4.2 (2.4-6)

Test results
SlowDragon profile image
SlowDragonAdministrator in reply toGilbo72

Ft4 is low

If test was done as recommended, you probably would benefit from increase in levothyroxine

SeasideSusie or humanbean may comment on iron test results

Looks like you probably have room to supplement iron

Certainly increase iron rich foods in your diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin 

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Excellent article on iron and thyroid 

cambridge.org/core/journals...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Good iron but low ferritin 

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Shellfish and Mussels are excellent source of iron 

healthline.com/nutrition/he...

Heme iron v non heme

hsph.harvard.edu/nutritions...

Gilbo72 profile image
Gilbo72 in reply toSlowDragon

Thank you SlowDragon for the links. I will have a read and probably come back with a 100 more questions! lol! Interesting, I can imagine my endo will want to reduce my does because of the TSH, so building up a ammo for when I see him again in August, but I am guessing my ferritin may not be anywhere near where it should by then, but potentially B12 could be. I am sure I read an article about the doctor who invented the TSH test who said it was only designed to be a diagnostic test for untreated hypothyroidism and would never work once T3 was added. I need to find that.

Do you think it’s worth me adding The Better You Iron spray to my regime at the moment, (including some weekly liver…. Urghh) or could I take liver tablets??

SlowDragon profile image
SlowDragonAdministrator in reply toGilbo72

See SeasideSusie reply on wether you need supplements …..borderline

You would need to do full iron panel test every 3-4 months if you did supplement

Posts discussing Three Arrows as very effective supplement 

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

please add actual results and ranges for Ft4 and Ft3

Was test done as recommended

Test early morning, and last dose levothyroxine 24 hours before test

Day before test split T3 as 3 doses spread through the day. 10mcg waking, 5mcg mid afternoon and 5mcg Approx 8-12 hours before test

What vitamin supplements do you take daily

Many, many members need to take daily vitamin B complex

Initially you will need separate B12 as well until B12 is over 500

Low B12 symptoms 

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week 

B12 drops 

natureprovides.com/products...

Or

B12 sublingual lozenges 

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate 

healthunlocked.com/thyroidu...

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) 

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid 

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) 

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay 

Other options 

healthunlocked.com/thyroidu....

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until B12 is over 500

Gilbo72 profile image
Gilbo72 in reply toSlowDragon

hi SlowDragon ,

The ranges are in the attached JPEGs.

I now always follow the protocol for testing. So yes, about 8:30am, with the lio split, and the necessary time gaps between each. This last thyroid test, I had been taking Ingennus Super B-Complex, so I stopped that two weeks before the test.

At present I am taking daily: (started about a month ago)

Better You Vitamin B12 (1200μg per dose) first thing with lio

Florisene (contains C-48 mg, B12-6μg, Biotin-100mg, Iron as Ferrous Fumarate-40mg, Selenium-20μg, L-Lysine-1000mg - I take this mid morning with a Vit C 1000mg and 10mg zinc fizzy tab drink

In evening I take the levo and turmeric/curcmin and ginger.

Previous too this, I was taking Hairburst instead of the Forisene for a month, minus the Better You B12 spay and Vitamin C/Zn.

Previous to that I was taking Ingennus Super B-Complex for a month (contains Vit C- 160mg, B3- 48mg, B5-36mg, B6- 20mg, B1-20mg, B2-14mg, B12-900μg, Folate-400μg, Biotin-300μg) , minus the Better You B12 spay and Vitamin C/Zn.

For 3 months previously, I was taking half the above Florisene again, minus the Better You B12 and Vit C/Zn

I eat a lot of marmite and add B12 nutritional flakes to a lot of food. I did go vegan for a few months last year, but am eating fish and some good quality meat again, but not as much.

During October to May I take Vit D.

So do you think I should add the ingennus back again now?

SlowDragon profile image
SlowDragonAdministrator

Iron and ferritin

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Ferritin over 100 to alleviate symptoms 

healthunlocked.com/thyroidu...

Great research article discussing similar…..ferritin over 100 often necessary 

ncbi.nlm.nih.gov/pmc/articl...

Low Iron implicated in hypothyroidism 

healthunlocked.com/thyroidu...

what’s your diet like

Are you vegetarian or vegan.

Do you eat red meat daily?

Gilbo72 profile image
Gilbo72 in reply toSlowDragon

Hi SlowDragon , as said above, I did go vegan for a couple of months, but was very careful trying to eat iron rich foods and adding b12 where I could, I am back to eating fish, but not so much meat. Loads of spinach, lentils, chickpeas, apricots etc, and added the florisene. It does feel like this whole thyroid thing is such a merry go round, I never used to have vitamin problems and was brought up on a healthy diet with meat (hearts, livers urgh!), and have tried to remain non processed, good quality meat/fish whole grain food and veg, home-cooked food etc.

SlowDragon profile image
SlowDragonAdministrator in reply toGilbo72

If you don’t eat red meat, likely to struggle to maintain iron and ferritin

Perhaps look at daily red meat, weekly liver, black pudding etc instead

SeasideSusie profile image
SeasideSusieRemembering

Gilbo72

With regard to your iron panel. Optimal iron panel levels according to rt3-adrenals.org/Iron_test_... are:

Serum iron: 55 to 70% of the range, higher end for men - yours is 18 (9-30) = 42.86% so not quite optimal but not too drastically low.

Saturation: optimal is 35 to 45%, higher end for men - yours is 28% so again a bit lower than optimal but not dire.

Transferrin: Low in range indicates lack of capacity for additional iron, High in range indicates body's need for supplemental iron - yours is 34.16% through range so in the lower part of the range suggesting iron supplemets aren't necessary.

Ferritin: Some experts say the optimal level for thyroid function is 90-110ug/L so yours has a way to go.

Ferritin can be raised when inflammation is present so it's always useful to test CRP (an inflammation marker) at the same time. Yours may or may not be a true measure of your normal level, we wont know unless CRP is tested at the same time.

All in all I would say your iron is a little on the low side but not low enough to supplement with iron which is borne out by your transferrin level. Iron rich foods may be the answer to trying to raise your level but if you did decide to supplement then you need to do a full iron panel every couple of months to check your levels, if serum iron and saturation get too high this may lead to toxicity.

Gilbo72 profile image
Gilbo72

many thanks SeasideSusie . So if I kept on with the Florisene for another 3 months and continued to eat well? Probably not contributing to hair loss? What do you think of my B12 levels and Folate levels?

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