My thyroid has caused me few obvious problems in that time, other than varying T3 results.Before Xmas, 2022 I had a radionuclear scan which diagnosed toxic nodular goitre. I returned in January '23 to discuss what Endo want to do. Apparently, my choices are RAI or take Carbimazole. The dose was low, 5mg, so this sounded to me like a better option, and after a period of reflection, I began taking it 24/2/23.
I remember periods of extreme tiredness when I could not stay awake, day or night. I was not interested in eating. I experienced unusual periods of indigestion that demanded I sleep upright at times, and I had minor chest pain and asked my GP if this could be my heart, but he thought not.
I went on holiday, a small boat cruise that offered a French chef, high fat, sugar, acid, and wine! I did not know about the chef before I joined - that was a change to basic cooking offered in the past.
By the end of the cruise, I began to realize my health had deteriorated, even though I had restricted my 'French food" intake as much as possible.
The day after my return home, I dug out a blood test form for if I felt unwell, or 6 weekly test for liver function and T3. I had already concluded I might need to destress my liver, so went straight on to a bread and water diet. I had been feeling very sore , nauseous and pains had moved to right side under ribs, up to shoulders, and down my back between shoulder blades and hip bones.
I had a prompt call from Endo Dr, saying discontinue Carbimazole, your liver is stressed.
5 days later, I have had a 2nd test, my liver is worse, I am dehydrated, my sodium & potassium are very low, my stools changed to peanut butter colour, and my urine has gone orange. I am still at home alone but have been called by my GP as well as 2nd call from Endo and a 3rd test scheduled for next week. I have been drinking as much water as I can, but even that gives me pains in back. Have tried a few other foods, but opted for porage, probably for breakfast, lunch and dinner!
After a week feeling like this, I hope things will improve soon and have not given up thought of getting myself to hospital. I have no energy, and realize that my social calendar is going to take a dive in activity as day outings will not be tolerated!
Sorry for long winge! Hope it might help someone else in same situation.
Graves disease and a multi-nodular goitre: On low dose carbimazole, but now GP only testing for TSH annually?
Recent TSH Results
Graves - Frequency of blood tests
