Having been on Carbimazole for about a year, recently been taking 15mg, my T levels have fluctuated, although at times nearly gone back to normal. The last 2 tests (September and November) have shown my T3 rise from 7.6 to 9.4 (Normal range 3.1-6.8), my T4 rise from 20.7 to 24.7 9 (normal range 12 - 24) and my TSH has stayed at 0.02 (normal level 0.30-5.00). In May when I was taking 5mg they were nearly normal but them went up again.
My last conversation (yesterday) with the endocrinologist was worrying as he said I should now take 30mg Carbimazole to stop my thyroid functioning and then I will be given Thyroxine. He also mentioned removing the thyroid as the next option (I said I had no time to have operations!). I would like to know if others have had similar experiences and some advise on how to proceed.
I also have TED and the endo said it would help with this, but that my eyes wouldn't go back to normal - i.e not looking swollen - which I was pretty depressed about although he said there were things that could be done to help with this - I don't know what these 'things' are... any ideas? Thanks