Strange rash...: I've had this on and off for... - Thyroid UK

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Strange rash...

Diamond61 profile image
14 Replies

I've had this on and off for years, just reappeared today, I can't link it with anything I've done it eaten.Anyone else have this, I've had full bloods over the years and nothing had been thrown up with my bloods...

It's only on chest and front of my thighs.

Just having a paranoid day!

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Diamond61 profile image
Diamond61
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14 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Obviously I am not a doctor but they look like petechiae. I get these often as I have a connective tissue condition that affects blood vessels. Really usually nothing to worry about but I would get your vitamin levels checked - ferritin, folate, B12 & D3. Getting them OPTIMAL helps many things and also makes your thyroid hormone work properly.

Check with your doctor if concerned.

livi.co.uk/medical-advice/s...

Diamond61 profile image
Diamond61 in reply to Jaydee1507

Thank you, I had wondered if it's this.I'm hoping if it was more of the sinister reasons it would have been picked after 15+ years.

Possibly connected to my constipation!!

Re the bloods, I don't think my GP would not do those so I'm guessing it's have to go private?

Jaydee1507 profile image
Jaydee1507Administrator in reply to Diamond61

If you are hypothyroid and have constipation then likely you are not on the right level or type of thyroid replacement. That plus less than optimal vitamin levels leaves us with multiple hypo symptoms.

GP's will do this tests although not as frequently as we might like. Best to find a helpful, cooperative GP at your practice and explain your remaining symptoms, perhaps especially fatigue.

There are private tests and it would also help to know your FT3 which the NHS refuses to acknowledge. Most popular are Monitor my Health, Medichecks or Blue Horizons. See link with discount codes. thyroiduk.org/help-and-supp...

Diamond61 profile image
Diamond61 in reply to Jaydee1507

I'm self medicating on NDTMy GP will only do the TSH unfortunately!

Jaydee1507 profile image
Jaydee1507Administrator in reply to Diamond61

See link above for private blood tests.

helvella profile image
helvellaAdministratorThyroid UK

Looks like petechiae to me too!

They do occur in hypothyroidism though exactly why isn't entirely clear. Could be mild acquired von Willebrand syndrome. Or due to autoimmune processes. Or something else!

DermNet NZ

DermNet NZ is the world’s free resource and authority on all things skin. We help thousands of people make informed, evidence-based decisions on how to care for skin conditions, by providing reliable information at the click of a button.

The site contains many pictures, covering a variety of seriousness, ages, skin colours, etc.

dermnetnz.org/

Strapline for DermNet NZ
Diamond61 profile image
Diamond61 in reply to helvella

Thank you for this, hopefully down to auto immune reasons...

SlowDragon profile image
SlowDragonAdministrator

Are you on strictly gluten free and/or dairy free diet

Definitely get full thyroid and vitamin testing at least once a year

Diamond61 profile image
Diamond61

I'm afraid not, I love my bread to much!

PurpleNails profile image
PurpleNailsAdministrator

I have this too. Mostly on upper arms. I also have some on scalp and lash line which I find odd. I did ask doctor about about 18 years ago & they run some tests including ESR it was high on 2 occasions. Then I moved areas and it was never picked up.

When I asked again years later I was just told dermatology couldn't do a thing about them. Too small and too many. Pity I didn't have 1 big one.

I find it interesting yours have gone & returned. Mine never fade. I have one area I alway manage to scrape on a particular door frame and the damage has made it bigger and more raised.

My thyroid issue isn't auto immune & never had a autoimmune issue diagnosed.

Diamond61 profile image
Diamond61 in reply to PurpleNails

I had the ESR test it was 8 on the scale of 1-15 so came back normal.

PurpleNails profile image
PurpleNailsAdministrator in reply to Diamond61

I’ve seen it reported on forum that doctors say ESR is an old fashioned test & CRP is more commonly used.  Both are similar in that they test for inflation and are non specific.  They can tell you if inflammation is present - but can’t where or what’s causing it. 

Likely the ESR had nothing to do with petechia it’s just what doctor tested when I went to them with it & it was high so repeated but then forgotten about.  It never been tested recently, CRP has been tested & was in range. 

I was quite sick recently & I noticed quite a few appear under eye but these have faded. 

Diamond61 profile image
Diamond61

Hi, what is ESR please? I don't mind it it's just concerning.It never fully goes it's just brighter sometimes and it's only then I really notice it more.

helvella profile image
helvellaAdministratorThyroid UK

The ESR (erythrocyte sedimentation rate) test is described here:

labtestsonline.org.uk/tests...

Some labs seem more likely to do a C-reactive protein (CRP) test which is diagnostically similar (though not identical).

I think you meant to reply to PurpleNails but, as you actually replied to yourself, she would not have been notified. This mention./call out should alert her.

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