Newbie!! Need help please with Thyroid blood re... - Thyroid UK

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Newbie!! Need help please with Thyroid blood results

Purplezaney profile image
5 Replies

Hi all,Blood test done via GP indicates I am pre-menopausal which is what I expected. Thyroid result is not what I expected at all am quite concerned that these results have been categorised as normal!!! I would appreciate some advice please with these numbers. At present I am not on any thyroid medication. Considering these numbers does any one think levothyroxine is the way forward?

Results

TSH 2.6. 0.27- 4.20

Free T4. 12.7 12 -22

My concern is free T4 is at bottom of range which explains low energy, fatigue, brain fog, feeling cold etc.

I intend to treat thyroid myself if need be because can't be bothered battling the issue out with my GP.

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SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

Far better to get diagnosed and prescribed via GP if next results show there’s a problem

Was this thyroid test done early morning, ideally around 9am?

This gives highest TSH

Next step is to get FULL thyroid including Thyroid antibodies and vitamin testing done in a further 6-8 weeks

Or has GP tested vitamin D, folate, ferritin and B12 now?

If yes please add results

Low vitamin levels can affect thyroid…..and low thyroid frequently results in low vitamin levels

Any autoimmune diseases in your family?

About 90% of primary hypothyroidism is autoimmune

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus BOTH antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Just Thyroid includes BOTH TPO and TG antibodies -£49

randoxhealth.com/at-home/Th...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3

£32 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Purplezaney profile image
Purplezaney in reply to SlowDragon

Thank you for your reply . I didn't have much choice about timings for blood test. I have ordered a private one and see what results I get. All my vitamin levels are fine. There is no autoimmune disease in family.

SlowDragon profile image
SlowDragonAdministrator in reply to Purplezaney

When you say your vitamin results are fine ….can you add actual results and ranges

Exactly what vitamin supplements are you currently taking

Important to stop any supplements that contain biotin a week before ALL blood tests as biotin can falsely affect test results

SeasideSusie profile image
SeasideSusieRemembering

Welcome.to.the.forum.Purplezaney.Forgive.the.full.stops.and.no.spaces,the.forum.seems.to.have.a.glitch.

Did.you.do.your.test.as.we.advise,i.e.no.later.than.9am,water.only.before.the.test,no.biotin.or.any.supplement.containing.biotin.for.3-7.days.before.the.test?

You.will.need.two.abnormal.thyroid.results.before.GP.will.do.anything.so.the.following.information.can.be.used.if.that.is.the.case.

If.you.have.more.results.like.this.you.may.possibly.be.looking.at.Central.Hypothyroidism.which.is.where the problem lies with the hypothalamus or the pituitary rather than a problem with the thyroid gland. With Central Hypothyroidism the TSH can be low, normal or slightly raised, and the FT4 will be low.

TSH is a pituitary hormone, the pituitary checks to see if there is enough thyroid hormone, if not it sends a message to the thyroid to produce some. That message is TSH (Thyroid Stimulating Hormone). If there is enough hormone then there's no need for the pituitary to send the message to the thyroid so TSH remains low.

In Primary Hypothyroidism, which is where the thyroid fails, the TSH will be high.

However, with Central Hypothyroidism the signal isn't getting through for whatever reason so the message isn't getting through to the thyroid to produce hormone, hence low FT4. It could be due to a problem with the pituitary (Secondary Hypothyroidism) or the hypothalamus (Tertiary Hypothyroidism).

As Central Hypothyroidism isn't as common as Primary Hypothyroidism it's likely that your GP hasn't come across it before.

Your GP can look at BMJ Best Practice for information - here is something you can read without needing to be subscribed:

bestpractice.bmj.com/topics...

and another article which explains it:

ncbi.nlm.nih.gov/pmc/articl...

and another here:

endocrinologyadvisor.com/ho...

and another one:

academic.oup.com/jcem/artic...

A long read which you might find useful:

thyroidpatients.ca/2020/01/...

You could do some more research, print out anything that may help and show your GP.

You may need to be referred to an endocrinologist. If so then please make absolutely sure that it is a thyroid specialist that you see. Most endos are diabetes specialists and know little about the thyroid gland (they like to think they do and very often end up making us much more unwell that we were before seeing them). You can email ThyroidUK at

tukadmin@thyroiduk.org

for the list of thyroid friendly endos. Then ask on the forum for feedback on any that you can get to. Then if your GP refers you, make sure it is to one recommended here. It's no guarantee that they will understand Central Hypothyroidism but it's better than seeing a diabetes specialist. You could also ask on the forum if anyone has been successful in getting a diagnosis of Central Hypothyroidism, possibly in your area which you'll have to mention of course.

Purplezaney profile image
Purplezaney in reply to SeasideSusie

Thank you for replying This is a lot to take in. I didn't have much choice about the timings of blood test and I wasn't aware of getting it done at that time. Also about not taking certain supplements. I have ordered a private blood test and I will what for the outcome.

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