New blood after 13 wks on T3 Roma 🤔

[birkie]

Hi everyone 💓

Finally got my blood results after 13 wks on roma lactose free 20mg... firstly I started on 10mg for a fortnight then trialated up by 5mg until I reached 20mg so probably been on full 20mg for around 9wks.

My bloods are:

T3....( 3.7)..range..(3.10...6.80)

T4....( 2.9)..range..(11.00 22.00) ok as I'm on T3 only

TSH.(6.25)..range..(0.30..4.50) says beside this result " ok for this patient 😮.

Rentals:

eGFR...(56) range...(90.00..120.00)

Creatinine (95) range..(49.00..90.00)

Obviously I need an increase 🤷 but here's the kicker...I'm on 20mg full no 10s or 5s available from my pharmacy, so I can't increase by another 20mg that would be 40mg...I saw my GP on the 27th January, he said he was going to sort out the 10s and 5s for me through online pharmacy ( I honestly have no idea how that works 🤔) so far I've had no info on these new amounts, this GP as now retired 👏 so pleased!! 😀..looks like it's another round of phone calls to find out what's going on as I've only got one strip left of the 20mgs.💓💓

[SlowDragon Administrator]

put in for new prescription for 20mcg urgently so you don’t run out completely

Meanwhile

Get prescription for 5mcg as well

Then try these online pharmacies

thyroiduk.org/if-you-are-hy...

[birkie in reply to SlowDragon]

Thanks slowDragon 💓 yeah looks like I'll need to do that tomorrow 👍 but do u agree I need to increase??GP was supposed to have sorted the 5s and 10s🤷 Roma for me!! He told me they would be posted to me...as I said I have no idea how that works 🤷

Do u think my reanal results are because of me being hypo?? I drink loads of water🤔🤔

[SlowDragon Administrator in reply to birkie]

Yes you’re under medicated…..hardly surprising at only 20mcg

You need to find out URGENTLY what GP did re new prescription

[Poniesrfun]

You should follow up on the low dGFR and high creatinine levels. This site has some basic information you mat find helpful: kidney.org/content/kidney-f...

Patti in AZ

[birkie in reply to Poniesrfun]

Hi poniesrfun💓

Last year my GP diagnosed me with CKD but didn't give a level, my creatinine always hovers between 95/99 my eGFR is always between 53/56..my sodium is 143 (range [ 133.00..146.00] I've be been diagnosed twice with primary hyperparathyroidism [2004]..[2020] on both these diagnosis with raised PTH and calcium I've been left to deal with this😔.

I'm now looking into diabetes insipids as the symptoms can overlap..just so sick of not getting any sleep due to the toilet trips and utter thirst 😠 bone pain, insomnia, calcification in most joints and heart, calcified tendonitis in shoulder,gut issues, headaches sweating, tremors it's never ending 😔 I have no thyroid, thyroidectomy in 2019] My GP is not at all bother about my condition 😠 so I went to see a private parathyroid surgeon in November, he identified a nodule in my neck although we don't know what it is yet!! Waiting on a scan at Liverpool unfortunately this is through the NHS so goodness knows when I will get it😔😔

[Poniesrfun in reply to birkie]

Everything you want to know and more about parathyroid parathyroid.com/

This is when an integrative or functional doctor can be helpful in putting all the threads together. I can recommend some in Tucson but have no idea how you'd go about finding one in the UK. For a GP to "My GP is not at all bother about my condition 😠" borders on malpractice (IMO). In the US I would be doctor shopping but I realize that is difficult with NHS.

Patti in AZ

[birkie in reply to Poniesrfun]

I'm on a parathyroid site hyperparathyroiduk Action4changeThey have helped me immensely that's where I found the parathyroid surgeon I also watch Mr babak Larian 👍

I'm actually doctor shopping ATM because my surgery as closed and we've been bunched in with another surgery who are already overwhelmed with patients.

And believe me my GP should be done for malpractice as it took him over a year to diagnose me with graves disease, I went into a part coma in thyroid storm I'm afraid his useless, apparently he is retiring soon can't come fast enough for me..👍👏👏👏