Thyroid finally given up the ghost?

[pennyrose]

I’ve had hashi’s for nearly 11 years, medicated for nearly 10. I never did well on thyroxine so did a T3/T4 combo before moving onto T3 only. Last year I had raised cortisol and issues with weight. It wasn’t cushings thankfully but my GP eventually decided to switch me back to thyroxine. He thought I was on too much T3 and was concerned about long term impact on my heart. I argued: my resting bpm sit between 60-63 and around that time it was dropping (sat at 55 for a long time after). So back on thyroxine for a year. It didn’t work. Had tests every 6 weeks and had to keep increasing dose. In July they put me on 225 per day. In august I started with excruciating joint pain. Nice GP thought it was rheumatoid so sent me for tests and contacted rheumatology. TSH came back higher than July (10.45) so Rheum told them to sort that first. Nice GP also contacted endo who responded quite haughtily saying they don’t know why they put me on thyroxine as it never sat well with me and could be doing more harm than good. They switched me back to T3 only, 60per day, and the pain dissipated after 3 weeks. I am doing much better but I’m still knackered. Still chunky. Still no motivation. So had my blood test 2 weeks ago (TSH only, god knows why) and was 12.68. They’ve increased me to 60/80 alternate days. I’ve been taking Vit D since August and I have pernicious anaemia so have shots for that. My iron is ina good place. They’ve referred me for an US but it’s an 8 month wait (I complained about pressure and hoarseness back in July). Is there anything else I can do to help myself or just ride out this low point?

[SlowDragon Administrator]

On T3 …..You can’t take different doses on different days

You need EXACTLY same dose every day

Are you splitting your dose as 3 x 20mcg spread through the day

Vitamin D level needs retesting

When was folate tested

Are you taking daily vitamin B complex

[pennyrose in reply to SlowDragon]

yes, I split it but in 2 doses. 3 never quite worked for me.

Folate and iron was tested back in February and then retested in May as it was low in Feb (miscarriage, blood loss was the cause). Iron and folate much better in May.

B12. I get injections every 2 months

[islandlass in reply to pennyrose]

I am on combo of T4/T3, also have PA. Until I got ALL my vits and minerals to the level the folk on this site advised I got very little improvement in my symptoms. My GP only prescribed T4 which was as good as an ice cube in the desert to a thirsty man. So I added in T3 slowly till I got the right balance for me, adjusting slightly and slowly if needed, my body telling me what was what. I keep to the same dose daily, no ups and downs.

Once vits etc were at optimum levels, I slowly began to get my life back but they had to be kept at these levels. Next I tackled the PA, I SI and need 2 shots per week, 3 if I need them. Remember this is my regime and I had to persevere, coming back here for advice here as I went along. At times I thought I would nver see daylight but I came through and am quite active for my age.

I am 81 and was in a very bad way when I 1st came on this site, I could not comprehend even the instructions they gave me but they were understanding and kept me going. If you are taking vit D then it might be wise to add K2 - check why for yourself. Oh, as side note I get hoarseness from time to time but it just clears up, no idea why.

Not sure this will help, I am no expert just sharing some of my journey and perhaps it will encourage you to keep trying.

God bless.