Parathyroid Disease

[Morganalefaye]

I have recently been diagnosed with possible CPPD, (+/- parathyroid disease).

Any information gratefully received.

[SlowDragon Administrator]

my.clevelandclinic.org/heal...

People who have an increased risk for CPPD include those with:

A thyroid condition.· 

Kidney failure. ·

Parathyroid disease. ·

Low magnesium. ·

Disorders that affect calcium, phosphate or iron metabolism (such as hemochromatosis).

Please add most recent thyroid, iron, ferritin, magnesium and parathyroid results

[Morganalefaye in reply to SlowDragon]

Many thanks for your reply. I’ve been referred for tests for baseline metabolic function which I presume will answer your query re: thyroid, iron, ferratin, etc? . I already have osteo- and psoriatic-arthritis, Crohn’s and osteoporosis. I was interested to speak to anyone else who has the condition.

[Hedgeree in reply to Morganalefaye]

Once you get all your baseline tests which wil hopefully include all the necessary thyroid tests, iron panel, including ferritin etc you can post them on the forum for others to make suggestions that will hopefully help you.

[Hedgeree]

Hi Morganalefaye,

Thanks for posting. Sorry I can't offer any guidance as I'd not heard of CPPD before.

I followed SlowDragon's link and also did a quick Google, it's described as a form of arthritis (pseudo gout) which sounds like it can be very painful.

What treatment have you been offered?

Best wishes.

[Morganalefaye in reply to Hedgeree]

I have already been able to read what is available online about the condition, but as it seems to be somewhat unusual there’s not a lot of info. Thanks for answering.

[RedApple Administrator in reply to Morganalefaye]

Have you been here parathyroiduk.org/

[Morganalefaye in reply to RedApple]

Thank you. Will look. The CPPD itself is, (or can be?), apparently, a result of a thyroid condition, so it’s the thyroid issue rather than the CPPD which is of interest, since I don’t believe a thyroid problem has ever been mentioned, despite many issues, such as palpitations, eye-problems, osteoporosis, diarrhoea, difficulty sleeping, etc, which I understand can be related to a thyroid issue?

[RedApple Administrator in reply to Morganalefaye]

CPPD commonly known as “pseudogout,” can be related to thyroid disorder. This links to previous posts here about pseudogout healthunlocked.com/thyroidu...

[RedApple Administrator in reply to Morganalefaye]

'Causes

In most cases, the cause of the crystal formation is unknown, although deposits increase as people get older. Because CPPD tends to run in families, genes may play a role. Other possible factors in its development include excess stores of iron; low blood magnesium levels; an overactive parathyroid; a severely underactive thyroid; or excess calcium in the blood. '

arthritis.org/diseases/calc...

[SlowDragon Administrator in reply to Morganalefaye]

Helpful if you add country you live in, wether male or female and age on your profile

Test thyroid levels early morning for highest TSH

You need thyroid antibodies tested too for autoimmune thyroid disease

And vitamin D, folate, ferritin and B12

If in U.K.

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

[RedApple Administrator in reply to Morganalefaye]

And this US site is very comprehensive parathyroid.com/