Parathyroid

In July, my blood tests showed that my TSH was 0.04 and T4 was 15.8. I was on 75mcg Levo at the time. My doctor went into a panic and said I was overmedicated and had to reduce to 50mcg. I did as she asked but since mid/end August and throughout September my hair has started to come out in handfuls again, I am tired all the time and my mood has been very low. I made an appointment to see the doctor but, in the meantime, I decided to raise my dose back to 75mcg (naughty I know!). I saw the doctor today and, as expected, she said I was overmedicated. Armed with information fro people on this forum, I stuck to my guns and told her that I felt better on 75mcg and that I didn't think there was a problem with my TSH being low or suppressed as long as my T3 was in range. She told me that they don't normally test T3. To be fair to her, she did say it was my body and I could do what I thought best but she said she did not recommend me increasing the dose again, adding that the endo I saw didn't even think I needed treatment at all. We left it that I would increase to 75mcg again and have a blood test, including T3, in 6 weeks. She also told me that she had done other tests in June, including B12 (452), Folate (5.9) and parathyroid (3.1). I don't have any ranges I'm afraid. I had folate tested about a year ago and it was 8.8 and B12 was 466. Any thoughts?

13 Replies

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  • It is a pity that doctors believe we'll get heart problems if our TSH is low but obviously that's what they're told, but thyroid cancer patients HAVE to have a suppressed TSH and they don't appear to get problems with heart.

  • You really need the ranges on all tests - otherwise no-one can really comment

    Ring or Pop into the surgery and ask receptionist for printed copies. You might need to go back in day or two to collect them ....but make sure you get the actual figures from tests (including ranges - figures in brackets).

    You are ENTITLED to copies of your own results. Some surgeries make nominal charge for printing out.

    Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.

    When you get results with ranges suggest you make a new post on here and members can offer advice on any vitamin supplements needed

    Also have you had thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's the most common cause in UK of being hypo.

    (NHS rarely checks TPO and almost never checks TG. NHS believes it is impossible to have negative TPO and raised TG. It's rare, but not impossible, there are a few members on here that have this.)

    You also need vitamin D levels checking

    If you can not get GP to do these tests, then like many of us, you can get them done privately

    thyroiduk.org.uk/tuk/testin...

    Blue Horizon - Thyroid plus eleven tests all these.

    This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

    Usual advice on ALL thyroid tests, (home one or on NHS) is to do early in morning, ideally before 9am. No food or drink beforehand (other than water) If you are taking Levo, then don't take it in 24 hours before (take straight after). This way your tests are always consistent, and it will show highest TSH, and as this is mainly all the medics decide dose on, best idea is to keep result as high as possible

    If you have Hashimoto's then you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too.

    You do not need to have ANY obvious gut issues, to still have poor absorption or gluten intolerance

    Best advice is to read as much as you can. Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this.

    You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D, leaky gut and gluten connection to autoimmune Hashimoto's too.

    hypothyroidmom.com/92-of-ha...

    vitamindcouncil.org/tag/aut...

    drgominak.com/vitamin-d-hor...

    chriskresser.com/the-gluten...

    verywell.com/should-i-take-...

  • Thanks SlowDragon. I did a Blue Horizons test about 18 months ago as my surgery refused to test antibodies or offer treatment. My antibodies were high and, as a result, I was offered treatment. I have Coeliac Disease so I am already Gluten Free. I am having a flu jab on Friday so I will ask then if I can have a printout. Unfortunately, my surgery don't yet offer online access to medical records.

  • I am also just diagnosed silent coeliac or severe gluten intolerant - they still can't decide even after an endoscopy! (Hashimoto's diagnosed 23 years ago - finally improving now GF and addressing low nutrients)

    Common if coeliac to be low in vitamin D, magnesium and B12 due to poor absorption

    These should be checked regularly

    Selenium supplement can help reduce antibodies and may also improve conversion of FT4 to FT3

    My gastroenterologist was keen I stick on magnesium & selenium (much to my surprise, thought they might be viewed a bit too "alternative")

  • I have been diagnosed Coeliac for 4 years although I know I have had it for at least 13 years! It took so long for the diagnosis )with so many mis-diagnoses along the way) that I am determined to handle my thyroid issue differently and arm myself with as much information as possible. I am currently taking calcium and vitamin D supplements, B12 spray and gentle iron with vitamin C. I am just trying to feel as well as possible, with little help from the medical profession

  • Are you sure you need the calcium?

    Apparently vit D supplements increase calcium anyway - which is why we also need Vitamin K2 - to direct that extra calcium where it should go ....in the bones

    Also generally on here recommended we take vitamin B complex alongside B12

  • I'm not really sure about anything lol. I have diagnosed osteoporosis so I have been prescribed Adcal-D3. I take 2 a day

  • parathyroid.com/high-calciu...

    Might want to get GP to check vit D, calcium and parathyroid all at same time

    A good app

    calciumpro.com

  • Surgeries were supposed to make your test results and other records available online by last April. Mine were late and as the last time I asked for a printout (never had a problem before) the receptionist (new one and wrong as it happened) insisted I needed to fill out a form and when I pointed out the form was for medical records she insisted I still had to fill it out and pay, I decided to report the surgery for not having put it on line yet. Within a few weeks the surgery had put it on line, after these people had a word with them. email: england.patient-online@nhs.net and tell them your surgery's name and address to let them know you cannot get your test results online yet.

  • You have titled your post Parathyroid but you don't mention if you have Parathyroid problems. Your pth result assuming it is pmol/l is normal.

  • The doctor said she had tested my parathyroid but, to be honest, I don't know anything about it or why it was tested. All I know is she said the result was 3.1

  • Your parathyroid glands (4 of them) are not connected to the thyroid, they do different jobs, the parathyroids function is to control calcium. You would usually only have parathyroid tested if calcium level was abnormal, on its own it's pretty well meaningless but your result is looking normal.

  • In endocrine-abstracts.org/ea/... 0.04 happened to be the lowest "bulet-proofly" safe TSH

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