Parathyroid adenoma

[Siennawalsh]

Anyone any experience with this or had tumor removed?

[t3rr]

Yes, just over a year ago, now fully recovered. What would you like to know?

[renawaltdr in reply to t3rr]

I am afraid I have the same condition. Where did you get your surgery? What diagnostic tools were applied? I am thinking of going to Tampa, Florida to Dr. Norman.

[t3rr in reply to renawaltdr]

I had mine at st Anthony's ,cheam. Excellent treatment, surgeon was professor Kim, felt so much better very soon after. He specialises in the condition, and can highly recommend him.

[renawaltdr in reply to t3rr]

Thank you very much for your Information! It really gives me hope . I am in no good condition, since I also have been hypothyroid for so many years.. Please , could you add the city of the hospital so that I could find out on the Internet. I live in Germany. Thanks again, and all the best wishes for you.

[t3rr in reply to renawaltdr]

Sorry for delay in replying, but only just picked up your message. Professor Kim did my operation at St Anthonys Hospital, which is in Cheam, Surrey, but I understand he also operates from St Georges Hospital, London, and the Royal Marsden, London. Good luck, I also had felt awful for a long time, but felt better immediately after the operation.

[Siennawalsh in reply to t3rr]

Hi there did you have low mood with it like the joy been taken out of life?

[renawaltdr in reply to t3rr]

Thank you for your reply! It is so encouraging to hear that you feel so much better now. I start having a lot of pain probably from the osteoporosis and hope it goes forward quick! Next week I have appointments for scan and endo. All the best for you!

[Hidden]

Yes, I had a parathyroid adenoma removed at King's College Hospital (Denmark Hill, South East London, UK) in December 2015 by Professor Klaus-Martin Schulte. Full and trouble-free recovery. PTH and calcium levels returned to normal. A highly recommended team led by an exceptional surgeon.

[Siennawalsh in reply to Hidden]

Hi thanks for reply, that's good to hear, I've got to have scans to confirm, did you have depression, fatigue, anxiety as a symptom, I will be having removed at Gatwick spire if there is a tumour, just worried as know nothing about it but I have underactive thyroid years but been feeling not myself for year and now doctors discovered high calcium levels so could of been parathyroid for a while but undiagnosed and told had depression but haven't responded to any antidepressants so far and been on so many different ones.

[Hidden in reply to Siennawalsh]

Hi Siennawalsh,

Thanks for your response. To be absolutely honest with you, I developed a whole heap of chronic health problems around 2011/12 and it's hard to know what was causing any individual symptom. It came to light that I'd had high PTH and calcium levels for goodness knows how long,; at least since 2012/13. Once diagnosed with primary hyperparathyroidism, it took two hospitals a long time, and repeat tests, to locate the rogue gland despite x-rays, ultrasounds; sestamibi scans, etc. But eventually its location was agreed upon and the procedure undertaken and now all I have to show for it is a small scar on my neck. I can't say that I felt much different afterwards, but at the start of this year found out that I was, and probably had been for some considerable time, chronically diabetic so almost certainly that would have affected my overall health and how I was feeling.

My advice, for what it's worth, is to spend time researching the condition; the tests you'll be having and when you meet the surgical team, ask tons of questions. I don't want to go into great detail here, but if you wanted more information, I'll be more than happy to share my experiences via a personal mail.

Good luck, and all the very best,

Peter A

[Siennawalsh in reply to Hidden]

Thanks very much for your reply glad yours worked out well, these things take time, and a worry as I'm never ill!

Avril

[Hidden in reply to Siennawalsh]

Thanks, Avril.

All the very best with yours, too. I'm sure it'll be absolutely fine.

Kindest regards,

Peter A

[renawaltdr in reply to Hidden]

Hi Peter, I just read your answer to Siennawalsh and I would of be most interested in more details as well. I am not myself for many many years, unable to work and recently found out I was undersunstituted-hypothyroid and now also the high calcium and high PTH- I had to find out by myself, the doctors found everything to be fine.. So I am run down with my nerves and want to find out as much as possible about the condition. I switched by myself to T3, today is the first day without T4. I have some more energy and a lot less pain, but obviously still a lot to do. Thank you for your help.

[Hidden in reply to renawaltdr]

Hi Renawaltdr,

Thanks for your comment.

What information are you after?

Peter

[renawaltdr in reply to Hidden]

Thank you. I think now I will want for the Scans and the Endo appointment and then Share the results.

[Hidden in reply to renawaltdr]

Sounds like an excellent plan!! Once located, the adenoma ought to be easily removable and effect a complete cure. Of course, you will still need treatment for your thyroid problem. Good luck and do keep us informed how things progress.

Kindest regards and all good wishes,

Peter A

[renawaltdr in reply to Hidden]

Thank you so much for your information. This gives me hope. I will find out about the hospital on the internet. I think it must really be a highly socialized surgeon. I live in Gemany . All the best for you!

[Clutter]

Siennawalsh,

You might find this forum helpful hyperparathyroid.org.uk/