I had a total thyroidectomy 27 years ago. I have been suffering with really high adrenal normetanephrines and adrenal surges. I had a thyroid blood test done at medichecks and confused.
Tsh. 19.6. Range. 0.27 - 4.2
T4. 14.9. 12 -22
my heart keeps spiking and dropping and I’m so tired but very anxious
how can I reduce tsh and what makes it go this high please
Can anyone advise
previous post 6 months ago showing absolutely dire vitamin levels
healthunlocked.com/thyroidu...
EXACTLY what vitamin supplements are you currently taking
Have you retested vitamin D, folate and B12
How much levothyroxine are you currently taking
Do you always get same brand levothyroxine at each prescription
You need 25mcg dose increase in levothyroxine and bloods retested again in 6-8 weeks
ALWAYS Test thyroid levels early morning, ideally around 9am and last dose levothyroxine 24 hours before test
Optimal vitamin levels are
Vitamin D at least over 80nmol and over 100nmol maybe better
Folate at least half way through range
Serum B12 at least over 500
Active B12 at least over 70
Are you vegetarian or vegan?
Did you put in complaint re GP refusing to treat you clear B12 and folate deficiency
healthunlocked.com/pasoc/po...
doctor did his own tests and said total b12 was fine at 300 so wouldn’t treat
I don’t take any supplements
Levo 75 adrenal surges lost weight 46kgs due to panic attacks
Always take actavis I never mix brands
Waiting follow up by endocrine
Feel very run down and emotional
So you need to take control of vitamins and self supplement
Thousands of U.K. members are in similar situation
NHS only obligated to prescribe for vitamin deficiencies
So you need to start adding one supplement at a time
Waiting at least 10 days before adding another
Starting with a separate B12 before adding a daily vitamin B complex
Low B12 symptoms
b12deficiency.info/signs-an...
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months.
once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.
B12 drops
healthunlocked.com/thyroidu...
or
B12 sublingual lozenges
amazon.co.uk/Jarrow-Methylc...
cytoplan.co.uk/shop-by-prod...
B12 range in U.K. is too wide
Interesting that in this research B12 below 400 is considered inadequate
healthunlocked.com/thyroidu...
10 days after starting B12 look at improving Low folate
supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)
This can help keep all B vitamins in balance and will help improve B12 levels too
Difference between folate and folic acid
chriskresser.com/folate-vs-...
B vitamins best taken after breakfast
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and continue separate B12
How other member saw how effective improving low B vitamins has been
healthunlocked.com/thyroidu...
I didn’t take supplements as he said I don’t need any and they could make me worse I feel dire. I’ve just ordered the b12 both total and active as he says the nhs don’t deal with the active b12 tests and he can only medicate me on nhs blood tests and 300 was adequate. I’ve just ordered Vit d folate ferritin b12 total and active blood tests from thriva He did gave me vitd3 on prescription but I don’t think they work I’m going to endocrine to rule out adrenal issues
What was vitamin D test result
How much vitamin D has he prescribed
Suggest you try vitamin D mouth spray by Better You
Many people find it is absorbed better
Email/phone Request for 25mcg dose increase in levothyroxine this week
Try to always stay on same brand, but especially as you increase your dose
What was you most recent Vitamin D test result
Aiming for vitamin D at least around 80nmol minimum
NHS Guidelines on dose vitamin D required
ouh.nhs.uk/osteoporosis/use...
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
leedsformulary.nhs.uk/docs/...
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
mm.wirral.nhs.uk/document_u...
But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better
pubmed.ncbi.nlm.nih.gov/218...
vitamindsociety.org/pdf/Vit...
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly via NHS private testing service when supplementing
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
Another member recommended this one recently
Vitamin D with k2
amazon.co.uk/Strength-Subli...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
Vitamin D and thyroid disease
grassrootshealth.net/blog/t...
Vitamin D may prevent Autoimmune disease
newscientist.com/article/23...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Vitamin K2 mk7
The TSH (thyroid stimulating hormone) rises as thyroid hormones become low.
The TSH It’s not a thyroid hormones - it’s a pituitary hormone & signals thyroid to increase / decrease.
A TSH over 10 shows the “thyroid” is overtly struggling - (you have no thyroid) So you need to focus on the Thyroid levels. thyroid levels include FT4 of which yours show low & the more active & powerful thyroid hormone FT3.
Was anything else tested FT3, antibodies, nutrients?
How much replacement do you take?
Increasing your replacement dose will cause the TSH to respond & reduce as it won’t have to signal the thyroid to work so hard. This has to be done gradually. As doses initially top up, but as the levels settles it partly replaces what thyroid will produce.
You need to get a different GP. Either try a different one at the same practice or change practice. You have vitamin deficiencies, inparticular vit B12. Can you take someone along with you to an appointment?
how can I reduce tsh and what makes it go this high please
You may need a dose increase of your Levo. Not enough levo or poor absorption can cause a high TSH. We need to take our Levo on an empty stomach 1 hour away from coffee and food for it to absorb properly.
if you read posts on here regularly you will see many, many members (majority?) need to supplement vitamin D and vitamin B complex continuously to maintain optimal vitamin levels
Retest folate, ferritin and B12 at least annually
Retest vitamin D twice year when supplementing
Test TSH, Ft4 and Ft3 6-8 weeks after any dose change or brand change in levothyroxine
Dose levothyroxine should be increased slowly upwards in 25mcg steps until TSH is always below 2
Most people when adequately treated will have TSH around or under one. Most important results are always Ft3 followed by Ft4. Aiming for Ft3 at least 50-60% through range, frequently Ft4 will need to be a little higher
For GOOD conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must have OPTIMAL vitamin levels
Good morning Ninja1,After reading your post I wondered why your thyroid had been removed and if it was related to Medullary Thyroid Cancer?
I have a rare condition called Multiple Endocrine Neoplasia (MEN2a) which results in Medullary Cancer but can also cause other conditions; pheochromocytoma and parathyroid (non-cancerous) tumours. Pheos are rare tumours that sit on the Adrenal gland and cause dangerous spikes of adrenaline. They can be managed and removed when found. More information can be found on the support group website for this condition Amend.org.uk. Many doctors have not heard of MEN and so do not test for it. Your condition is probably unrelated to this, as it is very rare, but just thought I should mention it, just in case, your adrenal spikes could possibly be related to this in anyway. Lots of good advice in other's replies. Good luck.
At least they are checking for that. Should think they will do scans, blood test and 24 / 48 hours urine collection test. Wishing you good luck. Keep us posted on your progress.
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