Update: I decided to delay starting T3 and the... - Thyroid UK

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Update

Experiment1982739903 profile image

I decided to delay starting T3 and the phlebotomy. I dropped T4 from 188 to 144 mcg. It's been about a week and so far so good. Dry mouth is better. That's very much a relief. Still not normal but getting there. dding extra Vitamin D is helping it also I think. Mood is still about the same. Hopefully it will stay that way until my next test.

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Experiment1982739903 profile image
Experiment1982739903
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RedApple profile image
RedAppleAdministrator

Experiment626 ' I dropped T4 from 188 to 144 mcg. '

Are you sure you've typed that correctly? Those are very strange numbers for levothyroxine medication! 😀

Experiment1982739903 profile image
Experiment1982739903 in reply to RedApple

It's correct. I was taking 2 seperate pills before: the 100 and 88. I just split the 88 in half to do 144 instead of 150. Didnt think it was a big deal.

RedApple profile image
RedAppleAdministrator in reply to Experiment1982739903

Ah I see. Which country are you in? We don't have 88mcg tablets here in the UK 🙂

Experiment1982739903 profile image
Experiment1982739903 in reply to RedApple

USA

RedApple profile image
RedAppleAdministrator in reply to Experiment1982739903

Could you please add your country into your profile so that we know for future reference. As you may now realise (if you didn't before) thyroid medication dosages, test reference ranges etc. do vary according to country.

Experiment1982739903 profile image
Experiment1982739903 in reply to RedApple

Just added . Thanks👍

Jaydee1507 profile image
Jaydee1507Administrator

With Levo you won't really start feeling the effects of a reduced dose for 2 weeks as it's a storage hormone. Your previous blood result showed an FT3 at 67% of the range and such a large reduction may well take it down below 50% meaning more symptoms.

Are you sure that the dry mouth is thyroid related? It's not an issue I have heard of and could be related to something different perhaps? Has your GP ever mentioned Sjogrens?

Experiment1982739903 profile image
Experiment1982739903 in reply to Jaydee1507

Yes we did talk about sjogrens but I never had this issue before starting levothyroxine. It gets better if I reduce the levothyroxine too...My doctor did want me to reduce to 150 mcg of levothyroxine and add 10 mcg T3. I wanted to see how I felt before adding inthe T3. Might be a bad idea.

Jaydee1507 profile image
Jaydee1507Administrator

Perhaps it's a coincidence that the dry mouth started at similar time to starting Levo? Dry mouth is a hallmark symptom of Sjogrens which is another autoimmune condition linked to hypo.

Are any of your other key vitamins a bit low, especially as vit D is helping? Could be you have other low levels contributing too?

If you already have some T3 then it won't be the end of the world if you feel worse in a few weeks. Can just start on that. For full benefits of adding T3 you need all your ducks in a row which means all key vitamins optimal. That would give you the best chance at getting rid of dry mouth if it is your thyroid.

Experiment1982739903 profile image
Experiment1982739903 in reply to Jaydee1507

Could be a coincidence. Vitamins are good. Vitamin D was optimal last check. B12 was okay. Started supplementing methyl b12 and methylfolate and that helped a lot. Ferritin is too high...Yea I figured if I start feeling bad just have to sweat it out until my next test in a month, then I can begin T3. I'm very used to feeling like garbage so I can make it a few weeks. Although Im going through a tough break up with someone who is very special to me. When I feel low I start ruminating on the past and thinking I can fix things and just make things worse. I need to be strong and move on. Cant support anyone in this state. Sorry for the rant lol. Should be telling a therapist

Jaydee1507 profile image
Jaydee1507Administrator in reply to Experiment1982739903

A break up is horribly stressful. I'm so sorry. I know where you're at with feeling garbage, it's not good though. Hang in there.

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