I'm wondering if anyone else has this problem? I have been tested twice in 3 months:
Results 27 Jul 22
TSH 0.09 (lab range 0.27 - 4.20)
FREE T4 - 23 (lab range 11 - 21.20)
T3 - 5 (lab range 3.10 - 6.80)
Dose lowered from 125mcg a day to 112.5mcg. on Aug 2nd by GP
Problem is on 112.5mcg, after 6 weeks, I was sleeping 10 hours a night (used to be 7) and then having to go to bed late afternoon for a couple of hours. I got constipation, not going for up to 3 days, and tingling in toes. Weight was not effected much, but brain was fuzzy and forgetful.
Today a GP told me my dose has to be cut again. My thyroid was ablated by radiation in 2017. I am completely dependent on Levo but they don't seem to listen to my symptoms. I was told if don't want to listen to GP then the appointment will be ended. Also then told if don't take a lowered dose then 'you can live with the risks' but I have risks with a lower dose. It looks to me that my dose would need to be maximum of 100mcg to get TSH within range but my weight is 76.7kg (height 167cm) and whether you use 1.6/kg/day or my BMI range 1.47/kg/day or use my ideal weight (70kg) I still wouldn't get to 100mcg a day.
Also 100mcg would put me around 13-15 T4 and I can't see that being enough.
No appointments at surgery to check pulse or weight, and they aren't interested in hearing my symptoms.
I would be interested if anyone else on complete replacement therapy has had this issue?