saw the endo on 12th sept after a long wait who diagnosed graves disease. I have had no contact since and had to ask today for copy of his letter and the results. He states at the bottom of the letter that thyroid function is improving and not for treatment at present. I am currently on propranol SR 80mg for palpitations. Latest blood results are: TSH 0.02, FT4 15 4, FT3 4 9 got to wait now for review in 8-10 weeks
Are these levels concerning still? So tired all the time and im not feeling much better
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Pinklew
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I’m just checking that you’ve had Graves Disease (hyperthyroidism) confirmed via positive TRab or TSI:
TRab TSH receptor antibodies
TSI Thyroid-Stimulating Immunoglobulin
This is important, as TG / TPO antibodies may be raised in Graves or Hashimotos.
I was originally diagnosed as Graves, but later antibodies showed Hashimotos. I was originally only given propranolol too and just monitored. Have you had key thyroid vitamins checked (ferritin, folate, vitamins B12 and D)? My energy improved with a good B Complex (eg Thorne Basic B) and improved ferritin, but please test prior to any supplementation.
Your TSH is low. but your FT4 & FT3 are they in range?
Is this recent test? Were you diagnosed when results higher?
The TSH (thyroid stimulating hormone) is a pituitary hormone. It signals thyroid to produce so if everything is working as it should a low TSH usually means high FT4 & FT3 (Free thyroxine & free triiodothyronine) these are the actual thyroid hormones.
By most ranges yours do not look high + but we need range to interpret accurately.
Low TSH is not a reliable marker & it does not confirm Graves even if FT4 & FT3 were above above range it still does not confirm Graves.
You need thyroid antibody testing:
TPOab (Thyroid Peroxidase antibodies)
TGab (Thyroglobulin antibodies) TPO & TG “autoimmune marker” - appears with BOTH Hashimoto’s & Graves. Hashis causes transient hyper prior to under active. Graves continuous Hyper. If Graves Suspected
Pink, Those results are more consistent with autoimmune thyroid disease also known as Hashimotos. This is hypothyroidism.
Hadhimotos often starts with a period that mimics hyperthyroidism Graves disease. With true Graves it is more common to see ft4 well into the 40s and higher with ft3 well over 25.
It is not uncommon for doctors to look at the TSH level and assume that because it is so low it must be hyperthoirdism, without considering the thyroid hormone levels of ft4 and ft3 and without doing antibody tests.
To find out if it is Graves disease or Hashimotos you need to have antibodies tested. †his site tells you the basics of antibodies:
i have only ever seen this in the results once. It was 20/5 and it was 1.6 there is nothing to say what the range was though. It was just on the endos notes
I think this needs clarification and suggest you ask for an official copy of your diagnosis of Graves Disease detailing which antibody was found positive against a range of ?????????
perfect 🥰 apart from i mistakenly dated it 12/6 should read 12/9 . Also i took these last readings off the Endocrinologist letter to gp so unsure if the ranges are the same as prev tests. But as its all the same hospital and area i assume it will be
Ranges do change from within labs - it to do with how machines are calibrated so it can’t be assumed the range is same.
In October your TSH was in range. It’s likely why FT4 wasn’t tested.
In May you TSH was very low & FT4 high but still in range but your FT3 is only a tiny bit over range.
The FT4 was slightly over-range in June FT3 wasn’t tested. if TRab was tested and positive it’s why Doctors are diagnosing Graves.
Trab measures all antibodies affecting TSH including blocking ones, there’s also neutral & stimulating ones. The stimulating ones is what causes hyper levels.
I often see a range of TRab as <1. So over 1 is viewed as positive.
I think you should also test TPO & TG antibodies. We would expect them to be elevated as they often are with Graves but if they are very high It might indicate you are affected by autoimmune thyroiditis (Hashimoto’s)
Your latest results show FT4: 15.4 pmol/l (Range 10 - 22) 45.00%
FT3: 4.9 pmol/l (Range 3.5 - 6.5) 46.67%
They are both just below mid range.
Continued monitoring very important & you are checking for FT4 & FT3 falling as much as rising. As you can see your thyroid levels FT4 & FT3 are “normal” but TSH takes longer to respond & is still low. This delayed reaction is normal. Sometimes the TSH takes a long time to recover or stays unreliable long term. So you’ll need to make sure doctors are going by FT4 & FT3 and not solely by TSH. sometimes labs only test FT4 & FT3 if TSH abnormal so this is something you’ll have to follow up.
I was on propranolol for migraines a few years ago, and it made me feel like I was wading through mud. I couldn't focus on reading anything. You could ask to swap to a beta blocker that doesn't go through the blood brain barrier so readily, like bisoprolol, to see if that improves your energy levels.
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