I will try and make this short.
I have been having thyroid symptoms for about the past 10 years but still got no diagnosis... My symptoms are: fatigue (worse the day after exercise), palpitations, lethargy, weak urine, frequent urination, loose stools, IBS, no libido, light periods and lack of cervical fluid, and nervousness. I have seen 4 different endocrinologists (including privately) and have trialled levothyroxine, natural thyroid hormones and also T3 alone, but none of them worked and just made me feel as though I was going hyper. Anyway, it recently came up in my blood results that I had anti-nuclear antibodies (or ANA). I then saw a rheumatologist who did more tests which showed up anti double-strand DNA antibodies! I thought I was finally getting some answers. She thought i might have lupus and trialled me on hydroxychloroquine, but these tablets didn't do anything at all for me so then she took me off them, said i haven't got lupus and discharged me, so now I'm back to square one! Over the last 10 years I have been going up and down to the doctor's and have seen 2 urologists, 2 gynaecologists, 4 endocrinologists and a cardiologist. I am currently waiting to see a lung specialist next. Anyway, I recently found out that my mother has got Graves disease, although all this time I think she thought she was underactive! It seems as though I'm going along the same path, but my thyroid results always seem to be spot on perfect!! These are my latest results:
TSH: 1.27 (0.27- 4.20)
T4 total: 89.4 (64.5- 142.0)
Free T4: 15.66 (12- 22)
Free T3: 4.32 (3.1- 6.8)
Anti thyroidperoxidase: 93 (should be lower than 34).
The endocrinologist wouldn't treat me for hyperthyroidism based on these results, so does this mean I've got to wait until I get a lot worse before I am treated?? I just don't get why I can be so symptomatic when my results appear virtually perfect! I can't even exercise any more without feeling terrible the next day and I haven't been able to have a relationship due to no libido and sexual dysfunction I just wondered what other people's experiences are with Graves (assuming that's what I've got). I'm wondering whether to try a very small dose of carbimazole to see if it does anything? Also, the endocrinologist mentioned TSH receptor antibodies test. Would this confirm Graves disease alongside the thyroidperoxidase antibodies? I forgot to ask her. I someone can help.