What's going on with my leg?: I switched from... - Thyroid UK

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What's going on with my leg?

adin profile image
adin
24 Replies

I switched from synthetic to ndt and my foot is swollen, I can barely step on it. I take anti-inflammatories but it still doesn't deflate.Now I take 2,5 grain +25 mcg levo.

I feel fine in general but my heart rate is high. I'm afraid of complications at my leg and I'm thinking of switching back to levo +t3.

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adin
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24 Replies
SlowDragon profile image
SlowDragonAdministrator

you need to show this to GP or go to hospital

How long have you been on NDT

Suggest you get full thyroid and vitamin testing done 6-8 weeks after changing to NDT

adin profile image
adin in reply to SlowDragon

I think it's been a month since I made the switch

RedApple profile image
RedAppleAdministrator

adin, my guess is that you are taking too much NDT.

2.5grains is quite a high dose, especially if you've only switched a month ago. It's safer to start low and work up gradually.

If it were me, I would skip the NDT completely tomorrow, just take the levo. See how that affects your heart rate and the foot swelling. Then drop down to a lower dose the next day. (I suggest maybe 1grain NDT plus your 25mcg levo).

adin profile image
adin in reply to RedApple

I tried slowly but I was sick every time. I think I will increase the dose of levo and decrease the ndt

Caesard profile image
Caesard

Hello Adin, please see a medic asap! That might be a DVT and needs to be checked out.

Thats one of the predilect spots for deep vein thrombosis. And even its not, it still might be an issue to address imediately.

I would go to the ER, ASAP

adin profile image
adin in reply to Caesard

I am on vacation in a foreign country.. I've had inflammation in my legs before when I switched doses in the past. I think its a gout.

SlowDragon profile image
SlowDragonAdministrator in reply to adin

did you fly …..you need that checked out …especially before getting back on a plane

adin profile image
adin in reply to SlowDragon

No, I'm driving and I have to cross half of Europe on the way back tomorrow and the day after.

HowNowWhatNow profile image
HowNowWhatNow in reply to adin

can you please draw a line around it and go to a local doctor if it increases in size at all.

Only a doctor will know what it is or most importantly can rule in / out the things it might be. When I had cellulitis it didn’t look so different to this but I couldn’t say what it is that you have with any degree of certainty.

HowNowWhatNow profile image
HowNowWhatNow in reply to HowNowWhatNow

If you are going to choose to ignore advice from a few forum members here to go to a doctor now, then at least go to a chemist where you are and show it to them, please.

adin profile image
adin in reply to HowNowWhatNow

I made an doctor appointment for Monday next week.

Caesard profile image
Caesard

i do understand the trouble...and dont want to scary you, but that doesnt look like something I would contemplate too much before visiting the ER.

If you're in Europe and have CNAS insurance that would cover the visit. There is such a thing as an european health insurance card.

In all honesty, that looks systemic but might be not, and hope its not.

Do you have any known rheumatological issues? Or, as many of thyroid sufferers have, APL antibodies?

adin profile image
adin in reply to Caesard

I'm at the hotel. I'm going home tomorrow, I don't have time for hospitals. I could possibly stop in Thessaloniki, but I don't think I'll solve anything. I have metabolism and uric acid problems but no trombosis.

mintgreenish profile image
mintgreenish

HIi adin. How high does your heart rate go? If its high all day its best to lower NDT by 1/4 and monitor .

adin profile image
adin in reply to mintgreenish

My blood pressure and heart rate is quite high, 90-100 and when I walk it jumps to 120- 140. My bp is 140/87.

Batty1 profile image
Batty1 in reply to adin

You should go to the doctor now instead of waiting.

mintgreenish profile image
mintgreenish

If it were me i would lower NDT . Sounds like abit to much T3.

adin profile image
adin in reply to mintgreenish

Thank you, I think the same, but if I lower the dose, I get hypo symptoms & light head. Maybe I should increase the dose of levo and decrease the ndt?

Jaydee1507 profile image
Jaydee1507Administrator in reply to adin

To adjust your dose properly you need to be on the same dose for 6 weeks. Guessing isn't good enough. If your heart rate has increased then you likely are on too much T3 but you won't know until you do bloods.

adin profile image
adin in reply to Jaydee1507

I think the t4:t3 ratio in ndt doesn't suit me. It's actually too much t3, although I don't feel tired that way. I think I will decrease ndt and increase levo and that means less direct t3 and maybe fatigue.

Jaydee1507 profile image
Jaydee1507Administrator in reply to adin

You need to make a slow switch from Levo else you will get adverse symptoms that might make you think you are taking too much T3. I believe 5mcg at a time is the recommendation every 2 weeks.

Now you are reducing the dose you can expect to feel bad for a few weeks until your blood levels level off.

adin profile image
adin in reply to Jaydee1507

Yes, the process is painful. I think my leg swelled from the sudden change levo to ndt. I think I will reduce the dose from 2.5 ndt +25 levo to 2 grains ndt +50 levo.

Jaydee1507 profile image
Jaydee1507Administrator in reply to adin

Whatever you do, pick a dose, stick with it for 6 weeks then get bloods done. You will cause yourself a lot of problems keep jumping around types of thyroid replacement and different doses.

Aurealis profile image
Aurealis

it could be gout… or a dvt… or a localised infection that needs fast treatment - a change in dose could be a change you don’t need at the moment, but you should see a doctor. You need a scan of that leg. You can get dvt from long car journeys, or inactivity eg while resting due to gout. Although dose changes can have a remarkable effect on us, it’s never an alternative to seeking medical advice for potentially life threatening conditions. Isn’t there a hospital emergency centre you can attend? You have cover - GHIC

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