end of trial

[Roulette26]

My last blood test whilst on a liothyronine trial is in.

endo reduced Levothyroxine after results in July without a discussion from 100mcg to 74mcg.

latest figures are,

July

TSH 0.14 (0.27-4.2) 0.08

T4. 14. (11-22). 16

T3 6.5. ( 3.1-6.8). 6.1

Blood taken first thing, lio taken 11 hours prior.

I felt much better on the July results, back to walking slower and getting breathless.

To indicate how well my Endo dept is functioning, after the consultant wrote to GP to reduce levo, two weeks later after I sent an email informing him of the improvements his registrar wrote to GP instructing him to continue with 100mcg levo! Right hand etc!!!!

Any comments about results would be helpful.

[SlowDragon Administrator]

Looking at previous posts

You had RAI ….Presumably for Graves’ disease

Which brand of levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Do you normally split T3 and/or levothyroxine as 2 or 3 smaller doses

So latest doses are

TSH 0.08

T4. (11-22). 16

T3 ( 3.1-6.8). 6.1

Is this correct?

[Roulette26 in reply to SlowDragon]

RAI for toxic nodule. Levo brands,

Mercurypharma 25mcg

Accord 100mcg which I cut in half to make up the 75mcg once a day.

Lio 2x5mcg twice a day, morning and evening.

Unable to check vits and minerals by medicheck because of the postal strike.

Previously,

Ferritin 254. (13-150). Because of my age the GP deemed it normal.

Folate. 4.33. (>3.89)

B12. 73. (37.5-150)

Vit D 86. (50-200)

Have been taking vitB complex and vit D 3000iu plus vit K spray.

Unsure about what to do about folate, don’t know if the high ferritin would be an issue if I took iron tablets

The results you queried were for mid July

This month

TSH. 0.14

T3. 6.5

T4. 6.5

[SlowDragon Administrator in reply to Roulette26]

Ferritin is storage form of iron

Can be high after menopause

Ferritin has nothing to do with low folate

Which Vitamin B complex are you currently taking

Ft4…..not correct result

do you mean

FT4: 14 pmol/l (Range 11 - 22)

Ft4 only 27.27% through range

Suggest you push to increase levothyroxine dose back up a little …..75mcg and 100mcg alternate days

[Roulette26 in reply to SlowDragon]

Taking solgar high potency “50s”. Can you recommend a good iron supplement pls.

Sorry you’re correct about T4, my mistake, it’s 14.

With regards to changing dose to 75/100, that’s exactly what I was thinking. Whether or not the Endo contacts me is debatable as the registrar’s letter implied he was handing me back to the GP.

Thanks slow dragon

[SlowDragon Administrator in reply to Roulette26]

With HIGH ferritin you should NOT be considering taking any iron supplements

A good vitamin B complex

The one we always recommend on here …

Thorne Basic B …..it’s a large capsule

Can tip out and swallow with water….if can’t swallow capsules

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement…..eg Jarrow methyl folate

Wouldn’t recommend taking the Solgar at all

[Roulette26 in reply to SlowDragon]

Thanks for that information. I remembered the advice about stopping vit B. Thanks for clarifying the issue with ferritin and folate. I’m so grateful for the “handholding” you all provide, I would never have coped without you and this amazing organisation.

[pennyannie]

Hey there :

Glad you have been given the option of this trial of T3 - so what's the next step - will you doctor continue to prescribe for you ?

[Roulette26]

I emailed the Endo after the 2 month blood test, told him how much I had improved etc. It was his registrar who then wrote to the GP with instructions to continue prescribing. In the meantime he gave me another 3 months supply. If you’ve read my other emails you’ll see that I’m still waiting for more than half of my tablets cos there’s an issue with the supply chain!