Been on 100mg levofor 9 weeks so retested Usually I get a call about my test results, heard nothing so I have found my latest results have been filed online as satisfactory, hence no call .
Thyroid function test
Result Satisfactory
What you need to do No Further action
On checking actual results TSH has finally started to come down but unfortunately is now at the level where they think they can keep me hanging in a half alive state ...
Results: TFT results on patients taking thyroxine are
technically validated. Suggest contact Consultant clnical Scientist for advice.
Serum TSH level 4.27 mIU/L [0.27 - 4.2]
Above high reference limit
Serum free T4 level 17.0 pmol/L [12.0 - 22.0]
I have read so much in this forum I guess I knew this would happen eventually. but not not at this level. Unfortunately the GP who runs the practice got hold of them, as the locum is not around, and he's not easy to understand or talk to.
I'm going to have to talk to the nurse about an increase and further test but realis her hands may be tied. I've told her previously I still have all of the symptoms. I'm waiting for the monitor my health FT3 results to see how that's going.
Edit- monitormy health added in, taken day before 8am
TSH 4.41 mu/L
igh (norma range 0.27 - 4.2 mU/L)
THYROXINE 15.6 pmol/L
FT4 levels normal (normal range 12 - 22 pmol/L)
TRIODOTHYRONINE 4pmol/L
FT3 levels normal (normal range 3.1 - 6.8 pmol/L)
Written by
mrskiki
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I did my now usual 8am test with 24 hours after last dose. Taking selenium 3x week, B vitamin complex to increase folate (stopped week before test) and vit D3/K2 spray.
Thanks so much for those links, bring at work I'm trying to search for stuff at odd breaks but most is on my phone which I can't have at my office.
My weight has actually gone up again so I calculated to expect at least 125mg before fine tuning, allowing for blubber/water retention or whatever which I think I read can need a bit less on average if you have a lot 😳.
The only concession they will make is if I go away for 2-3 months and then they'll let me retest to see if it goes further outside reference range. Unfortunately that lio paper in addition to stating reasonable optimal range, also has a table referencing to do nothing if TSH below 5 so I think they can stitch you up any way they like- from page 14:
TSH Level Action for GPs
More than 5 mU/L Increase levothyroxine dose by 25microgram
0.4 – 5.0 mU/L No change required
Less than 0.4 mU/L Seek specialist advice, likely resume at lower dose.
I think they've removed or changed the GP update files, don't seem to be able to find them when searching the site.
Page 13 infers (though doesn’t state clearly) …that if patient continues to have hypothyroid symptoms, increase dose levothyroxine until TSH is below 1.5
Guidelines on dose levothyroxine by weight is to increase dose levothyroxine until typically on 1.6mcg levothyroxine per kilo of your weight….and Ft4 is near top, or just over top of range
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Thank you I will book a test for 3 months as at least she has enabled that facility, who knows may be worse again, and also try again for an increase if the locum appears back on the scene. Also looking at change of practise to one with more GPs and not such a dictatorship, there used to be 6 partners now he just takes on locums and the odd salaried GP.
Yes, that half alive state! As you know, you have a lot more room for further dose increases. As a thyroid patient you do need to learn to stand your ground and fight your case with the medics. I would make an appointment to put your case for a dose increase, retest in 6 weeks after that.
Are you working on the vitamins recommended here? How are they looking?
Thank you, yes working in Vitamin D, folate and also added in selenium 3x week. I feel I've learned so much on basic nutrition this year and vitamin forms. I always had an interest so shocked I lost my way on those!
I'm just shattered today after argument with partner who I guess is wondering what happened as I'm not me anymore, and won't talk to me, and also having to be in work with a headache after reading the GPs satisfactory comment. I'll get the info together ready to try and 'reason' with someone, probably not the GP there this week. I have seen him mark other non TFT just over the border results as satisfactory before.
When I was younger I always believed if you ate a good diet you would get the vitamins you need. How wrong I was. I've also discovered via a gene report that I have issues with Vit D and may need more than the recommended dose. Plus I may struggle with selenium. Who knew?! It's all too easy to take you eye off the ball with vits when life is as it is these days. I've recently had my wake up call.
I'm sorry you're struggling with getting through life whilst hypo. It truly sucks and you have my sincere sympathy.
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re post as now found my results
Am I going in the right direction ? 
Newbie needs some test results help.
Advice need re T3 before hospital appointment 
Can you help me understand my results? Doc too busy
