T3 only - Thyroid less.: Hi my thyroid was... - Thyroid UK

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T3 only - Thyroid less.

walke40 profile image
6 Replies

Hi my thyroid was removed approximately 6 years ago thyroid cancer. Radioactive iodine followed straight after in a cell for 3 - 4 days and lucky I appear to be free of cancer.

I have a resistance to T4 so have only ever taken T3 120 ug spread over the day.

My problem is the feeling of total exhaustion most of the time so always take care not to flake of from breathlessness

I have Sarcoidosis in remission from 45 years ago which damaged my lungs to a degree of 40% left after scar tissue damage but Have manage to keep full time work as an electrician without illness.

I managed to keep clear of Covid through the last 2 years but 8 weeks ago fell victim.

It only took 2 weeks for recovery but in that time had serious dark days. My wife also fell victim of it being in the same house I need to say 3 inoculations must have played a big part in both of our recovery.

My real question is since Covid my weakness and breathlessness has sky rocketed and I am finding it heard to move around due to weakness and no breath and am now wondering if there is any advise on what I might be able to do or take to help thing along

I saw my doctor/nurse who has no idea of thyroid and does not want to know but I begged a few tests a while ago but to my dismay the test that was requested was TSH which came back at 0.03 which I thought was good and she thought was very serious, so once again I have begged again and a T3 test will be done not free T3 so I would imagine that will come back as over medicated.

sorry to waffle on but can't sleep, ache with tendon pain and headaches and have gained a lot of weight (17st 9lbs)

If I can get some advise of the kind of test that might shine a light on my problem would be great as I am sure my nurse would ask for the tests to be carried out if she knew what they were. I do take vitamin D as that can be bought over the counter.

Best regards. Walke40.

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humanbean profile image
humanbean

since Covid my weakness and breathlessness has sky rocketed

I'm an ex-heavy-smoker and my lungs haven't been in good condition for many years. When I got Covid last year I ended up with my lungs getting quite a lot worse. A few weeks after I was (theoretically) recovered I was still struggling. I bought myself a nebuliser and saline solution ampoules to use in it and they have helped me enormously. My O2 saturation has improved a lot and is now normal, and I no longer have a cough.

This is what I bought :

amazon.co.uk/OMRON-Total-Ne...

The price has gone up a lot since I bought one, which is a shame.

The saline solution I bought is this one :

amazon.co.uk/Gilbert-Physio...

SlowDragon profile image
SlowDragonAdministrator

Suggest you get full thyroid and vitamin testing done (after heatwave)

Only do private testing early Monday or Tuesday morning ideally before 9am

Day before test, take last third of daily T3 approx 8-12 hours before test

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Come back with new post once you get results

Do you always get same brand T3

Is your T3 prescribed or self sourced?

Brightness14 profile image
Brightness14

My father had very bad asthma and in the 1970's purchased a nebuliser it's the bestthing that happen to him. Before this nearly every year he was admitted to Salisbury Infirmary with his asthma. It could work for you.

walke40 profile image
walke40 in reply toBrightness14

Hi there Brightness 14. , many thanks for your reply. I bought a nebuliser at the end of last year and keeps in the bedroom which is where I suffer most breathing problemsIt did not appear to help me but oddly enough it works wonders for my wife with her breathing which she didn’t think she had any problems before but thank you very much for your suggestion. Take care all good wishes. Martin

humanbean profile image
humanbean

One of the effects of hypothyroidism is for stomach acid production to reduce. As a result nutrients from the food we eat are less well absorbed. Anyone with hypothyroidism is likely to end up deficient in nutrients. You've also got other health problems in addition to the thyroid disease. I think Covid might also reduce nutrient levels too.

So, it would be worth getting one of the tests that SlowDragon mentions from Medichecks or Blue Horizon - not forgetting the discount codes.

If it turns out that you are short of one or more nutrients we can tell you the best form of specific nutrients to buy. For example, if it turns out that you are low in vitamin B12 then the best supplement is methylcobalamin. But most of the cheaper supplements contain cyanocobalamin which your body may not be able to make use of. There are similar comments to be made about several other nutrients that many of us end up with low levels of.

The symptoms of nutrient deficiencies have a lot of overlap with the symptoms of hypothyroidism too.

Several years ago my mother needed a nebuliser and she was able to borrow one from her surgery. I can't remember what was put in the nebuliser. It could have been saline (which is what I use) or it could have been something she was prescribed.

Ozziemum profile image
Ozziemum

Have a look at the Phyto V study they did into breathing problems in people with long Covid. I know it's a bit early and a bit of a leap to say you have that, but a colleague of mine was on that trial and it made a massive difference to his exercise tolerance - from not managing 3,000 steps a day without having to spend at least 2 days recovering to easily managing 40,000 steps daily. It's mainly based around rebalancing your gut flora. If nothing else it has really made a difference to my ridiculously random food intolerances; I've not actually had any problems with any food since I started taking them, but as I haven't got my meds sorted out properly yet I'm not in much of a position to comment on the exercise/breathing part. I decided to do an initial 3 month trial along with an anti-inflammatory diet and will now keep up with those supplements. I hope you're soon back to good health.

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