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Thyroid UK
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More T3 information

Hi

I have been reading your posts about T3 with interest. I have now decided to start my own post on this. I had previously added it as a reply to someone else. I have had so much conflicting information on T3.

My husband was diabetic, and he also had hypothyroidism. Unfortunately he also had cancer. He was already on 20mg a day hydrocortisone and 125 mg levothyroxine. A few months before he died he started to go down hill with more severe hypothyroid symptoms.

Everyone said his hypothyroid symptoms were due to the cancer not his thyroid. I begged them to test his TSH levels and look beyond the cancer. His T3 came back very very low. The endo prescribed him over the phone 20mg liothyronine once a day with an increase of 25mg of levothyroxine

He took them on the Tuesday and Wednesday and died on the Thursday morning. He died from low blood pressure and Hypoglycemia.

I understand now that as a diabetic his meds should have been adjusted. Also I think the dose was to high for his body to take in one go. I am upset that he was not assessed first before prescribing liothyronine and it was just prescribed over the phone with no other details than take 20mg once a day. Surely someone should have monitored or at least advised us on these meds???

Any comments welcome please

Thanks

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Nee22 Please don't take this the wrong way, as I am saying it with the greatest respect and understanding as I too have lost my husband (from a rare cancer) so know how that feels. But I honestly don't know what members can say that hasn't already been said in the 3 previous threads of your own that you've made asking the same thing. In your last thread you had many replies to try and help you understand. But really, none of us can answer your questions.

None of us are doctors, we don't know why things happened like they did, we can't say if it should have been done any differently. Your poor husband had a lot going on. To get an explanation and answers, you should be asking the doctors who treated him.

You've been asking now for 2 months, and you are going to let this eat you up and make yourself ill. You should think about you for a while now. Please take care.

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Nee, I'm so sorry for your loss. It must be dreadful for you.

I've just read your last thread, and the last response you got from jimh11 is just about as good as it gets with so many unknown factors. But, I notice you kept asking why they didn't test the TSH. And the answer is, because it wouldn't have given an useful information. It's more than likely that the TSH was high, because the FT3 was so low. But, you knew the FT3 was low, so it would have been pointless to test the TSH. TSH doesn't do anything much except stimulate the thyroid gland to make more hormone. When the thyroid hormone is low, the TSH rises. But, you knew the thyroid hormone was low, you didn't need the TSH to tell you that.

I don't suppose that answer will bring you any sort of peace or acceptance, but it's the truth. It wouldn't have made any difference.

Take care. x

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(((Nee22)))

You have been following with interest, if I'm not mistaken, a post from a hostile and inflammatory contributor who has now left our community and didn't really add anything useful to the debate besides the arrant folly of taking, without medical advice and ill-informed, very high doses of T3.

I lost a beloved and older partner in the flower of my womanhood and recall the 'someone's going to pay, once I've figured out who's responsible' phase. Whilst not so foolish as to suggest that this is what you're going through - every experience of grief is unique to the person who is suffering - I truly hope that you can come to a juncture where you are glad, not for his death of course, but that he was spared the ordeal of pain and slow deterioration that cancer so cruelly often brings.

We are here for you. We want you to turn a corner and feel able to live again, in the knowledge that's the finest tribute you can give to the memory of your husband. We will do what we can to encourage you to do that. If that isn't what you want, forgive us for trying.

Best to you

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Sending love and hugs

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Thank you all so very much for your kind words and support. I do understand what you are all saying but I just need a few more answers. I owe it to him to find out the truth.

Ed had his primary cancer in 1989. It spread in 2007 to his lung. They were always hot spots. He was never ill with the cancer. He was ill with trial treatments and chemo. We always thought the cancer would progress, he would go in a hospice, take morphine and slowly slip away.

Never did we think he would die within hours. He was talking to me normally minutes before he died but his blood pressure just kept dropping.

Something isn’t right????

Thank you all again for your support and time put in to reply.

Best wishes to all

Nee

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