Have been waiting for surgeries which I’ve been on and off the waiting lists due to unstable thyroid levels. Have two pre ops due in next few weeks. Only had these sorted out with the Drs as had an appt with endo early august. Been taken off treatments for pain until thyroid sorted.
Endo medic just come back from 2 weeks in the USA. Now he’s off again when my appt is ams new appt booked February 2023!.
No other appts my TSH was 38 last year. Now 17. Other than surgery other health issues have been put down to thyroid issues
Help as fed up now
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Thyroid2020
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Just to clarify, your TSH is currently 17 and you’ve been taken off the 150mcg dose of Levo you noted in your last post of 6 months ago?
It’s really helpful to members of you can add the ranges of your blood tests (in brackets) as these do vary between laboratories.
Did they test FT3 and FT4?
If not and you can afford the cost, I would test these privately. In your last post you were also advised to test key vitamins (ferritin, folate, vitamins D and B12). Were you able to do this?
If your TSH is over 2 and you are on Levothyroxine, your GP should increase your dose, as SlowDragon outlined. Do ask for your FT3 and FT4 test results. How did you feel on your previous higher dose of Levothyroxine?
Take bloods before 9am at GPS Am on vitamin D daily.
Gp don’t think they know what their doing as was put on TEVA and that’s done nothing at all other than it remains around 10/11 Tsh
Have been given by pharmacy in the past “tablets unbranded in a plain bottle no instruction or anything by pharmacy) when asked what brand told “they get them bulk in a big tub and count them out for each prescription “!
Do you have autoimmune thyroid disease diagnosed by high thyroid antibodies
If you need significantly higher dose levothyroxine than 1.6mcg per kilo of your weight per day….this suggests poor absorption, poor conversion and/or poor nutrient levels
If Lactose intolerant this can increase dose levothyroxine required
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
TSH should be under 2 as an absolute maximum when on levothyroxine
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Need a rant!!!! Excuse the expletives
Endocrinologist
endocrinologist 
Endocrinologist
