Private blood test for coeliac disease - Thyroid UK

Thyroid UK

139,194 members163,361 posts

Private blood test for coeliac disease

Sewing12 profile image
4 Replies

Hi all

I really not sure if I can ask for recommendations so I apologise in advance if this is not appropriate.

Can anyone point me in the right direction for a private blood test for coeliac disease please. I’d ask my gp but we’re really not on good terms at the moment so I think I will have to get it privately.

Also am I right in thinking that you are more likely to have coeliac disease if you have hashi (which I have)

Thanks

Written by
Sewing12 profile image
Sewing12
To view profiles and participate in discussions please or .
Read more about...
4 Replies
SlowDragon profile image
SlowDragonAdministrator

Only 5% of Hashimoto’s patients are diagnosed as coeliac

But further 80% find strictly gluten free diet helps, often significantly or is essential

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online, just to rule it out first

lloydspharmacy.com/products...?

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

humanbean profile image
humanbean

Sorry, I don't know which companies do testing for coeliac disease - I've never looked for them.

The list of private testing companies suggested to patients by Thyroid UK (who run this forum) can be found here :

thyroiduk.org/help-and-supp...

The testing the NHS would (or should) do for coeliac disease can be found on this link :

labtestsonline.org.uk/tests...

The NHS pages on coeliac disease can be found here :

nhs.uk/conditions/coeliac-d...

The main treatment for the disease is a gluten-free diet. If being coeliac has reduced your absorption of nutrients then you may be short of nutrients and would need supplements to improve your levels of vitamins and minerals.

Being short of nutrients is a common effect of having thyroid disease too. We always suggest that nutrients should be tested before supplementing. The other thing to be aware of is that having a nutrient test result within the reference range is not enough. We need optimal levels to have a hope of feeling well. For example, there is a big difference in how well someone would feel with the following two results :

Test 1 - Ferritin 15 Reference range (13 - 150)

Test 2 - Ferritin 85 Reference range (13 - 150)

The second result would make people feel a lot better than the first result.

If you have a thyroid problem and a suspected gluten problem then this link might be of interest:

thyroidpharmacist.com/artic...

Sewing12 profile image
Sewing12 in reply to humanbean

Thank youMy ferritin was 19 the lab range was 10 to 300. I was told by my gp I was anaemic but not bad enough for him to treat so go by myself some iron tablets

humanbean profile image
humanbean in reply to Sewing12

I gave info on iron supplements that can be bought in the UK in this reply to another member (ignore the stuff on pregnancy) :

healthunlocked.com/thyroidu...

Despite what your doctor said it isn't a good idea to take iron supplements just on the basis of a ferritin result, for reasons given in this thread :

healthunlocked.com/thyroidu...

Ideally you would have an iron panel done first, and then post them and get feedback from the forum :

medichecks.com/iron-tests/i...

You can find discount codes on this link :

thyroiduk.org/help-and-supp...

Good luck.

You may also like...

Coeliac blood test and general update 😬

I have just had a phone call from my GP’s PA who has told me that there is a coeliac screen test...

At home test for coeliac disease?

Can anyone recommend one? I have hashimotos, and symptoms of coeliac, chronic constipation,...

medichecks private blood test

for a private blood test a couple of months ago. I have today received a bill for the private blood...

Private Thyroid Blood Test

I'm looking to find recommendations for private thyroid blood tests please. I have been using...

Private blood test

Does anyone know where you can get a private blood test done in the Birmingham area &...