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Thyroid UK
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Coeliac blood test and general update 😬

Hello,

I have just had a phone call from my GP’s PA who has told me that there is a coeliac screen test authorised on the system following a letter from my nutrionist requesting it. After the phone call I had 10 days ago from her basically going apopleptic that the endocrinologist had increased my T3 further, I’m surprised she would even consider something that will cost more money!

Had my T3 increased 2 weeks ago and my energy levels have peeled right up again ! I’m so pleased. I’ve weaned off the Sertaline and the contraceptive pill. I’ve had my first period and it was no where near as heavy as they were before.

unfortunately my weight isn’t shifting as yet, I was hopeful that this would happen. I think the increase in my appetite and subsequent crash in my willpower hasn’t helped either!

So my question is does anyone know exactly what the NHS coeliac looks at? And how long the results take to come through.

Also can anyone come and sew my mouth shut 🤣🐽

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Hi there im celiac its nothing to worry over, you will have a blood test done and they look for raised antibodies ttg if they are raised then you have celiac-they will also ask for you to have a endoscopy done so they can take a look and do a little biopsy to see if any damage has been done to the villai-in a normal villai the hair-like stems are all nice and bouncy but usually anyone with celiac they are flat- you will see a consultant who will carry out a bone density test as having celiac can affect your bones. Nothing to worry about but carry on eating gluten for blood test and endoscopy. Sorry i cant assist with thyroid related question has im on carbimazole. Good luck.🌟🌟

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Thanks for the info. I don’t think I’m coeliac as don’t seem to have the usual symptoms but I think it’s a case of dotting the i’s. I didn’t have raised thyroid antibodies .

My mum is an unofficial coeliac as she can’t tolerate even the slightest bit of gluten for the test, let alone 6 weeks. I think she would end up in hospital if she tried.

Interestingly my daughter had the screen (came back negative) as she has various non ige allergies but I’m pretty sure she has a sensitive to gluten or wheat.

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Ha yes, its best to check for it so you can rule it out, if i get glutenised now i end up with my head over the porcelian for the next 24hours with cramps-just like a bug😨 you do not have to have the usual symptons but it can still be doing the damage inside but lets hope it comes back negative.x

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More than likely, your nutritionist just wants to check you don't have it before asking you to cut out gluten for a bit, however it is possible to have silent coeliac disease - I know someone whose only symptom was a bad back, and they discovered she was coeliac because they were trying to figure out why she had anemia.

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Oh i have my needle and thread ready!!!😆😆

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I wish I could like this more than once 😉

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Thankyou!! Nothing to stress over🍀🍀

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Easily said 🙈🐽

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Hi Slappiduck. As your post indicates your symptoms are improving I wonder why it's necessary to take on the expense of the celiac screen? If you are already following a gluten-free diet and feel better why put yourself through any more tests? JMO, but if I'm feeling better and a test will not add any knowledge helpful for more improvements I would save the money and stick with my current plan. Just a thought. And you would not want help from me re sewing up your mouth; I've had 'foot (make that feet) in mouth disease for YEARS!!!LOL (By the way not a bad thing to have when fighting for good health care for ourselves!)😊 irina

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Thanks for the reply. I’m not following a gluten free diet as yet. It was recommended to me a while back due to the leaky gut theory, but I had a lot on my plate ( lol) and could not bring myself to contemplate it frankly. I was very surprised when I was told the coeliac screen request was ready for me, as my dietician asked my GP a while back so I had written that one off.

Between paying for the endo, nutritionist and other private bloods it was not high on my list to do .

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Listen to your gut. Gluten-free is hard and, for me, has taken the 2 steps forward. one step back route but over time my 'backward steps' have gotten farther and farther apart. When I began to feel better and then ate gluten my sx were so much worse and for the time it took me to feel better again I would say to myself-why am I making myself feel so rotten over eating (fill in the blank) candy, bread, pasta, whatever? Feeling this sick is a great motivator. And BTW, don't get sucked in to all the 'gluten-free' processed products out there. Many are just as hard on our gut as gluten. I recently read a post here by Marz (if memory wrong, please correct) that gave very good advice on what to eat. "If you can't grow it-don't eat it." Read the ingredient list on some of the commercial gluten-free products.! An eye-opener. And simple. Take care. irina

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Thank you irina. I don’t plan on using gf replacements as you say they are full of rubbish!

I’ve just spoken to the endo query over dosing and he said weight gain is not a usual side effect of T3. Makes me wonder... as my experience so far makes me feel less than usual!

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My coeliac screen was negative. IgA was 1.8 ( 0.8-2.8)

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