New results in... any advice welcome: It's been a... - Thyroid UK

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New results in... any advice welcome

KBA22 profile image
9 Replies

It's been a while since I've posted - 10 months or so... I've been very lazy about meds for months and finally recommitted myself to the process when my hair REALLY started to get thin and I got even heavier.

Below are my Oct and December Thriva results. I haven't spoken to a doctor in months about my Hashimotos. Do you think I should up my dosage at all?

Points to note:

- I took the October test when I was barely taking the Thyroid meds. I wanted a starting point again.

- All tests done early morning on an empty stomach.

- December results are after taking the meds religiously each evening since early October 2021 i.e. 75 mcg of Levothryoxine (25 mcg of Mercury Pharma + 50 mcg Accord).

- All supplements taken most morning with some orange juice beginning October 2021

- I take Vitamin D3 (1,000 IU)

- I take Aloe Vera (12,000mg)

- I take Iron (15mg)

- I take 1tsp Inulin (this is a prebiotic)

- I'm almost gluten free

- I'm almost diary free

Any feedback welcome. Thank you so much for your help. I really appreciate it.

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KBA22
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9 Replies
greygoose profile image
greygoose

Well, your TSH is still too high, because your Frees are still too low. But, I'm sure you know that. You need an increase in dose.

Your antibodies are very high, but you already knew you had Hashi's, so the actual level of the antibodies is irrelevant.

Your ferritin is much too low. I would think you should have a complete iron panel done.

When you take iron, it has to be two hours away from everything, except vit C.

Are you taking magnesium and vit K2-MK7 with your vit D?

There's no point in being gluten-free unless it's 100%

KBA22 profile image
KBA22 in reply to greygoose

What are 'frees'? What should they be?

I'll get a complete iron panel done. I'll also make sure to take iron in isolation from the others minus Vitamin C.

Not taking magnesium, Vit K2-MK7? How much should I take?

I'm on my way to becoming fully gluten and diary free. It's hard for me!

helvella profile image
helvellaAdministratorThyroid UK in reply to KBA22

What are 'frees'? What should they be?

Colloquial way of referring to Free T4 and Free T3 and tests for them.

The precise point is individual. Some people feel better with them a little higher, or lower, than others.

You just might find the article below (and the full paper which you can access) interesting and/or useful.

The normal range: it is not normal and it is not a range

1. Martin Brunel Whyte

2. Philip Kelly

Abstract

The NHS ‘Choose Wisely’ campaign places greater emphasis on the clinician-patient dialogue. Patients are often in receipt of their laboratory data and want to know whether they are normal. But what is meant by normal? Comparator data, to a measured value, are colloquially known as the ‘normal range’. It is often assumed that a result outside this limit signals disease and a result within health. However, this range is correctly termed the ‘reference interval’. The clinical risk from a measured value is continuous, not binary. The reference interval provides a point of reference against which to interpret an individual’s results—rather than defining normality itself. This article discusses the theory of normality—and describes that it is relative and situational. The concept of normality being not an absolute state influenced the development of the reference interval. We conclude with suggestions to optimise the use and interpretation of the reference interval, thereby facilitating greater patient understanding.

dx.doi.org/10.1136/postgrad...

pmj.bmj.com/content/94/1117...

KBA22 profile image
KBA22 in reply to helvella

Thank you

greygoose profile image
greygoose in reply to KBA22

About 350 to 400 mg magnesium. Vit K2 depends on how much vit D you're taking.

SlowDragon profile image
SlowDragonAdministrator

Having been very hypothyroid in October it’s going to take a while to recover

75mcg levothyroxine is only one step up from starter dose

December test - was this done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test ?

December results…..Ft4 is at top of range…..suggests you might have taken levothyroxine before test ?

High TSH suggests you need next 25mcg dose increase in levothyroxine up to 100mcg

Bloods should be retested 6-8 weeks later

Ferritin is extremely low

Likely due to having been so hypothyroid

Ferritin tales a very long time to recover

See GP for full iron panel test for anaemia

Are you vegetarian or vegan

cks.nice.org.uk/topics/anae...

In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Never supplement iron without doing full iron panel test for anaemia first

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

JAmanda profile image
JAmanda

If you didn’t take your Levo just before the test (but took test 24 hours after last Levo as advised) you’ll need to add in some T3 liothyronine because your t4 is already at the top of range so I don’t see how you can take a Levo increase without feeling jittery.

Why do you take the Levo with juice, do you suggest it helps absorption?

helvella profile image
helvellaAdministratorThyroid UK in reply to JAmanda

I'd be very wary of orange juice alongside levothyroxine. (Though there have been claims that lemon juice aids absorption.)

2.9. Levothyroxine-Fruit Interaction

2.9.1. Fruit Juices

Different categories of transporters contribute to carrying l-T4 from the small intestine to the bloodstream, i.e. the organic anion-transporting polypeptide (OATP) family (such as OATP1A2, OATP1B1, OATP1C1, etc.), the monocarboxylate transporter (MCT) family or NTCP (sodium-taurocholate co-transporting polypeptide) transporters. Active ingredients of juices—especially grapefruit, orange, and apple juice—may block the transporters.

ncbi.nlm.nih.gov/labs/pmc/a...

KBA22 profile image
KBA22 in reply to helvella

HiI only take my supplements with juice. The levo is taken with water.

I'll take a look at what you've shared here in more detail.

Thanks

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