Hashimoto patient : I have hashi now my tsh, t3,t... - Thyroid UK

Thyroid UK

138,296 members162,221 posts

Hashimoto patient

nancypapa profile image
6 Replies

I have hashi now my tsh, t3,t4 is normal. My antibodies very high. My question is anybody with hashi suffering from cluster headache? What can i do about it?

Written by
nancypapa profile image
nancypapa
To view profiles and participate in discussions please or .
Read more about...
6 Replies
RoboTh profile image
RoboTh

I get cluster headaches at time of the month, with dose increase of levo for a few days and when my ferritin is low. The ferritin ones are daily and last months

nancypapa profile image
nancypapa in reply to RoboTh

Thank you I will have ferritin test. Also my dose is high now something you mention. Headaches are horrible

SlowDragon profile image
SlowDragonAdministrator in reply to nancypapa

How much levothyroxine are you currently taking

Always test thyroid levels as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Essential to regularly retest vitamin D, folate, ferritin and B12

Please add most recent thyroid results and ranges

Vitamin results too if you have them

nancypapa profile image
nancypapa in reply to SlowDragon

Thank you I will have the blood test you mention done . I’m taking 150mcg and my last tsh, t3, t4 are in the normal range after my dose was change to 150mcg

greygoose profile image
greygoose

There's no such thing as 'normal' where blood tests are concerned. All it means is that the results is somewhere within the range. But it can be in-range and still be too low to make you well. So, if you want someone to say something helpful, best to give the numbers: results, ranges and doses. :)

HashiFedUp profile image
HashiFedUp

Post your bloods - doctors say bloods are within normal range, when for a hashimotos patient, they are far from normal. Doctors don’t understand!

You may also like...

best treatment for patients with Hashimoto's?

Hashimoto's...which is why I'd like to hear especially from those of you with autoimmune disease....

best oil for Hashimoto patients?

corn oil should be avoided for this very reason...? But what about grape seed oil, rapeseed oil,...

Advice on NDT for a Hashimoto patient

my usual workout.  I was always very tired.  I started reading about it and asked my doctor to run...

Photophobia in a Patient with Hashimoto's Thyroiditis

Positive anti-thyroid peroxidase and thyroglobulin antibodies and diffusely enlarged thyroid goiter...

West Norfolk NHS GP useless for Hashimotos Thyroid Patients it seems!

(sorry she wouldn't tell me what they were!), my T4 was 13. I have been having INCREASED symptoms...