Evening, so I had my first face to face appointment with Endo today (I have hashimotos and have posted before)
He's literally saying all the things I've read about on this forum - TSH suppressed (0.07 - range 0.27- 4.20), wouldn't want to go much lower as causes heart issues, hypothyroid sufferers seem to blame all symptoms on thyroid, not looking at ft4 (14.8- range 10.8-25.5) or ft3 (4.5 - range 3.1-6.8) results, saying doesn't matter if hashimotos as treated same as hypothyroidism, can't explain why ft4 and ft3 are low end of range.
I'm feeling like he doesn't understand condition but obviously can't quite say that.
We've agreed, after me not letting things go, that depending on what blood test results reveal (had them done this morning before taking meds - I'm currently on 125mcg levo and 10mcg lio) that if ft4 is below 18 (I told him from what I remember in all the ups and downs that I seem to remember feeling well at this level) that he would increase levo but reduce lio.
So I left feeling unsupported and having to fight and persuade for adequate treatment. It makes me doubt myself and wonder if Endo is right and there is something else wrong with me but it does very much feel like the symptoms I had before I was diagnosed when for ages no one knew what was wrong with me.
From my ft4 and ft3 results it is possible to still feel undermedicated, right?
Also, looking back since 2016 when I was first diagnosed there were times when my ft4 and ft3 weren't high up in the reference range but I didn't feel unwell. Is it possible that the same results years ago would not cause symptoms but that those same results now do.
If I'm not getting the support from my Endo what other options do I have. Can anyone recommend an NHS Endo or private doctor who knows what they are doing and willing to ignore TSH levels.
Lastly, is it always necessary to go gluten free and interested to know how many people on here don't follow this diet and are well. I did the AIP back in 2018 but I was feeling well at the time so when I reintroduced food there was no obvious reaction.
Sorry for the lengthy post and looking forward to any help you can give