Tonsil stones : Just a quick question can... - Thyroid UK

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Tonsil stones

Crystalynn profile image
10 Replies

Just a quick question can hypothyroid cause tonsil stones

Even after you have had your tonsils removed

Has anyone else ever experience this

Have had multiple scans and tubes stuck down my throat by the ENT and nothing

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Crystalynn profile image
Crystalynn
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10 Replies
SlowDragon profile image
SlowDragonAdministrator

Could be lichen planus ?

Crystalynn profile image
Crystalynn in reply to SlowDragon

What is that I was reading about it somewhat

SlowDragon profile image
SlowDragonAdministrator in reply to Crystalynn

nhs.uk/conditions/lichen-pl...

Sallybones profile image
Sallybones

Hya strangely enough I've been having some strange gunk appearing randomly at the back of my throat all this year. Discoloured with a hard bit in it.

I assumed I was bringing it up out of my gut but my GP thinks I may have Adenoid Stones by the way I described it as suddenly happening and I've got to get it out of my mouth as quickly as possible as it makes me gag. ie it drops down onto my gag reflex. She asked me if I ever had tonsilitis but I didn't.

I've been to ENT twice already this year as I had complained of nasal and ear discomfort on my left side for ages and pain below ear and permanent sore throat, which has got worse. Had scope but nothing seen.

Anyway my good GP has referred me again with this new information.

My whole body seems to have quietly disintegrated with various odds and sods like this.

You don't say why you think it could be tonsil stones?

I know you can get stones in your salivary glands!

I can't find anyone else who has had Adenoid stones so I'm interested in your post.

cheers

Crystalynn profile image
Crystalynn in reply to Sallybones

Thanks for the reply yeah I have a had a sore throat for a year and constant nasal and ear pain with sinus infections and they have found nothing with scopes and scans so frustrating I hope we can both find relief

humanbean profile image
humanbean

Just a quick question can hypothyroid cause tonsil stones

Even after you have had your tonsils removed

I can't say if I've ever had tonsil stones. I was only about 10 when my tonsils and adenoids were removed.

But what I can tell you is that the amount of flesh surgeons remove when they take out the tonsils can vary enormously. I know this because one side of my throat has had far more flesh removed than the other side, so my throat is an odd shape. It has no effect on my quality of life at all. But a few doctors have commented on the shape of my throat.

If this can happen to me then presumably some people can have some of their tonsils left behind. And if that is the case then it seems possible that you could get tonsil stones in the remaining flesh.

RoboTh profile image
RoboTh

My tonsil stones have completely stopped since starting levo! I suffered with them for years

Crystalynn profile image
Crystalynn in reply to RoboTh

I’m on 125mcg of levo for like a year now

RoboTh profile image
RoboTh in reply to Crystalynn

I think tonsil stones are common if you have post nasal drip. I used to use ear buds to remove my stones

Crystalynn profile image
Crystalynn

Still with them and a constant sore throat they have me on 137mcg of levo finally getting to back to the dr now after 6 months as I lost my insurance hoping to find some relief from the many symptoms I have

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