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Previous posts show you have autoimmune thyroid disease also called Hashimoto’s diagnosed by high thyroid antibodies
Have you had coeliac blood test done yet
Or are you already on strictly gluten free diet
Technically it’s Hashimoto's (with goitre) or Ord’s thyroiditis (no goitre). Both variants are autoimmune and more commonly just called Hashimoto’s
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal
Before considering trial on gluten free diet get coeliac blood test done FIRST just to rule it out
If you test positive for coeliac, will need to remain on gluten rich diet until endoscopy (officially 6 weeks wait)
If result is negative can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift.
If no obvious improvement, reintroduce gluten see if symptoms get worse.
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.
Hey, I am having similar symptoms and I am overdosed, my ft3 is over range. Your ft4 seems over range if the range is 12-22. You don't need to reduce to 75, you can go with 88 as well as 25 mcg is a big drop (depends what your bloods were on 75 mcg).
Yes, I've had similar symptoms during hyper flares, before diagnosis/treatment. With thyrotoxicosis when treating, the only symptom I experienced was painfully weak arms and shoulders. My TSH had dropped from 0.43 to 0.11, and then went up to 3.0 as a result of cutting my dose, leaving me feeling pretty awful. With a slow and gradual increase, my TSH eventually dropped to 0.06 with no symptoms of over-substitution. I was allowed an FT3 test, which showed FT4/FT3 > 4.5, so I decided to reduce my by then high dose of levothyroxine and add a source of T3. I assume the damage from the flare had reduced the capability of my thyroid to contribute to conversion from FT4 to FT3.
I would suggest dropping back to 75 mcg or alternating 100/75 mcg.
Sorry it's taken me so long to get back to you but this is the first time I've looked at my emails in days. It seems like people have already given you some great advice and covered everything. I Hope you start to feel better soon.
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