Daughters results: Hi everyone My daughter is... - Thyroid UK

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Daughters results

carolinegodlonton profile image

Hi everyone

My daughter is showing many signs of having underactive thyroid as have all the women in our family so I'm trying to get her diagnosed without much luck. She has a small amount of both antibodies. Her tsh is 2.24 (0.3-3.05)

T4 12.4 (9-23)

T3 3.5 (2.5-5.7)

She presented 3 different sets of tests through the NHS and Thriva but they're not going to medicate. This is so frustrating. Could I just try her privately on a starter dose of Levo. She is 33.

Many thanks

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carolinegodlonton
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14 Replies

What was her antibodies result?

SeasideSusie profile image
SeasideSusieRemembering

carolinegodlonton

What do you mean by "small amount of antibodies". I have a small amount of antibodies (most people do), eg TPO: <9 (0-34) andTg:12 (0-115) but I don't have Hashi's. Do you mean hers are over range?

If you post all the test results you have, including their reference ranges, we can comment and maybe help.

carolinegodlonton profile image
carolinegodlonton in reply toSeasideSusie

TPO 0.98 {0-5}TG 1.8 {0-40}

I had read in a book about hashimotos somewhere that any antibodies at all were of significance to the start of autoimmune disease. so if they are not over the top of the range, then its not a problem? if there are a small amount would it mean that it could develop?

I was concernec because I struggled for 15 years to get a doctor to agree to autoimmune thyroid disease. I was always sent away to see if and when it gets worse. Finally I was very sick and got them to agree that there was a problem I didn't want her to suffer unnecessarily.

SeasideSusie profile image
SeasideSusieRemembering in reply tocarolinegodlonton

carolinegodlonton

I first had antibodies tested back in 2000/2001 when I was seeing Dr P. The lab at that time reported antibodies as negative. They were tested on two different occasions.

Since then I've had them done a few times as they were included in thyroid/vitamin bundles. The highest TPO have been is 13.2 and lowest 6.6 (0-34) and the highest Tg have been is 21.6 and lowest 11.9 (0-115). So they do fluctuate, as your daughter's might, but that doesn't mean Hashi's will develop.

I don't have Hashi's, I have never, in 45 plus years of hypothyroidism, had the fluctuations in symptoms and results you get with Hashi's. You can't rely on the test results alone. Some people with Hashi's have never had raised antibodies.

What are the results of her TSH, FT4 and FT3 tests that she's had done over time, post those with their reference ranges.

Has she also had Vit D, B12, Folate and Ferritin tested? Post those too if she has.

carolinegodlonton profile image
carolinegodlonton in reply toSeasideSusie

tsh: 2019 3.66 0.27-4.2 June 21 3.57 0.27-4.2

July 21 2.67 0.35-4.94

July 21 2.24 0.3-3.05

t4: 2019 13.9 12-22

June 21 11.1 12-27

July 21 11.8 9.01-19.05

July 21 12.4 12-22

t3: 2019 4.6 3.1-6.8

June 21 none done

July 21 4.4 2.5-5.7

July 21 3.57 2.5-5.7

vit d july 21 60 75-175

vit b12 88 37.5-188

folate 20.8 8.83-60.8

cholesterol 6.4 <5

SeasideSusie profile image
SeasideSusieRemembering in reply tocarolinegodlonton

carolinegodlonton

Were all tests done under the same conditions as we advise

* Blood draw no later than 9am

* Nothing to eat or drink except water before blood draw

* No supplement containing biotin in the week before the test

carolinegodlonton profile image
carolinegodlonton in reply toSeasideSusie

Yes. I told her the way to do it . she wasn't taking any vitamin supplements at that time. She started after the last test.

SeasideSusie profile image
SeasideSusieRemembering in reply tocarolinegodlonton

carolinegodlonton

If I've sorted these results properly to give a full set for each test (you might want to check I haven't mixed any up)

2019

TSH: 3.66 (0.27-4.2)

FT4: 13.9 (12-22)

FT3: 4.6 (3.1-6.8)

June 21

TSH: 3.57 (0.27-4.2)

FT4: 11.1 (12-27)

FT3: -

July 21

TSH: 2.67 (0.35-4.94)

FT4: 11.8 (9.01-19.05)

FT3: 4.4 (2.5-5.7)

July 21

TSH: 2.24 (0.3-3.05)

FT4: 12.4 (12-22)

FT3: 3.57 (2.5-5.7)

then if I'd just seen these two on their own I would be thinking possible Central Hypothyroidism (CH):

June 21

TSH: 3.57 (0.27-4.2)

FT4: 11.1 (12-27) - should this actually be 12-22?

July 21

TSH: 2.24 (0.3-3.05)

FT4: 12.4 (12-22)

FT3: 3.57 (2.5-5.7)

CH is where the TSH is normal, low or minimally elevated and FT4 is very low or below range and it's where the problem lies with the pituitary or the hypothalamus rather than the thyroid.

As her TSH has been quite near the top of it's range on a couple of occasions and her FT4 very low, especially the below range one, then if her GP wont refer her to an endo I'd be looking to see one privately, but choose very carefully, get a recommendation from members and send for the list of thyroid friendly endos from Dionne at ThyroidUK

Email: tukadmin@thyroiduk.org

We have checked these and her folate and vit d are being supplemented now.

What were the results of her nutrient tests? Are these supplements prescribed or over the counter?

carolinegodlonton profile image
carolinegodlonton in reply toSeasideSusie

I did post the results of her nutrients above with the others. They're not good at all and I have ordered the Iggenus b complex and vit d for her.Fortunately she has managed to get a referral privately with an endo. No names were given so she awaiting the list of endos in her area. I will tell her to get the list first.

The supplements are not prescribed.

SeasideSusie profile image
SeasideSusieRemembering in reply tocarolinegodlonton

OK, I've found them now.

vit d july 21 60 75-175

The Vit D Society and Grassroots Health recommend a level of 100-150nmol/L.

To reach the recommended level from your current level, you could supplement with 3,000-4,000iu D3 daily.

Retest after 3 months.

Once the recommended level has been reached then a maintenance dose will be needed to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. This can be done with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:

vitamindtest.org.uk/

Doctors don't know, because they're not taught much about nutrients, but there are important cofactors needed when taking D3.

D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking D3 as tablets/capsules/softgels, no necessity if using an oral spray.

For D3 I like Doctor's Best D3 softgels, they are an oil based very small softgel which contains just two ingredients - D3 and extra virgin olive oil, a good quality, nice clean supplement which is budget friendly. Some people like BetterYou oral spray but this contains a lot of excipients and works out more expensive.

For Vit K2-MK7 I like Vitabay or Vegavero brands which contain the correct form of K2-MK7 - the "All Trans" form rather than the "Cis" form. The All Trans form is the bioactive form, a bit like methylfolate is the bioactive form of folic acid.

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking magnesium as tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

drjockers.com/best-magnesiu...

vit b12 88 37.5-188

Over 100 is better for B12, this can be taken care of with a good quality, bioavailable B Complex.

folate 20.8 8.83-60.8

At least half way through range is recommended so that's 35 plus with that range. Again a good quality B Complex.

I see that you have ordered Igennus Super B. Be aware that this contains Vit C and Vit C keeps the body from using B12, Vit C should be taken 2 hours away from B12. It would be worth considering one without Vit C if the B12 it contains is important, eg Thorne Basic B.

Is there a result for ferritin?

carolinegodlonton profile image
carolinegodlonton in reply toSeasideSusie

Thank you very much for all this info. We haven't got around to doing an iron panel yet but I think it will be next on the list.

Marz profile image
Marz

Maybe her nutrients are low which can also be the cause of thyroid like symptoms.

B12 - Folate - Ferritin - VitD all need to be OPTIMAL and not bumping along the bottom of the ranges ... 🌻

carolinegodlonton profile image
carolinegodlonton in reply toMarz

We have checked these and her folate and vit d are being supplemented now. Lets hope this makes a difference.

Marz profile image
Marz in reply tocarolinegodlonton

Good news ! So do you have the results with ranges plus the doses prescribed ? So often we read here of Docs prescribing too little. 🌞

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