Recent test results: Hi everyone...so got my... - Thyroid UK

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Recent test results

Bunnyhopps profile image
14 Replies

Hi everyone...so got my results from Medichecks. Their doc says my 75mgs thyroxine is fine(been on this 8 years) and my vits are fine(although they seem low to me) but my Ferritin is too high and I need to lower it. I dont take any iron supplements and I dont eat red meat. I take 4000 iu of vit D daily. My weight has increased from 8st 10lbs to 10st 7lbs and I am struggling to lose the weight. I am dieting and exercising and still gaing pounds!!! These are results; TSH..0.4(0.27-4.2)

T4...17.8(12-22)

T3...4.1(3.1-6.8)

Folate serum...4(2.9)

Ferritin...230(13-150)

B12...34(25.1-165)

Vit D...74(50-200).

Would you all agree that I stay on 75mgs of thyroxine as during the past 8 years I have upped it to 100mgs myself and felt better but GP always put me back on 75 after a blood test. This is the first time I have had private bloods done. Also can anyone suggest how I lower my iron intake? I eat mainly gluten free and no meat.TIA.

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Bunnyhopps
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14 Replies
SlowDragon profile image
SlowDragonAdministrator

Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test?

Your Active B12 is extremely low

Anything under 70 is considered suspect and further testing needed

Folate is also low

Ask GP for testing for Pernicious Anaemia before starting on any B12 or vitamin B complex

You may need B12 injections

Vitamin D is still on low side

You may need to increase dose higher in winter ...less in summer

Do you also supplement magnesium and vitamin K2

Low vitamins tend to lower TSH

Low vitamin levels suggest under medicated

Ft4 is only 58% through range

Ft3 is only 27% through range

Helpful calculator for working out percentage through range

chorobytarczycy.eu/kalkulator

Suggests slightly under medicated and very poor conversion

Most people when adequately treated will have both Ft4 and Ft3 at least 60% through range

First step is to get B12, folate and vitamin D OPTIMAL.

This frequently improves conversion of Ft4 to Ft3

Absolutely strictly gluten free diet often helps or is essential

Probably have room to increase levothyroxine to 100mcg 3 days week

Retest thyroid and vitamins in 3-4 months

Likely can increase levothyroxine further once vitamin levels are better

Bunnyhopps profile image
Bunnyhopps in reply to SlowDragon

Thankyou so much for this info...test was at 9am as it was earliest I could get...last took my thyroxine the morning before and only had water to drink before the test. I only started taking vit D around 5 weeks ago as I fractured my ankle without doing anything....walked around on it for 3 months without knowing. Fracture doc told me to have bloods done at gp as he had noticed my vit d really low back in 2018!!!! No one told me! I also asked for a Bone Density scan which is being done tomorrow. I now have access to my med records and I last had bloods done back in Aug 2020 with gp and was told no action needed as all was ok....when it clearly wasnt. I had bloods done with gp 5 weeks ago on fracture docs advice and was told vit d low but nothing was said about my b12. I def feel better when my levo is 100mgs. I do have a stash of them as before Covid my husband worked in Dubai and you can buy thyroxine over the counter in Boots....so I bought some! Lol.

Bunnyhopps profile image
Bunnyhopps in reply to SlowDragon

Also....I dont take vit k or magnesium.....all I take is a daily vit D(4000iu) my 75mgs of levo and my HRT(tibolone) and thats it.

greygoose profile image
greygoose

Did you also have your CRP tested? If that is high, it could be the cause of your high ferritin.

Bunnyhopps profile image
Bunnyhopps in reply to greygoose

Whats that? Lol.....sorry for being so slack???? I didnt see it on the test but the doc from Medichecks said I need to get iron levels checked as overload can be just as bad as a deficiancy.

greygoose profile image
greygoose in reply to Bunnyhopps

CRP is an inflammation marker. And it's usually found at the top of the page, just above the ferritin result, I think.

Yes, iron over-load can be as bad as deficiency, but best to check if it's a true over-load or caused by inflammation. The test might have been called C-Reactive Protein.

Bunnyhopps profile image
Bunnyhopps in reply to greygoose

Just checked and it 1.8(0-5). Vitamins had a green dot at the side(indicates all is good)and so did thyroid but iron levels and autoimmunity had red dots at the side(indicates not right).

greygoose profile image
greygoose in reply to Bunnyhopps

Yes, ok, so it's not inflammation causing your ferritin to be high. So, you do need to see your doctor to find out why. :)

Bunnyhopps profile image
Bunnyhopps in reply to greygoose

I will ring gp and try and get an app. I really do appreciate you helping me.....so thankyou so much.x

greygoose profile image
greygoose in reply to Bunnyhopps

You're very welcome. :)

Polaris profile image
Polaris

Hi Bunnyhops. I noticed that you posted on t he PA forum, don't eat meat and wondered if you have been taking B12 supplements? Crippling fatigue is just one of the symptoms of B12 deficiency, although many do overlap with thyroid disease.......

Research also shows that 40% of those with thyroid disease go on to have B12 deficiency, (three in our family have both), especially if you have stomach problems or coeliac disease.

This link gives excellent advice/links/videos and tells you more about symptoms as well as suggestions on how to approach your doctor:

b12deficiency.info/signs-an...

Below is latest BMJ research document summary (full document behind a paywall), from which you'll see that there is really no reliable test and a deficiency should be diagnosed by symptoms if in any doubt:

bmj.com/content/349/bmj.g5226

The Dutch link below explains more about testing, B12 misconceptions and the importance of early and adequate treatment.

stichtingb12tekort.nl/weten...

Neurological symptoms, such as tingling, etc. should be treated without delay with B12 injections 'every other day until no further improvement', to prevent permanent damage'.

Good luck in finding answers.

Bunnyhopps profile image
Bunnyhopps in reply to Polaris

Thankyou so much for the above info. I will definately read up on it all. I have just accepted not feeling great since being diagnosed 8 years ago with Underactive Thyroid....feeling extremely tired and not losing extra weight easily. For 30 years I found it easy to lose weight and had bags of energy then I was diagnosed and I feel just as tired....infact more now....and I cant lose the weight so I feel my thyroxine isnt working or that I need more. I was told on Thyroid Uk that if vitamin levels are low then thyroid med dont work. I had bloods done about 8 wks ago and vit D was low but doc didnt do B12. I had private bloods done 2 weeks ago and B12 was 34 but I now know thats ok as it was my Active B12. My ferritin was 230 which the Medichecks doc said was high and not to take iron supplements (which I dont) and to not eat foods with iron in(which I dont eat red meat or cereals fortified with iron) but a few days ago I had my ferritin checked by nhs gp and it came back at 125...so thats puzzling as there was only a 2 week difference between the private blood test and nhs one. The nhs test didnt check my B12. My eyesight is a bit 'funny' sometimes....its like everything goes really bright as if a flash as gone off in front of my eyes and it takes awhile to focus-this happens every few weeks and lasts around 15-20 mins...so not sure if thats connected. Its mainly the tiredness and weight gain but I felt I needed to get my vitamins in range or towards the top end then maybe my thyroxine will start working again.....who knows....its one big mine field but groups like this are so informative and help so much....so once again....thankyou for the info. 😊

Polaris profile image
Polaris in reply to Bunnyhopps

Problems with eyes, (double vision, migraine), ears (tinnitus), sore tongue, etc. are common and varied.

What made me wonder, besides fatigue and not eating meat, were the problems with hair loss. There is a video on the B12 link above in which Dr Chandy treated a patient with B12 and her hair grew back.

My hair started to fall out after suspected Addison's Disease but has grown back after adrenal treatment from a herbalist. Damaged adrenals were discovered to be connected to low B12 by Addison - this is in Dr Chandy's book, 'Vitamin B12 in Clinical Practice' - chapter 7 can be accessed on line from his website 🤗

Bunnyhopps profile image
Bunnyhopps in reply to Polaris

My hair has gone a lot thinner and is really thin at my crown. I used to have lovely thick hair but not now. I will definately watch the video.....so grateful for this info. 😊

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