Unsure what to do re test results : Hi, Test in... - Thyroid UK

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Unsure what to do re test results

haggisplant profile image
16 Replies

Hi,

Test in feb when taking x4 150 x3 125 a week was

tsh 0.23 (0.3-4.5)

t4 20.9 (10-22 last taken the previous morning)

Ferritin 45

DROPPED 50mcg thyroxine a week, my decision. (Two 25’s) as I was feeling over active symptoms (bone and muscle aches, too buzzy but tired, crashes.)

Test today while taking x2 150 x 5 125 was

Tsh 0.12

t4 19.4 (last taken previous morning)

Ferritin 79 (two spatone with 500 mg vit c)

I’m still feeling over active symptoms though I’ve also been tired since the AZ jab a month ago. Bone and muscle aches, started to loose weight (I don’t need to).

Back story; after Xmas I’d overhauled my morning routine as was underactive ( 6 and then 2.5ish) and been on a higher dose, but wondered if I was taking porridge and various nuts and seeds too near thyroxine so changed that and then had the feb test. Stopped biotin a week before test.

I don’t understand why I’m even more overactive despite the drop! I’d like to go to 125 and aim for 0.6-0.8 but feel nervous.

Could it be an anomaly? Or the impact of raised ferritin?

Only other thing is that I’d been getting tests mid cycle and this one was on the day of my period.

Lovely Gp has said its normal but I don’t feel great. Any suggestions?

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haggisplant
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16 Replies
Jazzw profile image
Jazzw

You aren’t more overactive though—well, to be accurate, you don’t appear to be overmedicated.

Why do you think you are?

Just to note—undermedicated symptoms can often be identical to overmedicated symptoms. And really, without an FT3 result, you can’t really say whether you are or not, unfortunately.

It’s good that you’ve got your ferritin up. What were your B12, folate and Vit D results previously?

haggisplant profile image
haggisplant in reply toJazzw

They don’t do t3 though my next step was to get private test.

Symptoms. Some symptoms eg muscle aches and bone pain, tight hamstrings was better when I was 2.5! Other things weren’t though.

Why would there barely be a difference, and tsh go lower when I’ve dropped 50 a week? If I’d had the thyroxine beef ore the test I know it would have been out of range from previous experiences.

What is the best time of day for t3 test. I know it varies a lot hence why the gps don’t test.

Jazzw profile image
Jazzw in reply tohaggisplant

Sorry—reply below! Must have clicked into the wrong box!

haggisplant profile image
haggisplant in reply toJazzw

As you’ve said yourself, under and over medicated symptoms can be similar. I’m not under medicated, definitely. No swollen ankles and loosing weight without trying.

Jazzw profile image
Jazzw

TSH varies widely through the course of a day (and between labs) so the difference between 0.12 and 0.23 is clinically not a lot at all.

Your FT4 has dropped (which is more what I’d expect to see with a slight reduction in dosage). So the dose dropping did work.

I don’t think it really matters what time of day you do an FT3 test to be honest. If you take T3 (which I don’t think you do?) then we recommend here to leave it 12 hours after taking before having the test.

Sorry to hear about the aches and bone pain. I’ll ask again—cos I get aches and pains when my Vit D / magnesium is low. Have you had a Vit D test?

haggisplant profile image
haggisplant in reply toJazzw

last test was 73 nmol/L a year ago. I’ve since been taking take loads of magnesium, spray and at night, lots in diet and 4000 vit d most days. (3000 spray and 1000 in cod liver oil.)

I’ll have to do a private full works test.

I also wonder if waiting another month might help.

Jazzw profile image
Jazzw in reply tohaggisplant

Sounds like you’re doing all the right things.

It can be a long and frustrating process, figuring out what might help.

It’s a cliche but nonetheless true—it can take time, even when everything’s optimal, for your body to make all its repairs and for you to start feeling better as a result of the positive changes you’ve made. I think waiting another month is probably quite a wise move.

JAmanda profile image
JAmanda

Stay on a stable dose for 6 weeks before testing your T3, t4 and tsh together.

TSH110 profile image
TSH110

Best only change dose by 25mcg at a time and leave for 6 weeks as the change works through. I think you really need a free T3 test for reliable info about your thyroid hormone levels. It needs to be in the top third of the range to be optimal. It could be that your other results are not stable due to thyroid disease progression. I feel cold and constipated if under medicated and agitated if overmedicated. I take NDT, I was never well on Levothyroxine.

haggisplant profile image
haggisplant in reply toTSH110

Thanks, been hypo for 25 years. It’s bust!

I’ve struggled since having children and probably peri menopausal.

TSH110 profile image
TSH110 in reply tohaggisplant

Ah the turmoil hormones can cause! I was really ill before diagnosis and after I was treated I used to think good heavens - I’m nothing more than a bunch of hormones! If they go wrong the consequences can be very dire. They are our essence I suppose but perhaps we are a bit more that just hormones alone. The fact that thyroid disease is far more prevalent in women and we are hormonally complex in order that we are capable of reproduction must be related to it all going wrong.

haggisplant profile image
haggisplant

Yes I have that. I definitely know that I can be prone to over medication. I was quite ill for a while when kept on a dose by an endo which really suppressed my tsh, t4 in early 20s. T3 was actually within range (reverse t3 not tested) but I felt horrendous.

I’m v sensitive to the “correct” dose, my mother seems to be the same.

haggisplant profile image
haggisplant

Thank you for comments. I’m going to wait another 6- 8 weeks on this current dosage and test privately, as also need vit d, ferritin etc.

It’s possible that female hormones need to catch up a bit too.

clown profile image
clown

I found that some brands of thyroxine work better for me

haggisplant profile image
haggisplant in reply toclown

I hadn’t considered this; a week before the test I had to use two 50’s daily instead of the 100. I did that for 10 days. So it’s possible it skewed the results.

haggisplant profile image
haggisplant

Update: hrt was desperately needed! It’s helped some things but I believe I need a lot more.

I’m also looking into b12 again.

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