DROPPED 50mcg thyroxine a week, my decision. (Two 25’s) as I was feeling over active symptoms (bone and muscle aches, too buzzy but tired, crashes.)
Test today while taking x2 150 x 5 125 was
Tsh 0.12
t4 19.4 (last taken previous morning)
Ferritin 79 (two spatone with 500 mg vit c)
I’m still feeling over active symptoms though I’ve also been tired since the AZ jab a month ago. Bone and muscle aches, started to loose weight (I don’t need to).
Back story; after Xmas I’d overhauled my morning routine as was underactive ( 6 and then 2.5ish) and been on a higher dose, but wondered if I was taking porridge and various nuts and seeds too near thyroxine so changed that and then had the feb test. Stopped biotin a week before test.
I don’t understand why I’m even more overactive despite the drop! I’d like to go to 125 and aim for 0.6-0.8 but feel nervous.
Could it be an anomaly? Or the impact of raised ferritin?
Only other thing is that I’d been getting tests mid cycle and this one was on the day of my period.
Lovely Gp has said its normal but I don’t feel great. Any suggestions?
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haggisplant
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You aren’t more overactive though—well, to be accurate, you don’t appear to be overmedicated.
Why do you think you are?
Just to note—undermedicated symptoms can often be identical to overmedicated symptoms. And really, without an FT3 result, you can’t really say whether you are or not, unfortunately.
It’s good that you’ve got your ferritin up. What were your B12, folate and Vit D results previously?
They don’t do t3 though my next step was to get private test.
Symptoms. Some symptoms eg muscle aches and bone pain, tight hamstrings was better when I was 2.5! Other things weren’t though.
Why would there barely be a difference, and tsh go lower when I’ve dropped 50 a week? If I’d had the thyroxine beef ore the test I know it would have been out of range from previous experiences.
What is the best time of day for t3 test. I know it varies a lot hence why the gps don’t test.
As you’ve said yourself, under and over medicated symptoms can be similar. I’m not under medicated, definitely. No swollen ankles and loosing weight without trying.
TSH varies widely through the course of a day (and between labs) so the difference between 0.12 and 0.23 is clinically not a lot at all.
Your FT4 has dropped (which is more what I’d expect to see with a slight reduction in dosage). So the dose dropping did work.
I don’t think it really matters what time of day you do an FT3 test to be honest. If you take T3 (which I don’t think you do?) then we recommend here to leave it 12 hours after taking before having the test.
Sorry to hear about the aches and bone pain. I’ll ask again—cos I get aches and pains when my Vit D / magnesium is low. Have you had a Vit D test?
last test was 73 nmol/L a year ago. I’ve since been taking take loads of magnesium, spray and at night, lots in diet and 4000 vit d most days. (3000 spray and 1000 in cod liver oil.)
I’ll have to do a private full works test.
I also wonder if waiting another month might help.
It can be a long and frustrating process, figuring out what might help.
It’s a cliche but nonetheless true—it can take time, even when everything’s optimal, for your body to make all its repairs and for you to start feeling better as a result of the positive changes you’ve made. I think waiting another month is probably quite a wise move.
Best only change dose by 25mcg at a time and leave for 6 weeks as the change works through. I think you really need a free T3 test for reliable info about your thyroid hormone levels. It needs to be in the top third of the range to be optimal. It could be that your other results are not stable due to thyroid disease progression. I feel cold and constipated if under medicated and agitated if overmedicated. I take NDT, I was never well on Levothyroxine.
Ah the turmoil hormones can cause! I was really ill before diagnosis and after I was treated I used to think good heavens - I’m nothing more than a bunch of hormones! If they go wrong the consequences can be very dire. They are our essence I suppose but perhaps we are a bit more that just hormones alone. The fact that thyroid disease is far more prevalent in women and we are hormonally complex in order that we are capable of reproduction must be related to it all going wrong.
Yes I have that. I definitely know that I can be prone to over medication. I was quite ill for a while when kept on a dose by an endo which really suppressed my tsh, t4 in early 20s. T3 was actually within range (reverse t3 not tested) but I felt horrendous.
I’m v sensitive to the “correct” dose, my mother seems to be the same.
I hadn’t considered this; a week before the test I had to use two 50’s daily instead of the 100. I did that for 10 days. So it’s possible it skewed the results.
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