First of all my Daughter:
She is getting weaker and weaker and is now in a wheelchair and still we have no diagnosis. Her blood pressure drops so low her heart rate then races and she fits. I have low thyroid and had adrenal issues really badly so had steroid treatment years ago and take levothyroxine now etc. My Sister could not convert T4 to T3. I am not not converting T4 to T3 properly and need more testing. My Mother ended up with low thyroid towards the end of her life also etc etc.
My Daughter is being investigated for possible EDS as well. I am suspicious she has ENDO issues due to her blood pressure being so low and dropping massively at times and so easily but we are not getting very far at all with a diagnosis and she is getting weaker and weaker.
If anyone has any ideas and/or recommendations for a good Endo or Thyroid and Adrenal type Dr then please let me know.
My Daughter lives in Kent but can travel a reasonable distance