Recommendation for good Endo who can think outs... - Thyroid UK

Thyroid UK

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Recommendation for good Endo who can think outside the box

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First of all my Daughter:

She is getting weaker and weaker and is now in a wheelchair and still we have no diagnosis. Her blood pressure drops so low her heart rate then races and she fits. I have low thyroid and had adrenal issues really badly so had steroid treatment years ago and take levothyroxine now etc. My Sister could not convert T4 to T3. I am not not converting T4 to T3 properly and need more testing. My Mother ended up with low thyroid towards the end of her life also etc etc.

My Daughter is being investigated for possible EDS as well. I am suspicious she has ENDO issues due to her blood pressure being so low and dropping massively at times and so easily but we are not getting very far at all with a diagnosis and she is getting weaker and weaker.

If anyone has any ideas and/or recommendations for a good Endo or Thyroid and Adrenal type Dr then please let me know.

My Daughter lives in Kent but can travel a reasonable distance

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SeasideSusie profile image
SeasideSusieRemembering

If anyone has any recommendations please reply by private message only as we can't discuss individual doctors on the forum. I will turn off replies so that no information is posted here.

lowthyroiduk You can send for the list of thyroid friendly endos from Dionne at ThyroidUK:

tukadmin@thyroiduk.org

You could then ask on the forum for members to send you a private message with any feedback or information on any that may be within travelling distance. It is fine to name a doctor when asking for feedback, we just can't discuss them openly.

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