My daughter saw her Endo/Doc yesterday who was perturbed by the latest results. She had been on 10mcg of T3 only for 2 weeks and then on 20mcg of T3 for 2 weeks but had awful headaches, fatigue & swollen, so cut back to 10mcg. Her results yesterday were: TSH .98 (.27-4.20), T4 7.6 (12.0-22.0), T3 4.6 (4.0-6.8).She has also put on weight. Her T4 had dropped from 15.7 6 weeks earlier when she was on 25g of Levo. The Endo, who is very sympathetic & helpful, is referring my daughter to a functional doc as she says the NHS will never sort this as it all stems from a craniotomy for a colloid cyst in the brain 2 1/2 years ago. They have recently suspected secondary hypothyroidism but are not sure now if it is to do with her digestion (suffers awful constipation & has mottled rash on abdomen), her brain or her endocrinology. Her white blood count & lymphocytes are also low. She has been on a very limited diet for over a year - no gluten, meat, carbohydrates, dairy, sugar etc. but put on 12 kilos 2 years ago. Her recent blood test was taken at 10am & the previous one at 1pm, don't know if that makes a difference!
Sorry it is such a long post but would be grateful if anyone has any ideas?