Walked with a stick in case of falling. Exhausted. Slept 6pm until 9am. Improved once children left home maybe due to less work? but still not energetic.
Walks her dog but wipes her out.
Does what she can. Less depressed. Still has terrible aches and pains. So much so she ignored appendicitis last year as sheās says she has pain everywhere and is always told nothings wrong.
I think antibodies were negative but will double check tomorrow.
It seemed to me that with the low t4 result and tsh not even at 2 that something else may be a miss as thought her pituitary should be trying to raise her t4.
Thought it is possible the doctors never saw this low t4 as obviously they donāt test it generally.
She is going to attempt a referral and hopefully She will get one and some answers as she wouldnāt be able to find the money for scan/private endo.
Yes, the low FT4 with a low or normal TSH indicate secondary hypothyroidism caused by pituitary dysfunction. I would get the bloods retested at the doctor's to see that it's correct. They may need to point out the NICE CKS guidelines to the doctor because a lot don't understand Pituitary dysfunction and think it's primary hypothyroidism. The treatment is the same but monitoring is different. They will also need more blood tests to check Pituitary hormones and a MRI.
If the doctor agrees that it might be secondary hypothyroidism they should urgently refer them to an Endocrinologist. Treatment should not start until cortisol/adrenal function has been checked. cks.nice.org.uk/topics/hypo...
Thatās brilliant (the info not the problem obviously!) I have already sent her your Nice link and have tried to guide her on what to say. Itās awful to wish her āillā but it would be so amazing to get some answers after all this time.
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