At my wit's end with GP: I just don't know what... - Thyroid UK

Thyroid UK

138,444 members162,434 posts

At my wit's end with GP

magsyh profile image
2 Replies

I just don't know what to do next. Back in January I had a bad time with anxiety. I called my GP after talking to the mental health team on 111 as no one else would listen. It certainly got a response as my GP spent nearly an hour on phone with me. During that phone call she persuaded me to try coming off levo completely. She promised to do tests and get to the bottom of my problems so I reluctantly agreed. My doc has always had a problem because I get a private prescription and I've had many an argument with them and they always blame the thyroid medication on any problem I may have. 10 weeks on I have been off levo but now they aren't interested. I've been more or less told to get lost. I've been through all sorts of hypo symptoms and even new ones I've never had before. Two weeks ago I had a test done by medichecks as doc refused saying I hadn't been off levo long enough.

I had the full check, still no antibodies.

TSH has gone to 4.61 (0.35-4.2)

T4 17 (10-22)

T3. 5.17. (3.1-6.8)

Vitamins etc all in a very good place. Only thing worrying me is albumin being 35 (35-50) calcium below range at 2.18 (2.2-2.7) potassium has gone down to 4 (3.5-5.3) but doc says I'm normal. My heart problems during the night have got worse, it's happening much more often they gave me propranolol for that. If I go without the propranolol my resting heart rate goes 95-105. On levo it was in the 70's. I want off the propranolol but I can't cope without it my heart rate goes crazy and I freak out! I'm not sure what to do as T3 is now better than it's ever been as I'm taking selenium. Should I ride this out and try to live without thyroid medication? My hair has been falling out and I have gained 2 stone! Aches and pains are back and I'm sleeping a lot. As soon as I sit down I fall asleep. The high heart rate and the palpitations are doing my head in. Doctor just said z bit of adrenaline won't do me any harm! I've tried levo, NDT and T3 in the past I can't tolerate any of them they all make me unwell give me palpitations and bad headaches. Doc says if they can't write a prescription to fix my problems then they can't help me!

Any ideas please? When I was given medication by private doc TSH was 2.8, T4 was 13 and T3 was 3

Written by
magsyh profile image
magsyh
To view profiles and participate in discussions please or .
Read more about...
2 Replies
SlowDragon profile image
SlowDragonAdministrator

How much propranolol are you currently taking

Is it Slow release capsules....or do you take 3-4 tablets spread through the day?

TSH is obviously climbing

What’s most recent vitamin D, folate, ferritin and B12 levels

What vitamin supplements are you currently taking

Low calcium suggests low vitamin D

You might consider an ultrasound scan of thyroid £150

magsyh profile image
magsyh in reply to SlowDragon

I'm only on 10mg propranolol at night as my palpitations happen when I'm sleeping. My vit d was 81. Ferritin 145 folate 13 active b12 118I'm taking magnesium glycinate, b complex, selenite, low dose iodine, high dose vit c, occasionally cq10, vit d, k2, occasionally potassium citrate,

I live on an island so no choice of doc and no chance of scan.

You may also like...

Scared and confused, at my wits end

tablets as it has been low for some time then increased so when it increased they took me off the...

Thyroid help, at my wits end!

my life has just been a roundabout of repeat blood tests. Saw GP today (new GP as I've recently...

At my wits end trying to understand and get answers

2012 . Was allergic to medication which hospitalised me . Took me off all medication . Just...

I am at my wits end, please help

symptoms today that I had 15 years ago. I've been on 75mg of levothyroxine. I've been back to my...

Help...At my wits end

have not been diagnosed with hypothyroid. My Dr and myself thought that may have been the problem...