simple thankyou to all of you!

[whoville62]

this website is a godsend. you people who are all suffering as well know more then all the crazy docs!!.. i am learning about things everyday...btw im hypo w hashi and still fighting w endo. taking 50ml of synthroid w horrendoes anxiety issues...endo says dose is not my cause of side effects, however i know it is, erghhhhhhhh🤔😳

[DippyDame]

I beg to differ with your endo....and agree with you!Anxiety is a symptom of undermedication.

So what does this smart guy suggest IS the cause of your symptoms....I wouldn't call them side effects. His response isn't helpful to you, his patient!

How long have you been taking this dose of liquid T4?

Were you tested 6/8 weeks after the introduction of Synthroid? Results should then be reviewed and dose altered as required (every 6/8 weeks) until you feel better

However, before commenting further members really need to see lab results

This list might help, tick off all the hypo symptoms that you have and show it to your medic

thyroiduk.org/if-you-are-un...

If you can come back with lab results members will advise.

[SlowDragon Administrator]

50mcg levothyroxine is only a STARTER dose

Being under medicated can cause terrible anxiety

Bloods should be retested 6-8 weeks after each dose increase

Dose levothyroxine is increased slowly upwards in 25mcg steps until TSH is ALWAYS under 2

Most people when adequately treated will have TSH well under one

Most important results are always Ft3 and Ft4

Ft3 at least 60% through range

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially as you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

What vitamin supplements are you currently taking

When were vitamin levels last tested

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

[SlowDragon Administrator]

As you have high antibodies this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

[80sgirl1968]

Hi there, I'm on synthroid as well. When I was on a very low dosage I experienced panic attacks and very high anxiety levels. Since I increased my dosage a bit it has helped me. However, now I'm having heart palpitations steady. Not sure what is going on . I'm going to go for another blood test in a few weeks.

Hopefully, your doctor will increase your dosage to help you with this.