Results and what you all think : Well, I got my... - Thyroid UK

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Results and what you all think

debber profile image
13 Replies

Well, I got my results. Everything came back normal. I take 3 Throid S dessicated tablets. I was on 3 and a quarter. I started having hairloss when on the 3 and a quarter and heart racing and heartburn. The doctor told me to decrease a half tablet. I only decreased a quarter as this all scares me. I like slowly. Well, I am down to 3 tablets now. I got my results and they all came back normal. I subsided on the heart racing and heartburn. But still having hairloss but not as bad. Here is what came back.

Im still waiting on vit D and Reverse T3

I dint think I should go down any more. I think staying where im at. This all started after covid

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debber profile image
debber
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13 Replies
SlowDragon profile image
SlowDragonAdministrator

You need to test vitamin D, folate, B12 ,

Plus full iron panel test for anaemia including ferritin

Hairloss often linked to low iron/ferritin

Was test done early morning, ideally around 9am and last 1/2 or 1/3rd of daily NDT dose approx 8-12 hours before test

Do you have autoimmune thyroid disease, also called Hashimoto’s

debber profile image
debber in reply to SlowDragon

Hey SlowDragon,

Im going to get tested for all that. I am hypothroid diagnosed 2010-11. Its been a whirlwind with doctors years ago.

And no, I took the test in afternoon. I dudnt know that. I take my NDT at 8 am and take 3 tablets. I reduced about 2 1/2 weeks agoba quarter. So take the test in the morning?

I have a good doctor now. My original doctor who diagnosed me passed away and I finally have another good one.

Im going to send a sage to get all that you mentioned from him.

I dont know what hashimotos is? Im going have read on it. My hair is long and after covid it came out in clumps. Also had heart racing and heartburn. I also started a new bottle too. Throid S sometimes the dosages are not right the dictor said. He wants switch me to NP. And scan my thyroid

Im scared with all this. I had breast cancer at 35. My original dictor told me my hypothyroidusm set me up for it and infertile. I tried so hard to have a chold when younger and it never happened. I was in my 40s when I got diagnosed as doctors dont know enough about this. Im 55 now. My doctor changed my life after I got on meds. I had depression as a child really bad and hairloss really bad when younger. I thought that was just the way it was. I wonder how much better I would have been if I had known and treated earlier. Not that things were bad but I could have gone further.

Us thyroid people have come a ling way making it known to the medical field. We knew all along sonething was wrong but most of them didnt.

Im going to send my doctor a message. I love being my own advocate. I still get scared though.

Thank you from bottom of my heart!!!

SlowDragon profile image
SlowDragonAdministrator in reply to debber

most people on NDT find it better to split NDT at least into 2 doses everyday

But ALWAYS split dose day before test…..last 1/2 or 1/3rd approx 8-12 hours before test

debber profile image
debber in reply to SlowDragon

I had no idea. Im going to do that. Thank you for telling me that. Muah Muah

CSMMUM profile image
CSMMUM in reply to debber

hi Debber,

Sorry to hear you’re having a rough time. You’re in the right place to get excellent support and advice. Was just curious as Autoimmune conditions tend to crop up with others, have you ever been diagnosed with PCOS (Polycystic Ovary Syndrome) ? You mentioned infertility and that goes hand in hand with PCOS with a whole bunch of symptoms in flare up mode. When I couldn’t conceive they discovered it but was never told (found out when an insurance company refused to insure me for lack of disclosure 😤).

greygoose profile image
greygoose

Unlikely the heartburn is due to over-medication. It's probably due to low stomach acid - which most hypos have. The symptoms are the same as for high stomach acid, so doctors never think to check.

debber profile image
debber in reply to greygoose

Wow. That's amazing. Im going to have him run Folate, B12, full iron panel, feritin.

When I started having symptoms it was terrible. Im back to normalcy except still bit hairloss, not like it was tho. Its long too. It will come back. It always does.

I had it my while life and didnt get diagnosed until in my 40s. I remember as a kid my dad asking whose hair in the bathroom. It was everywhere and daily. I had depression really bad too. I stopped all that when I got on my 40s. Doctors back then never tested for it.

I was more concerned with the heartburn and palps. Im happy that's stopped. Im not going down no more.

I get scared as im a breast cancer survivor. My first dictor told me my hypo set me up for it at 35. I tried so hard to have a child too and never could. She told me it causes infertility. Who knew! Ive been doing good Grey since I got on dessicated. It changed my life ((crying))). I still get scared tho. Irs very complexing and in our medical field so many are uneducated with it. Im my own advocate now. When I was younger I wasnt.

Thank you, Greygoose. So much.

We are rebels!!!!!

greygoose profile image
greygoose in reply to debber

Yes, I know what it's like. i've been showing hypo since I was 8 years old, but no-one ever tested me for it until I was 55! Hypo/Hashi's. So, I doubt if I'll ever be 'normal'. But, then, I don't know what 'normal' is! All doctors are ignorant about thyroid, even the best - and there aren't very many of them. I've seen so very many doctors in my 77 years, and I wouldn't give you tuppence for any of them!

Not sure your doctor was right about your hypo 'setting you up' for breast cancer. Not all hypos get breast cancer. However, when one hormone is skewed, the others tend to be, so it could be that you had low progesterone, which would affect your breast-cancer risk. But, once you optimise your thyroid hormones, the others should fall back into place. So, I think your doctor was scaring you unnecessarily - they do like to do that.

As for fertility, it doesn't make you infertile, exactly - I've had three children - but it does make it harder to conceive and carry a baby to term. Had you been diagnosed earlier, you could probably have had a baby, unless there was some other cause.

debber profile image
debber in reply to greygoose

Greygoose, what is hashimotos and how did you find out? You sound very similar to me. I agree with you on the medical doctors. Ive been thru so many of them. They are uneducated, so many. Wow, 55. Thats awful Grey. We go almost half our lives with no help and what a struggle it is. I got to the point when I was 22 of taking my life. They put me on paxil. They didnt fix the issue. They put a bandaid on it. I dont take any antidepresants now. I got off paxil a few years later as I realized it did not fix the issue.

Im getting an ultrasound done and I will keep you posted.

What do you take, Grey? Im going read up on Hashi.

greygoose profile image
greygoose in reply to debber

Hashi's is an autoimmune disease, where the immune system slowly destroys the thyroid. It is diagnosed by testing serum TPO and/or Tg antibodies. If one or both of them are high, you have Hashi's. However, a negative result for these tests does not necessarily mean you don't have it, because antibodies fluctuate all the time. Also, it's possible to have Hashi's without ever having high levels of antibodies.

I had very high Tg antibodies, so mine was positive on the first test. I live in France, and here, they do a full thyroid panel for the first test: TSH, FT4, FT3 and antibodies. In the UK, all they tend to test is the TSH, which is so very wrong. And leaves a lot of hypo people undiagnosed and suffering. If they bother to test at all, that is! As you and I both know to our costs, they often don't bother to test anything. So, whilst I'm 99.9% certain I've been hypo since I was about 8 years old, I have no idea how long I've had Hashi's. I don't think I could have had it at 8, because if I had, I'd probably be dead by now! It could have been following one of my pregnancies - that's when a lot of women develop Hashi's. Or, it could have been when a ignorant doctor 'treated' me with iodine - that is a known trigger for Hashi's - in my thirties. But, we shall never know now. And, I guess it realy doesn't matter. By the time I was diagnosed - by accident! - there wasn't much of my thyroid left. :'(

greygoose profile image
greygoose in reply to greygoose

Pressed 'send' too soon. lol

Twice I've been put on antidepressants. First time when I had terrible postnatal depression at 23 - Valium - the doctor thought I was just an attention seeker! And, again, briefly, not long after my diagnosis, when the GP kept my TSH at 9.5, because - he said - that was good enough! That time it was Prozac. I didn't stay on either for long because I couldn't stay awake!

My thyroid hormone replacement is T3 monotherapy. I cannot tolerate T4. I've tried many times, with different brands, but it just doesn't suit me. I tried NDT, but that was worse than levo! Synthetic T3 suits me best. :)

debber profile image
debber in reply to greygoose

Youre right, they dont test like they should. I had never been tested until in my 40s. I feel like when you talk about having it when you were younger is definitely me. Ive never had an antibodies test, Greygoose. Im going to get one.

I feel the same way here in America. They simply think youre crazy and want to prescribe antidepressant medicine. I went to 7 doctors and they all thought I was crazy.

Do you have to take a med, Greygoose, for Hashi?

When I get a scan ill keep you posted. I think somethings not right. Is it ultrasound they do for it? MRI? Im not sure.

I love talking with you. Youre amazing!!!

greygoose profile image
greygoose in reply to debber

There is nothing you can take for Hashi's, there is no treatment, it just has to run its course, and you take thyroid hormone replacement of some kind for the resulting hypothyroidism. That's all they can do, as medical science stands.

Doctors treat you as if you're crazy for a number of reasons, I think. Firstly because it's easier for them to just dismiss you as a looney and prescribe a pill rather than looking for an actual cause. Secondly because they don't have the education to recognise hormoneal problems when they come across them. Thirdly, I think misogyny has a lot to do with it. We're only women, after all! Not like we're important or anything.

An ultra sound of your thyroid is what you want. If you have had Hashi's long enough, the damage done to the thyroid will show up on the ultrasound. But, there are two possibilities. We talk about Hashi's as if it were one disease, but Autoimmune Thyroiditis is actually two diseases: Hashimoto's Thyroiditis and Ord's Thyroiditis. Ord's is basically Hashi's without a goitre. The thyroid shrinks to the size of a pea, a tight little ball. Do you have a goitre?

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