Feeling unwell waking up and blood tests - Thyroid UK

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Feeling unwell waking up and blood tests

Tasia profile image
14 Replies

Hi there some mornings I wake up feeling very fluey out of sorts feeling and I have to lie in bed for about 20 mins for the feeling to go away and than I’m fine. Wondering if anybody else gets this? Also please could you tell me if my blood results are ok. These were done last November I’ve started taking Vit D daily. Thanks for any advice

Thyroid antibodies Value: 187 iu/ml

Range: 0.00 - 60.00iu/ml.

Serum free T4 level Value:18 range 9.00 - 22.70pmol/L

Serum Tsh level 1.32 mu/L range:0.55 - 4.78 mu/L

Serum free T3 level - 5.2 pool/L range:3.50 - 6.50pmol/L

Serum total 25 OH vit D Level value 36

Thank you x

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Tasia profile image
Tasia
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14 Replies
Jazzw profile image
Jazzw

Good to see that you’re now taking Vit D, as that would be the first thing I’d have mentioned. :)

Could you have sleep apnoea? It sounds as though it’s something to consider. See more about it here: blf.org.uk/support-for-you/...

Tasia profile image
Tasia in reply to Jazzw

Thank you for reply No I don’t believe it’s this as far as I’m aware I don’t snore and I sleep very quietly at night. I’ve had this feeling on and off for a few years now it tends to come and go. Thanks again for your reply x

SeasideSusie profile image
SeasideSusieRemembering

Tasia

Serum free T4 level Value:18 range 9.00 - 22.70pmol/L = 65.69% through range

Serum Tsh level 1.32 mu/L range:0.55 - 4.78 mu/L

Serum free T3 level - 5.2 pool/L range:3.50 - 6.50pmol/L = 56.67% through range

What thyroid meds are you taking?

How do you feel?

The aim of a treated Hypo patient on Levo only, generally, is for TSH to be 1 or below with FT4 and FT3 in the upper part of their reference ranges. If you are symptomatic there is some room to increase your dose.

Thyroid antibodies Value: 187 iu/ml

Range: 0.00 - 60.00iu/ml.

Suggests autoimmune thyroid disease, known to patients as Hashimoto's. Did you know this? Some Hashi's members find that a gluten free diet helps although it's not guaranteed.

Serum total 25 OH vit D Level value 36

I’ve started taking Vit D daily

Is the unit of measurement nmol/L or ng/ml? If nmol/L what dose of D3 are you taking?

The Vit D Society and Grassroots Health recommend a level of 100-150nmol/L. To reach the recommended level from your current level, you could supplement with 5,000iu D3 daily.

Retest after 3 months.

Once you've reached the recommended level then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:

vitamindtest.org.uk/

Doctors don't know, because they're not taught much about nutrients, but there are important cofactors needed when taking D3.

D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking D3 as tablets/capsules/softgels, no necessity if using an oral spray.

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking magnesium as tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

drjockers.com/best-magnesiu...

afibbers.org/magnesium.html

Tasia profile image
Tasia in reply to SeasideSusie

Hi Susie my Vit D is nmol/L I’m taking 400iu (10mg) daily?Do you mean that I have Hashimotos? As on my blood test paper it says acceptable.

I’m on 50 mg thyroxine 3 days a week and the other 4 days I have to take 75 I usually take 50 Monday Wednesday and Friday.

I feel ok but do get quite tired

Thanks so much for reply x

SeasideSusie profile image
SeasideSusieRemembering in reply to Tasia

Tasia

Vit D is nmol/L I’m taking 400iu (10mg) daily?

With a Vit D level of 36nmol/L you need far, far more than 400iu D3 daily, that's a child's dose and not even a maintenance dose for an adult with an already decent level. You need 5,000iu at the moment and retest in 3 months.

Don't forget the important cofactors mentioned above.

Don't start all supplements at once. Start with one, give it a week or two and if no adverse reaction then add the next one. Again, wait a week or two and if no adverse reaction add the next one. Continue like this. If you do have any adverse reaction then you will know what caused it.

Do you mean that I have Hashimotos? As on my blood test paper it says acceptable.

Thyroid antibodies Value: 187 iu/ml

Range: 0.00 - 60.00iu/ml.

Presumably these are Thyroid Peroxidase antibodies? If so then yes it suggests Hashimoto's. I'm not sure how a result so far over range can be considered acceptable on any planet!

I’m on 50 mg thyroxine 3 days a week and the other 4 days I have to take 75 I usually take 50 Monday Wednesday and Friday.

I feel ok but do get quite tired

Fatigue is a symptom of hypothyroidism (it is also a symptom of low ferritin so I'd get an iron panel done or at least a ferritin test).

It might be worth trying 75mcg for 7 days a week and see if it makes any difference.

Tasia profile image
Tasia in reply to SeasideSusie

Thank you again for all your help I’ll try 75 and see how it goes. I’ll also speak with my doctor about my vitamin D and having blood tests done. I really appreciate all your help thank you again so much x

SeasideSusie profile image
SeasideSusieRemembering in reply to Tasia

Tasia

I’ll also speak with my doctor about my vitamin D and having blood tests done.

I doubt you'll get much joy from your doctor, they are notoriously ignorant about nutrient levels as they aren't taught it at med school. They are only obliged to treat Vit D deficiency which is less than 25nmol/L but in some areas it's less than 30nmol/L. Some doctors will only prescribe until level reaches 50nmol/L, others will prescribe until it reaches 75nmol/L but the most they prescribe, if not in the deficiency category, is usually 800iu. So you are better doing it yourself and buying your own supplement.

I discovered and treated my own severe deficiency of 15nmol/L without involving my GP, it would have been a waste of time and taken a very, very long time with their prescribed dose. Doing it myself I raised my level to 202nmol/L in 2.5 months so then found my maintenance dose and now keep it around 150nmol/L.

Tasia profile image
Tasia in reply to SeasideSusie

I agree the doctors are useless I’m just looking into buying my own from Natures Best they have a high potency dose on there I’ll try it out than after 3 months I’ll ask for blood test. Many thanks Susie x

SeasideSusie profile image
SeasideSusieRemembering in reply to Tasia

Tasia

Make sure it's an oil based softgel or capsule, never tablets as they aren't absorbed well.

Tasia profile image
Tasia in reply to SeasideSusie

I will do thank you unfortunately the ones on Nature Best were quite low in potency so now I’m looking around on other sites thanks again x

SeasideSusie profile image
SeasideSusieRemembering in reply to Tasia

My suggestion is Doctor's Best D3 softgels, only two ingredients - D3 and extra virgin olive oil, I have always used them and been very happy with them.

Tasia profile image
Tasia in reply to SeasideSusie

Thank you I’ll look it up x

humanbean profile image
humanbean

For future reference you can calculate your ideal dose of vitamin D when your levels are low with this calculator :

grassrootshealth.net/projec...

Once you've got your levels up to optimal you will have to find your maintenance dose, which varies from person to person. If you just stop taking vitamin D your levels will drop back to where they were before you started supplementing.

For many people a maintenance dose is something like 2000 iU - 5000 iU per day. But we're all different so we each have to work out what we need for ourselves.

...

If it turns out that improving your vitamin D level doesn't get rid of this problem :

some mornings I wake up feeling very fluey out of sorts feeling and I have to lie in bed for about 20 mins for the feeling to go away and than I’m fine.

I think it would be worth your while to investigate your cortisol levels at some point - but optimise your nutrient levels and thyroid levels first.

Tasia profile image
Tasia in reply to humanbean

Thank you so much that looks great and yes I’ll look into the cortisol too many thanks x

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