Aaaaghhh!!!

[Lotika]

Just had phone consultation with NHS endo and looking to have a minor vent.

Both my frees are below 50%.

He seems to favour changing the time of day I take my second T3 as a way forward. Second dose at lunchtime. Harrumph. I feel like we are rearranging deckchairs on the Titanic. For 3 weeks!!! 😱I said “T3 is fast acting, we’ll know within a week!”

To be fair, I am not long finished a course of antibiotics and therefore he is likely thinking about some potential absorption issues as well, so it is probably good advice, but I just want to feel normal, so it isn’t the advice I wanted!!! It’s been over 6 years now... I could cry!

He also made some reassuring noises about just getting to the right dose and and extending the trial to 6 months... and then if that didn’t work “checking other things”, by which I assume he means vitamins or something, so I’m thinking he’s gold dust for an NHS endo.

But, by god, they don’t call it a trial for nothing!

I am making plans to get well and truly plastered later...

[Smorzando]

Hi Lotika, I feel your pain! But, on the positive side, it is very good that your endo is extending the 'trial' to 6 months (does anyone really get to their optimal dose in just 3 months? I'm sceptical)

And he's clearly prepared to try and help you reach the right dose for you, rather than just say T3 isn't working and take you off it. That would be the worst case scenario.

Just curious, have you ever tried taking both your T3 doses together in the morning? That's what I do. I've tried splitting, but 1) it's a pain and 2) I don't feel any better that way - maybe slightly worse, in fact.

Oh and re getting plastered, if you're anything like me that would involve drinking half a glass of wine. I am such a lightweight these days 🙃

[Lotika in reply to Smorzando]

No, I’ve not tried doubling up in the morning! One to experiment with once we have satisfied the endo that moving the second dose to early afternoon makes no odds! Unless it does. But... meh. Took it an hour and a half ago and don’t feel particularly chipper - in fact I still want to cry! It’s absurd, as it’s illogical, given that I am lucky with the endo... just under medicated and therefore unable to process emotion properly, I suppose. I guess I’ve been feeling under medicated for the last 6 years in one way or another and I need to get well enough to look for a job before I run out of money, so waiting another 3 weeks to improve things seems like a massive blow, even if I can see the logic to it... and it’s not like I’m going to run out of money soon. Just that if we can’t get better than it was, I need to change career, so it is all quite overwhelming. Def need to drink through that one tonight, ha ha! I have a fridge full of cold GF beer and there’s a sunny riverbank very nearby to drink them on come 5pm, when my partner in crime lays down the tools of his trade!

[Smorzando in reply to Lotika]

I think one argument for taking your T3 all in one go is that a higher dose might be able to get into the cells better, where its needed....

My endo firmly told me to take my T3 in split doses as otherwise I'd 'crash' in the evenings. Nope, makes no difference! In fact some days I'm pretty much 'crashed' all day.

Don't talk to me about drinking cold beer outside in the sunshine, it's 14 degrees and very grey here in Glasgow 😒

[Lotika in reply to Smorzando]

Oh gosh, I hadn’t heard that re T3 - good info! At present Mr Endo is going with what I shall affectionately and respectfully call “the deckchair intervention” and his plan b is to up my T3 for the morning to 10... fingers crossed for that! Sorry re the crashes. My endo has built his deckchair intervention around the fact that I do crash late afternoon / early evening! I think I probably will anyway too... but I’ll not know whether it was the meds or the drink today!!!

[Smorzando in reply to Lotika]

"Deckchair intervention", lol. I think you've got a good one there, despite it being slow progress. Upping to 10 in the morning is a good plan B.

[serenfach]

T3 has a half life of around 2 and a half days, and if you take it regularly (no matter when or how) the levels have shown to be fairly even over time.

I take half just before bed. I get the most amazing dreams. I just have to meet him in real life now!

As soon as the sun is over the yard arm, I will join you in a glass of something, if nothing is lambing.