My Recent test is saying I am Slightly over. Well they've just changed the brands liothyronine - had Mercury Pharma which was awful gastritis really bad. now I get morningside which are much better. Levothyroxine now Northside so for so good. But health wise bodys okay not too bad but brain is like all over the place also mood swings are all over the place depression at its highest.
I did research and bipolar came up ive got all the symptoms for it but not 100% sure so thought I would get advise from here before i pursue this theory . So please help. Much appreciated
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Yazz1
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Previous posts confirms you have Hashimoto’s diagnosed by high thyroid antibodies
Low vitamin levels are extremely common with Hashimoto’s
As you have Hashimoto’s are you on strictly gluten free diet?
Or dairy free diet?
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten.
Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
For full Thyroid evaluation you need TSH, FT4 and FT3 tested.
EXTREMELY important to test vitamin D, folate, ferritin and B12 at least annually
Ask GP or Endo to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
I am currently on 100mcg levo alternative 75mcg and 20mcg liothyronine split into 2 dosages. Which I take early morning on empty stomach. I am also taking vit c d b12 multivitamin folate acid these I take in the afternoon after my meal. My recent blood results are on top of page, I was told it was slightly above and was told to take the dosage alternative. As before I was just taking 100mcg levo. And 20mcg lio. I do have hashimoto's so am quite cautious the foods I eat. Not 100% there yet but am working towards it.
Your numbers look nicely in range. I'd try not to reduce my dose saying I'd like to stay on an even keel while I try to get my head together as constantly changing dosage affects your mood I think. But just an opinion. Other than that I guess we need to be kind to ourselves and realise these are terrible times - I'm watching lots of nice easy telly!
Will definitely try it. always willing try new ways to try and improve my health. Thank you ever so much and much appreciated for the advice I wish my Dr n endo's would give advice like this but lost faith in them no one cares anymore. Its all about the covid now.
And btw vitamins, im not constantly taking vitamin d i'll take for while then stop until I get my bloods done. But im going to try the spray and the others you recommended. 😊
Having just read all your previous posts can I just confirm - when told you had Graves did you get prescribed anti thyroid drugs like Carbimazole and did you ever have RAI to " kill " of Graves - or words to that effect ?
Graves Ophthalmopathy can run independently of Graves Disease - I know it's a long time ago but were your antibodies for Graves ever tested and proved over range and positive.
It does sound as though you have Hashimoto's so I then presume you never had Graves as otherwise the treatment is generally AT drugs and or followed by RAI or a thyroidectomy ?
Undoubted you need thyroid hormone replacement as with Hashimoto's ultimately the gland becomes destroyed over a period of years as your own thyroid hormone production becomes erratic and fails you.
i'm with Graves post RAI thyroid ablation in 2005 and having failed to get prescribed anything other than Levothyroxine on the NHS have now resorted to self medicating and I am currently happy on Natural Desiccated Thyroid.
In the beginning I was diagnosed with thyroid graves disease as my eyes were bulging, i could never put weight on either I was skinny with bulging eyes. i was only ever put on levothyroxine. The Dr or thyroid specialist didn't have a clue as it was still all new to them too. I was 18 then and now 46, i struggled really badly when was first diagnosed as my brain used to always be in over drive but my body was always tired. it has only been a few years since i was diagnosed with hashimoto's and i was told my thyroid was underactive. Its been really hard to try and get a balance between knowing what i had and how i was feeling. And I've only started feeling better when I had to pressure my endocrinologist to put me on liothyronine. Even though I can function better as I'm not tired as much but my brain is always still feeling up and down im depressed alot angry alot my mental health is really high to. Currently I'm taking levothyroxine with liothyronine and also vitamin d c b12 folate acid iron and multivitamins to keep me going through the day. But through the years l've been researching to and found out hashimoto's and bipolar you get similar symptoms. So its all confusing right now spent most of my life trying to figure out whats going on and trying to function normally. So I hope it gives you an insight on whats been happening. Are you taking liothyronine? If not what herbal remedies do you take as i am desprate to try anything to try and feel normal. For once!
Hey there, so it sounds as though you have been living with Graves Ophthalmopathy and Hashimoto's and this disease eventually disables the thyroid gland rendering you in various stages of hyperthyroidism/ hypothyroidism until the gland is totally destroyed and you need full thyroid hormone replacement.
I believe if you had Graves Disease you would have been on AT medication like Carbimazole and had your thyroid hormone production blocked to off set the continuous hyperactivity and life threatening issues this disease can cause if not medicated this way.
The ultimate treatment after about 18 months on the AT drug is to take an RAI drink or have the thyroid surgically removed thereby becoming permanently hypothyroid.
I'm not suggesting for one minute your journey hasn't been fraught with the ups and downs of thyroid disease and totally understand the mental impact this can have on one and yes, undoubtedly, I too have experienced a brain - mind - body disconnect :
A fully functioning working thyroid would be supporting you on a daily basis with approximately 10 T3 + 100 T4 plus trace elements of T1. T2 and calcitonin : T3 - Liothyronine is said to be about 4 times more powerful than T4 and the active hormone that the body runs on, with the average person said to use about 50 T3 daily, just to function.
The thyroid is a major gland and the body's engine so if driving a car with an unreliable engine and an inconsistent fuel gauge - I think it's a bit like how we laugh at the person with kangaroo petrol ?? Does that even make any sense ???
I am now self medicating with Natural Desiccated Thyroid which is pig thyroid dried and ground into tablets referred to as grains. This was the successful treatment option for over 100 years before there were blood tests, ranges and guidelines and doctors simply gave the patient a sliver of pig thyroid to chew on : at next appointment if the symptoms still persist a slightly larger nugget would be dispensed, so forth and so on, until the patient felt relieved of symptoms.
It seems Big Pharma introduced their thyroid hormone replacement - T4 - along with the guidelines blood tests and rules in the mid 1960's and most modern day doctors seem unaware of any other options to the synthetic T3 and T4 offered by the large pharmaceutical companies of today.
I supplement adrenal glandular, and also have to keep my ferritin, folate, B12 and vitamin D maintained at optimal levels for me and eat from fresh and seem to have gone gluten free by choice not need, and it has been a slow build back up to where I am now .
Thank you for that. My gland has shrunk. As was told when had an ultrasound few years back. Hence they discovered i had hashimoto's. Its so annoying, when you try explaining to them how your feeling they look at you like your crazy.. lol guess just have to get on with it . And hope for the best.
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