Latest result from MMH;
19.2 pmol/L
FT4 levels normal (normal range 12 - 22 pmol/L)
9 pmol/L
FT3 levels high (normal range 3.1 - 6.8 pmol/L)
Same TSH as in November i.e 0.01 when I was taking 2 x IV metavive & 25mcg Tiromel.
This last test I had cut down to 18.5 mcg Metavive & yet showed higher FT3 & FT4.
Jenny583
When did you take your last dose of Metavive and T3 before the test? Both should be 8-12 hours before the blood draw, splitting dose and adjusting time the day before if necessary. If this is how you did it then your results show your FT3 is too high and suggests a reduction in your dose of Tiromel.
Do you have Hashi's?
I took the 2nd split dose 9 hrs before, taking both 2 doses forward, so AM dose was taken PM, & PM dose brought to night time. Did I do right?
Sorry, I'm not quite understanding that.
Say if you normally take your doses at
1) 7am
2) 7pm
then the day before the test you could still take your 7am dose but your 7pm dose would need to be adjusted to between 8-12 hours before the blood draw the next day.
Sorry SeasideSusie, my bad. I normally take the 1st dose on waking, which is 4 -6 am. I then take the 2nd dose around 2 - 4 pm. But on the day before the actual test - I took the 1st dose at 3 pm and the 2nd dose at 12 pm. Hope that explains it!
You should have taken first dose as per normal at 6am waking
2nd dose at 9pm ....assuming 9am test
What are your most recent vitamin D, folate, ferritin and B12 results
Oh dear! Thanks SlowDragon. I don't suppose it makes much difference though? but I will do it that way next time. I have to transition over to metavive only, (as I can no longer buy T3) - that's why I'm testing every 7 weeks.🤔
I should also point out that I have not had access to any blood tests for around 9 months, so I am going by how I feel, No choice. I dabbled with pregnelolone in small doses for a short while in the hope that that would help HPA axis. I also just finished a half course of Nasonex which is steroid, as I had bad asthma. My temperature is down, which is odd.
I did the correct protocol. I don't think that I have Hashi's. Should I post results over last 3 years?
Jenny583
Hashi's will be suggested if you have raised TPO/Tg antibodies so you'll be able to check that with your previous tests. Hashi's can make test results/symptoms fluctuate so at times you may have higher than normal hormone levels which can suggest an adjustment to your dose until things settle down again.
It's really only your latest results that are relevant at the moment, but if you have any great differences in your levels with previous tests and those tests were all done under the same circumstances then it might give a clue as to whether you have Hashi's if you haven't had antibodies tested.
Thanks SS. I will save up for the antibodies test at some point IF I continue to get up & down results. I have an active B12 test on the way from medichecks. 👍
Medichecks do full thyroid including thyroid antibodies and vitamin testing for £79:
Often on offer at £59
Important to regularly retest vitamin D, folate, ferritin and B12 at least annually
Vitamin D twice year
I know. I just don't have the £ though. It will have to wait till next January!🙁
Looking through previous posts
You had negative TPO antibodies test via GP 9 months ago
Many Hashimoto’s patients only have high TG antibodies. NHS refuses to test TG antibodies unless TPO antibodies are high
20% of Hashimoto’s patients never have high thyroid antibodies
Ultrasound scan of thyroid can help
Request GP do ultrasound
Thank you SD. Yes I know! And no, Gp won't do a scan, or Tg's, she wanted to prescribe Levo too, but lying endo put paid to that. I'm banished from endocrinology & the new GP is indescribable. I need to save for the TG ab's, as I had problems with my neck recently before the FT3 & 4 shot up, I have noted. I was all set to stop all self sourced meds when I run out, but 1st I must save for medical records, & probably Lawyer.
Your entitled to free access to your entire medical record
In Jersey that maybe different. But we will see.
Same as U.K.
cab.org.je/index.php?option...
Yep. I quoted that more than once, hence my Lawyer comment. I tried to get access to other more important records in various other depts & was told that fire had destroyed them, What little I did get was either redacted or replaced with fakes! so I won't hold my breath...
The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
Link re access
healthunlocked.com/thyroidu...
In reality many GP surgeries do not have blood test results online yet
Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.
Important to see exactly what has been tested and equally important what hasn’t been tested yet
Lawyer waste of time and money, you’ll never get anywhere against medical profession
Thanks for the tip. I will not bother with Lawyer then. We don't have access to online records here in the channel islands, + it's a battle getting printouts. It is not NHS here. I did request records last year, but receptionist threw a hissy fit & declined. I will write to them when I get the next TFT's from MMH & B12 hs from Medichecks.
Write with the magic words
“Subject access request”
They must respond and give you print out of everything on your records.....might be astonished how little is ever written down
I will do. But I have used those "magic words" before, but the wicked fairy did not respond. But I won't give up. If I do have to find a Lawyer - I have reams of email correspondence & other documents to show for my quests. One request took 7 months & threats of legal action before I got a response, but it was too late. The written law is not upheld here.
Help with Thyroid test results
Newbie needs some test results help.
can someone have a look at my latest results please?
