This probably won't be my last update on this whole infection, however I just got home from the Urgent Treatment Center and wanted to keep folks posted.
The doctor looked at my urine sample and unfortunately I still have infection markers and blood in my urine. I am particularly tender over my right kidney, moreso than the left, and also very tender over my bladder. They are now treating it as a kidney infection unlike before, when it was being treated as a UTI. I have been given 500mg of Co-Amociclav which I will be collecting tomorrow however the delay in recognising it as a kidney infection has not helped and definitely made it more uncomfortable for me as the infection has been left to it's own devices to fester a bit so ultimately the situation is worse than it should have been if any GP or Out of Hours GP had listened to my concerns and taken it a bit more seriously.
My blood pressure was a bit high (138/80) but this probably was not helped by the receptionist who wouldn't let me sit inside the building and instead made me wait outside on a bench in the cold (she let me sit inside when it started raining, thank goodness. I was so fed up I wanted to cry at that point).
If I get another spell of feeling dizzy and actually faint I have to go straight back to the hospital. I have to give my GP surgery another urine sample in 2 weeks and if I'm still having the bleeding or back pain at that point they want to investigate it as a gyno problem but I'm hoping it won't come to that.
Instead of taking me seriously when I expressed my concerns about the bleeding and back pain, the GP and Out of Hours staff decided to treat it as a UTI (I have no doubt that it started out like that) and as a result the kidney infection had a week to just hang out and not be dealt with. I have been in so much pain over the past week and it's frustrating to learn that I could have been feeling better by now if anyone had listened to me and taken my concerns seriously.
I would be disappointed and angry at how the kidney infection was just left alone when it should have been treated but I haven't got the energy right now to feel that. I am going to have something to eat and after that I'm going to bed. Hopefully tomorrow is a better day.
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Yasai
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You're very welcome! It would have been wrong of me to not post anything here and make people concerned over a lack of update.
Apart from being in horrendous pain it's been a lovely day - tried a mince pie for the first time this afternoon and I am looking forward to having many more over the Christmas period. After all this I think I've earned that! 😊
I've been warned the antibiotics I'm picking up tomorrow don't have particularly enjoyable side effects but anything is better than being in that much pain and not knowing what to do.
I've taken to injecting mine (using a syringe and needle!) with a little cognac. The reasonably priced supermarket ones can be OK but they are always mean with the hooch.
I am pleased you have got the right treatment at last. I was given antibiotics but the pain continued to get worse and I attended my local A & E 3 times and not one the doctors spotted it was kidney stones and sent me home. I was lucky in a way because the hospital concerned was Stafford Hospital and much later I learnt that people were being misdiagnosed there and some had actually died.
If your pain doesn't get better you must contact them and ask for further investigations.
I came home from a 3 wk stay in hospital with aUTI but persevered with D mannose and happy to say I t worked......antibiotics are still in the kitchen drawer! Ask your medic for opinion.
Interesting. My mum tried D Mannose a few weeks ago for her uti but it didn't remove it. So she tried other herbs eg uva ursi, but eventually succumbed to nitrofurantoin (Macrobid) a/b which has cleared it for now at least. Further details in my post in Kidney Disease section.
How long did you persevere with D M? Feel free to pm me if it's detracting from this post.
D Mannose is an option for keeping future UTIs away though as comments I've read on other forums found it good for that. For now, I think mum thinks plenty of water will keep at bay.
sweet cures co has some interesting info re how mannose works. I drink plenty of water as well and keep mannose handy should infection reoccur......which it does unfortunately.good luck anyway....oh, and I drink nettle tea which gets yourPH right and flushes your kidneys through.
I think the Mr Kipling bakeries make millions for other brands. This year, I have found Asda Extra Special to be better than the few others I have tried (and suggested as being best by some media sources).
Last year, M&S did some vegan ones, which were both well priced and, surprisingly, quite nice. Not this year.
M&S ones are just too ridiculously expensive for limited, if any, incremental improvement over much less expensive shops.
So you don't use mannose to keep UTIs at bay eg as per sweet cures' General Protocol?
I think mum may also drink more cranberry juice despite the above Protocol suggesting to avoid cranberry and increased risk of oxalates/stones. If that fails, she may revert to regular mannose albeit with care re increased sugar.
So glad that someone has taken proper notice of your symptoms at last. Let's hope that the correct antibiotics now do the trick quickly. Enjoy those mince pies!!
Oh the pain. I have just been diagnosed with kidney infection. I cannot even bear to eat. Went to walk.in centre and great doctor but must have been waiting 4 hours. I have been told to let her know if I am.not feeling better by today. I might have to go in and be put on a drip.You certainly seem to have been through the mill..x
This was just the beginning, unfortunately 😓 Due to the antibiotics prescribed for the kidney infection I had C-difficle colitis January - February 2021. Finished antibiotics for another UTI and I've had C-Diff symptoms for over a month now. The icing on the cake was that they prescribed Metronidazole for the C-Diff and I now have permanent hearing damage and hearing loss. Getting a hearing aid assessment in a few week's time.
Kidney infections are absolutely horrible and I hope you feel better soon! Hopefully you don't have to be anywhere near a hospital. Take care of yourself and sending you all my well wishes x
Thank you for your reply. Am so sorry.you are having such a hard time. Must be a nightmare.I was amazed that my doctor actually rang me yesterday to see how I was doing and I had to supply a second red topped urine sample. I was impressed because during lockdown it was almost impossible to get to see a Doctor. My back hurts nearly all the time and I slid out of bed last night and couldn't get back in for hours. I am.not familiar with C diff but it sòunds horrid, and medicatiom sounds even worse. I must look.it all up. I was not looking forward to the possibility of a stay in hospital. Remember when we.felt safe in them? Bless you. Sending all well wishes your way too X
It's a been a lot and there's a lot of feelings there that aren't very nice, but I keep putting one foot in front of the other and just doing normal everyday things. Some aspects are far easier to manage, people at work are very nice and understanding about the hearing which makes that a lot easier to cope with on a daily basis.
It's reassuring to hear that the doctor called to check in on you, it was really difficult to get any contact with a GP surgery during the lockdown. Most of the time they couldn't do anything and I spent a lot of time at Urgent Care instead. C-difficle is not a very pleasant illness - I avoided hospital admissions twice and nearly had surgeons involved to see if I was a candidate to have a part of my bowel removed.
The medication was Metronidazole (Flagyl) - it's otoxic so it damages the hearing canal. For most people it's temporary and improves after 2 months, but mine hasn't and is deteriorating quite quickly.
The back pain with kidney infections is absolutely unbearable, I know the feeling of being in so much pain that moving is just too much far too well. Was anyone around to help you get back into bed at all? It sounds very frightening to be unable to move due to the pain and being on your own.
I went to A&E majors for the first time during the C-Diff and my partner couldn't stay with me, so I had to be there by myself. I don't feel comfortable being in a hospital for too long since then, and it took me 2 months to feel comfortable having a blood test or an x-ray. My newly acquired fear of the dentist is a work in progress 😓
Hopefully your doctor will keep checking in with you to see how things are going. Thank you very much, I hope that we're both on the mend soon x
Oh.my goodness.You have had to endure SO much. and you still manage to get to work Your repjy today humbled me but at the same time your words were a comfort.. I guessed you would have plenty of insight given your journey thus far. I live alone and thus no one was about. I managed to land in reach of painkillers and a few hours later managed to crawl on my backside until I got to the bathroom. My son rang laterand told me off for .not calling him. Last night I got into bed the opposite way and went to sleep almost immediately, having attempted to do a spot of housework and.taking the first shower I could manage since Saturday. Almost got stuck in bed with more pain a few hours later. I thought of you and how you have felt/ must be feeling,had some more pain killers prayed to God to.let.me get up . I managed well enough., and I thanked God. You.must ne made of stern.stuff. . I have had.mild suspected kidney I fections before but this iis something I would not wish on my worst enemy..
Last year I was prescribeda different BP.medicatiom. i had a few symptoms after that, but mild. When.the dose was.increased, i found my self creased up many an eviening. I read online to contact GP if experiency bad stomach pains that radiated to the back. I spoke to the GP about it and she did.not seem to think it an issue. I may take it up with her as she.has put.me.on.differnt med but this one gives a similar warning. I'm sorry for rattling on but hearing different side effects you have suffered has made me ponder.
Thank you SO much for your support. I just wish I could.be more help.to you. Having someone to.be able.to.hold your hand and sit.in a waiting room with you makes such a difference. Hopefully.things are.lifting and you sound as though.you have caring partner.
Yes I hope and pray we can soon.put all this to.bed..I shall be interested to see any updates
PS. I am hopeless when trying to juggle so many .. I amnever sure what I have taken wh en No wonder lotsif oldies ( like mysel) get into trouble with medication I have never had so many in my.life before. I do hope you have a good understanding dentist. . Mine has been open throughout lockdown. Just as well. I had a thing about.nuts and broke a couple of teeth.. All the best going forward. Take care..xx.
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