I had blood tests on 02.12 and intervals were as follows:
TRab: 3.47, normal: <1.75
FT3: 3.6, normal 3.1-6.8
FT4: 15.6, normal 12-22
So these are in range but I continue to have a goiter every 3 weeks. It swells, then un-swells and so on. Breathlessness and ear pressure and numbness. Is it possible that the thyroid is pressing on ear structures?
Last doctor I contacted (today) told me I should have an ultrasound otherwise she can't do anything, maybe I have nodules. I can't have one as everyone around me has coronavirus so I'm afraid of hospitals especially!
however I don't get why it swells when my blood tests have been in range for 3 months now almost.
Thanks for any advice!
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haven't been taking anything in these last 3 months. But somehow I always catch the thyroid levels in range when I get the blood tests. And trab levels seem to go down on their own. I'm not strictly on a gluten free diet, though I've tried to avoid gluten since I know it helps many!
I actually have my vit d at a 28 level, where optimal is from 30 above and the doctor I talked to today said I should reduce my supplement since it can get stored in tissues and be too much. I just threw money out the window today with that consultation.
However I'm taking multivitamins and feel pretty good except for this swelling
Would a coeliac test help if I've felt fine most of my life besides this year? I don't have diarrhea, gas or other intestinal issues.
If you are already on low gluten diet don’t bother with coeliac test
With Hashimoto’s and Graves’ disease we frequently develop leaky gut...holes in gut that allow food particles through....gluten is a particular protein...causing molecular mimicary
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
A nutritionist would be more interested in maintaining optimal vitamin levels (but often expensive and not necessarily aware of thyroid issues and gut)
Down to us as individuals to learn and understand importance of optimal levels
Modern diet is extremely gluten rich. Modern wheat also less tolerated by many people. Often mildly gluten intolerant people can eat ancient grains like spelt especially as sourdough
It’s possible to have Hashimoto’s and Graves’ disease at once
Have you had blood testing for Hashimoto’s
TPO and TG thyroid antibodies
Or an ultrasound scan of thyroid
With both Hashimoto’s and Graves’ disease together, this is usually managed by endocrinologist with block (Carbimazole) and replace (levothyroxine)
Your current Ft4 and Ft3 are too low. Your tending to be hypothyroid on Carbimazole. So either dose needs reducing, or endocrinologist could add levothyroxine as well
Ft4 and Ft3 should be at least 50-60% through range
thankfully TG antibodies are negative. Same with TPO. And I thought that maybe i get insufficient iodine (hence goiter), but that's also in range. However, would any doctor prescribe synthetic hormone if hormones are "in range" and TSH 1.07, normal 0.27 - 4.2 So even the TSH is not raised... completely unclear...
no, I'm not seeing any right now. The one who gave me initial treatment overmedicated me, cause from hyper I was hypo after treatment.
She's only working in the office (not giving online consultations) so I haven't seen her in months even though I would've liked to change her. But as I'm pretty desperate I will call her too next week, maybe she agrees to look at my tests.
However, I took online consultations with other endocrinologists and phoned my GP and their only suggestion is indeed an ultrasound of my thyroid and a sinus xray, which I can't take because I'm afraid not to catch coronavirus.
Basically everyone I know is infected with corona. Just so many cases. And I can't risk it. I'm living in Romania. It's a horrible situation here, you go out, you catch it... this is why I can't get proper treatment, because I can't get all the investigations needed.
But this forum and the people here are really helpful this is why after I can't get any useful advice from the doctors I come here.
this probably means as SlowDragon said above that it's my diet. This poor conversion thing makes sense since I read a bit and seems the TSH can be in range with this. And no, I'm not taking any meds or hormones. Thanks for the input
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